I don't drink alcohol, as I feel slow and sluggish the next day, but never miss it. Usually it's dairy causing diarrhea and moderate pain that gets me....
And now, the side banner is advertising yogurt! Even the internet is against me! :rolleyes:...
I'd love to hear about how you manage cravings for foods you know will make you ill. Dairy is off limits for me, unfortunately, and I can't seem to get over pizza cravings. They stay with me for...
I'm pretty open with my coworkers when I'm having a bad pain or energy day. As a therapist, I'm surrounded by people who are pretty good at reading body language, and generally can tell I'm feeling...
I'm in BC, Vancouver. I have MSP and blue cross. They told me at the ER that they'd refer me to a doc but that they couldn't do anything other than manage my pain in a crisis. They said they "didn't...
I don't think anybody in my family can make anything happen faster. Since I'm new to the country I don't have any connections with doctors either. I think I may just be SOL until I get called off a...
I recently moved to Canada, and am waiting to get in to see a specialist. This means I've been without my Humira for seven months, since a GI doc has to sign off on a form for it to be paid for by...
It is hard to know exactly what is causing the back pain. I thought it was Crohn's, until I was no longer flaring but still hurt. I think it is a mix of long ingrained muscle tension and trigger...
@beave: I take it daily unfortunately. Between near daily migraines and the back pain, I'm still working on getting off of it. I have been making progress with an acupuncturist and with a myofacial...
As somebody who has primarily been a lurker, I wanted to share that while I'm not often posting, I do enjoy your messages, and encourage you to stick with it. If some people are dissatisfied by the...
This Friday I developed what looked like contact dermatitis on my back. By today it was looking like shingles, and I had it confirmed by a doctor. I'm on Acyclovir for a week. And off of work, which...
Well in exciting news, I was able to pass some stool early this morning. So while it was not nearly enough to make me feel better, its nice to know I don't have a total blockage or something. Today...
Thanks Bucko. Wow, 6 capfulls would be hard for me to to make myself drink. Right now I've just been taking one a day, but am going to force a second dose before bed. I normally drink a ton of water,...
Hoping some of you all will have some personal experience I can benefit from. While I've stopped keeping very good track of things, my recollection was that I was last able to pass stool Wednesday...
I've been having daily migraines for about a month and a half now. In the last two weeks I've had one day without a migraine. I've switched to wearing sunglasses full-time because the nausea is...
One thing that you might consider is that the tingling is a result of a migraine in the part of the brain that manages sensation to your face. I was taking Topomax and initially attributed similar...
My hair has been falling out like crazy. I have a ton of nutritional deficiencies and as I take my supplements I think it is getting better. Ask your doc to do a really thorough vitamin and mineral...
Testing: I've had IGA and IGG testing, which revealed a number of food allergies I'm working on eliminating from my diet. I also have lots of nutrition deficiencies and am taking a boatload of...
I had a colonoscopy today as part of a research trial, and they found no disease activity. I feel like I should be happy, but at the same time, it is really invalidating to hear that they can't find...
What blogs and sites do you follow for ideas of things to eat on SCD? I've found some good things via pinterest but I'm always looking for ideas to add some variety to things....
The medication they had back then wasn't nearly as good as what we had now. Even then, my grandmother and aunt both took all those sulfa drugs, which according to them were miserable, but my grandma...
So sorry to hear you had a lousy birthday. I hope you get to celebrate and do something fun this weekend!...
I'm screening to be a participant in one of the studies in which you take whipworm eggs to see if it reduces Crohn's. Part of the screening process includes a colonoscopy. I never thought I'd...
Imuran is hard on your liver. So is alcohol, so that may be his concern. I wasn't told no alcohol because of the imuran, but was told by my doc that alcohol may exacerbate my symptoms. I do feel...
I have PF as a result of Crohn's and it is miserable! Stretching really does work. I keep a tennis ball under my desk and roll my foot on it while I work to keep my muscles loose. Spend the first few...
I find the joint pain to be the worst part of my current flare. Ugh! I try to avoid pain meds but have had to resort to them more recently. I do use a topical gel that is a NSAID which my GI doc said...
I'm a therapist with Crohn's, and I have successfully practiced what I preach when it comes to therapy and chronic illness. Mindfulness based stress reduction (MBSR) is fantastic for reducing stress,...
Also, I'm not sure how wedded you are to your university, but you may consider transferring at the end of the semester. Frankly, I wouldn't want to attend a school that treats the students in this...
How do you manage your pain while taking LDN? I've been using Vicodin as Tylenol doesn't even take the edge off the joint pain, but now that I'm starting LDN I worry that I may have to choose one...
after a fairly long process, I was diagnosed with Crohn's in college. It sucked. I spent more time asleep than awake, and to this day I'm not really sure how I managed it. I'm so sorry to hear that...
I meant not too sweet. I've gotten sick of jello and juice. I have done some bullion but was wondering if others had some bright ideas. I'm feeling a bit better and eating solid food about every...
I've had a recent change in my symptoms that have led to an inability to eat much in the way of food lately. I have had several weeks of constipation, nausea, abdominal distension (no bloating or...
I'd like to consult with a doctor about whether LDN might be a good choice for me but have been unable to find a doctor locally who uses it. Can anybody recommend a doc in the Kansas City area?...
I have Crohn's and while I always struggle with constipation and diarrhea even when not flaring, I'm really having problems with inflammation elsewhere. My joints, eyes and skin have all been...
Thanks! I have struggled to find a doctor comfortable with my proactive approach in the past. I'll see if they are taking new patients. Any other suggestions would be great too!...
Does anybody have a doctor they like in the Kansas City area? It doesn't matter if it is in Kansas or Missouri. I'd drive an hour or so if it meant a better doctor. I'm a fairly proactive client. I...
Interesting. The last rheumtalogist I saw wanted to put me on Humira, which is a bit too dramatic for me right now. However, I wonder if another doc would consider alternatives....
I've had Crohn's for about a decade now, and my GI symptoms are pretty much in remission. Lots of gas, and some not-quite-constipation but otherwise doing well. However, the joint pain is driving me...
My brother and I both have Crohns. My mom has IBS. My paternal aunt and uncle have Crohns as did my paternal grandmother. Thanks genetics!...
Recently diagnosed with hypothyroidism, I'm taking 30mg of Amour a day. I'm about a week in and feeling so much better already. The down side is an increasingly strong odor in my urine. I can't...
It took me two weeks to get over the sugar cravings. I did "cheat" and allow myself tortillas once a day for a wrap sandwich, which let me feel like I had more flexibility in preparing meals. Stay...
I wish I could get a doctor to do that for me, heatmiser, because Tylenol doesn't do anything for the joint pain. However, when I go in asking for something stronger my experience has been they think...
I saw a rheumatologist who did a bone scan to determine that my joint pain was not osteoarthritis. I'm looking into a pain specialist but hadn't considered physical therapy....
I'm in kind of a weird phase in my disease. My gastrointestinal symptoms are fairly well under control. Dietary changes seemed to help a lot. A recent colonoscopy showed little disease activity. Yet...
I'm looking into this myself, but it seems that its considered a "drug" if you infect yourself purposely, and therefore not yet FDA approved (not legal) in the US currently. This place...
I have, three times. And at 270 dollars a piece, with my insurance refusing to cover it, I hope I don't have to deal with it again. Its nice that they have these fancy tests, but man, do they have to...
I'll try splitting the dose morning and evening, and see if that makes a difference, and if not call my doc to see about something else. Thanks guys....
I've recently had to up my dose of imuran from 150 mg to 200 due to severe joint pain. I've been on the new dose for about three weeks now. I'm noticing a large increase in fatigue and overall...
I'm experiencing a huge increase in joint pain lately. Its in every major joint from my neck to my knees. It is annoying but bearable during the day, but it leads to difficulties when I want to...
How closely do you adhere to the stages. If you can tolerate the foods for a specific stage right away, do you need to do the earlier ones?...