I had this very same surgery 6 weeks ago. I went back to work 2 weeks ago half days working myself back into the routine. Staying busy but not overdoing it is key to recovery, well for me it was...
Hi Larasmom I'm scheduled Thursday at 12:00 pm I cant turn back now. I will go to the Cleveland clinic in fort Lauderdale. Ill try to start a new topic of my experience once its done. Not looking...
Hi Mainy33 Im 20 days from surgery for a proctocolectomy colon and rectum being removed. I too am scared and like you I am also ready for this I have crohns colitis hoping to get my life back. I look...
I know this thread was started a long time ago but it has insired me to move forward with a proctocolectomy with rectim removed. I was considering backing out. I do not have pain but am miserable...
This is about my husband. Hes 49 never really had health problems. About 3 weeks ago went for an MRI it came back possible Chiari<< spelling sorry. So the Dr today told him there was no way his...
Last year I was diagnosed with Crohn's Colitis all of my inflammation and damage is on left side of colon except they did find a small amount of inflammation in my small intestines. What is different...
I got a flu shot and had no problems. Please note I had not started my meds yet and I was flarring pretty bad already....
Uggg Im sorry you feel bad you've responded to some of my post which I appreciate I wish I had some advice but I'm so new to this I'm still getting advice and help myself. I hate being bloated I look...
I do as a matter of fact going to the dentist on Friday to address these issues. I have a problem with my teeth breaking off I'm thinking maybe its due to years of Malabsorbtion...
Ive been drinking a lot of koolaid instead of tea. Is this OK? is there anything in Koolaid that would be a problem? I'm also drinking Crystal light I use the pure fitness one as it does not have the...
I was told my night sweats were due to my Anemia. I use to have them really bad Id wake up soaking wet have to get up and change my clothes and pillow case. Now my Anemia is under control I do not...
Ive noticed over the last week Ive had a bit of an issue with my Canasa suppository Im to use it 2 times a day. Problem is Im using it when my bowels are most active first morning and then after...
Yeah I tried to have a grilled burger and fries yesterday but gave me major gas but better this morning. I geuss I should stick to my Chicken breast and Avacado sandwichs it stinks because im so...
I just googled proctitus and he didn't say I had that but I have every single one of the symptoms. I will ask him on Wednesday. So maybe I don't have Chrones. They could be wrong they have been wrong...
What is proctitis? All I know is that I was told that I have fissures and scar tissue in my rectum and of course at the time of diagnosis I also had inflamation in my rectum also have 2 fissures and...
I dont understand this I was at work today went to the bathroom as my fissures do tend to bother me towrds the end of the day and noticed red blood on the toilet paper more the usual. Before I was...
I just recently registered myself with the Cleveland Clinic here in Florida. I do not have experience with them as I have not gone for a consult yet but at the advice of my GI I registered. I do have...
I just had the pneumonia shot when I was in the hospital that was one painful shot. My arm hurt for 3 days since I was diagnosed with Chrones and getting ready to start Cimzia they wanted me to have...
When I was severely anemic my resting heart rate was always over 100. When I went to see my MD before my anemia was corrected they checked my pulse in his office it was 122 according to the DR this...
I Have an office job I work for State Farm. I'm in front of a computer most of the day. Oh good idea I have a reminder as part of my outlook calendar I was given a cortisone cream at the hospital its...
Good information those little fissures are quit a problem they do bleed and get irritated. I guess I need to go to the drug store and get some vaseline. Im guessing I can also use this for...
Oh no thats not me Ive never taken Questran. Im newly diagnosed and only taken whats in my siggy except a couple of days of asacol. I still have urgency that's for sure not near as bad I seem to have...
Yeah Im guess its the prednisone working after reading most of the responses. I have a follow up visit since my hospital release I go on the 24th Im going to ask him about the Pentasa. Its hate...
My Norm is many mulitple trips to the bathroom, however since starting the medicine my bowels have slowed way way down. My concern now is being constipated with this low residual diet they have me...
I have a coworker that her son was diagnosed with Colitus when he was a baby still in diapers and they had put him on Remicade before they opted to do a bowel resection he is 13 now and doing well....
Made a mistake on the Pentasa Dosage I actually take 4000 mg a day I seriusly need to get my eyes checked. I do feel better with the exception of my rectum and anal area. I have several fissures Im...
"You know You Are a Crohnie when you sometimes get gas so powerful it feels like your butt is being lifted off the toilet bowl when you release it." I laughed hysterically at that one, so so true....
I wondering if anyone could give me a general idea of when the medicines start working? Or maybe how long it took for them to work for you as I do know everyone is different. I started taking my...
Well you have definitely had a rough go at it. I have 4 children but developed severe diarrhea at the start of the last 2 pregnancies. Weird. We do have good health insurance if not we would be in...
Wow you have been through a lot. I was only just diagnosed however my GI feels I have had this for quit some time undiagnosed. I have a post floating around here somewhere for when I was first put in...
Thanks for your response. I am on a low fiber diet no fruit, fiber, grain breads, fiberious veggies. Its bizzare at first when they did the colonscopy both my GI and the surgeon was saying I would...
I should have reposted about this. This is what happans when your posting from the hospital. I had bad brain fog. Since this post the surgeon at the hospitol came back to me to tell me he felt at...
I work for State Farm and have policy through them of course I got it before I was diagnosed but I was able to get my Type 1 Diabetic child insured we do have tight control of his diabetes however...
I am still feeling a little crampy stool is just soft not watery no blood, hemoglobin is up from 5.4 to 10.5 yeah!!!! took 4 units of blood. Im feeling better to go home now lookng forward to going...
It might not have been so bad but the day after they also did a lower GI barium X-ray and shoved that ballon up rectim and dilated it, it just made things a lot worse. I have since stopped bleeding...
ok thanks for allowing me to vent I feel better they gave me a Canasa<<< spelling suppository made a world of difference....
Im probably going to seem desperate, spazzed, crazy you name till at least I understand this disease. Ok before I was diagnosed yes I was severly anemic but I was not see blood in the toilet like I...
ahh ok I guess I figured since I had a stricture I should be careful what I swallow but its funny before Monday before I knew I had a stricture I didnt think about what I was eating. Thanks so much...
Well he did and now Im in panic mode but I have to remind myself I am in control of this well see how the meds work Im in no pain and the bleeding has slowed down so my mood has changed a little for...
Ok this part scares me Dr says its not a walk in the park by any means as a matter of fact he said something that totaly freaked me out. Ok I do not have colon cancer and my polyps are negtive but I...
I had the X ray done this morning and it was only painful when the dialated that bollon in my rectum I have had Chrones for a while undiagnosed so I have scar tissue and anal fissure they used the...
OMG it is lower and they havnt given me any prep I think because I had my colonoscopy just less then 2 days ago but am still bleeding a little bit. I dont understand they keep saying we want your...
ok so thats not the stuff to put up your but I read 2 different things one for upper GI and one for lower GI their trying to get pic of the other side of my colon where the colonoscopy didnt reach...
Had the Colon surgeon visit me last night because during my colonoscopy there was a stricture and they couldnt get the camera past it and they want to see the other side. I know at some point down...
I had it yesterday at 12:00 Im on a clear liquid diet and a TPN bag of nutrition I started Asacol last night and today I also started 60mg of prednisone. I had some polyps that I thought he removed,...
Ok thanks for clearing that up I was a little freaked out by that. Im already anemic I dont need any help with that Do any of you know if taking Asacol can turn your pee and poo orange?...
I do like my GI doc hes great and very detailed. This morning he went over some of the medications with me with the possible side effect short and long term then he had the nurse print me out...
I kind of knew of the possibilty thats why I was here before I was diagnosed. When my nurse comes back in ill ask about the Vitiman D I know my B 12 levels are fine. Is it normal to be on several...
Thanks for all your responses I got my official Chrones Diagnoses this morning....
At first I was told it was UC by his partner but after reviewing my colonoscopy results he says its definatly Chrones. I do have a narrowing of Scar tissue that he is going to set me up with a...