Thanks so much for your advice guys!...
Hey there! I know theres always talk about D or C, but man oh man lately my C has just gotten out of control. I haven't gone in two weeks and I think the last time I did go I would barely count it!...
oh no! good luck on your surgery! hope all goes well....
Hey everyone! I haven't been on this site for ages because well.. i've been feeling so great! Except for probably the last few weeks. I've been getting this burning/stabbing pain in my upper right...
Humira has worked fantastically for me! It was a little over a year ago when I first started using it. Back then I was scared all the time to leave the house, to eat anywhere but my house because the...
Wow that sounds exactly like me! I take azathroprine and humira once a week. I've been quite for the last two weeks with a real bad cold- haven't gone to the doctor yet, although my mom keeps urging...
Yeah that is a good plan! I will try no caffeine but I too love chocolate haha! :)...
I've just heard that its not normal to have bad pain but idk i think it's more my crohns pain combined with these stupid cramps that is bugging me. Ocassionally I take Advil too just trying not to...
Yes that's what I thought! Thanks. I just have another quick question. Is it normal to have really bad period pain? Sometimes I feel fine but there are times when it's almost unbearable. I know...
Yes that's very true!...
Exactly!...
That's a good idea. I usually go to get blood work done once a month but I haven't done it in a couple of months, I will get on that though! :) my blood work usually doesn't show much but I will...
Yes I did ask about the skin rash! Thank you so much! That was really helpful.. I kinda noticed a hair loss as well that people have been commenting on.. I'm not supposed to have an appointment with...
I'm on humira and azathroprine.. Is azathroprine one that would lower platelets? Thank you both for your answers! :)...
I've noticed that when I get my period, my symptoms start getting really bad! My stomach hurts more than usual, and my joints kill too. This might be TMI but I've also noticed that I am have a...
Omg yes!!! Brain fog is so me!!! I thought it was just me so I haven't said anything about it, but it has been driving me insane! I have been forgetting everything and anything, and it feels like I'm...
I have noticed a patch of skin on my face, above and a little below my mouth that is always dry! I've been putting on moisturizer all the time and it still stays dry and sore.. My crohns has been...
Aw thank you so much Erica! That makes me feel a whole lot more comfortable with the idea of college! It's good to hear other stories about different experiences, especially ones that are successful!...
I checked out that stream, doesn't sound too promising for me.. :$ I hope she is doing a lot better! I was thinking of getting a single room if I could (if I go away!) And I will definitely check out...
Hi guys! I am going off to university next year, and right now I don't know if I'm going away for school or staying home. What was your experiences with crohns and university? I've been feeling good...
I've been on humira since march, and I've seen huge improvements! I have achieved remission! :) there are a few times every couple of weeks that ill experience a bad day, but way better than before....
Hey! I've been on humira since march and I've seen huge improvements! There's the occasional side effects but I don't know whether it's from humira or the other medication I am on. I have noticed a...
My crohns has been doing pretty well lately! I have developed a pretty bad rash on my right lower leg. I don't know what it is it what it's from. I dont know if it's related to crohns at all even,...
Hey! Sorry to hear about your hair! Mine has been falling out a lot lately, like I recently went to my hair dresser and she told me it was like I had a new head of hair! I used to have really thick...
You clean out your room and find many empty pill bottles :p...
I have had that!! I stopped having that after awhile while I was taking restoralax and then I stopped taking it and it just went back to regular bowel movements. Now I am experiencing the same thing,...
I've been on humira since march, and I do get blood tests every month, or every time I see my GI which seems to work out that I get blood taken every month. I get my CBC count done and I'm not sure...
Thank you very much! I do have ensures occasionally, just probably not as often as I should. I will definitely look into that! :)...
I've been wondering if anyone knows if you are having troubles keeping things in your GI tract for long (ie your going to the bathroom right after you eat!) if drinking protien shakes would allow you...
Hey jade! I can relate to what your going through! It must be very tough and annoying to get laughed at for complaining about all of your symtoms. My doctor kept telling me I was causing my own pain...
Honestly it didn't work for me while it was just azathroprine, i waited for a couple of months but i was quite uncomfortable. However now I am on humira and azathroprine and I am feeling much better....
I was always a little worried to try drinking after being diagnosed, but I have found that it doesn't bother me too much. I mean I do experience a bit of pain and burning, but I think anyone who...
I have been on humira since march break of this year. Before going onto humira I was having an awful time. Lots of pain and the really annoying urgency. When i started taking humira I found a little...
Thank you! That's really good to know! I will make sure to be cautious in the sun!...
Hm, yeah that makes me curious!...
Hey! I was out in the sun today for only about two hours and it wasn't even that sunny, well I went for a shower later in the evening and noticed I had a really bad sun burn! And I never burn! I was...
Thank you both! I have, I can get in on Thursday. You never know what "normal" is with this disease!...
Hi everyone! I've started humira at march break and for a little while I was starting to feel better! But for the last week it's been getting worse. I've been feeling quite ill for the last couple of...
I'm a competitive swimmer, and I was just diagnosed in November. Before this year I was working out 8 times a week for 2 hours at a time, that means twice a day. Since I've gotten sick unfortunately...
Hm okay thanks!...
Hey! I was just curious about the people who experienced C, how long does it last before you have a BM ? I have noticed a pattern where I am constipated for about a week or sometimes two and then...
I started humira just a few weeks ago as well, I feel like I may be getting better but completely feel you when you say the tiredness! I'm exhausted ALL the time! I don't do anything anymore as I am...
I found that I got really bad headaches when tapering off Entocort and I also felt slightly dizzy at times as well. I'm also very tired but I'm not sure if that is from the Entocort or not as I am...
I've just started humira.. Well I've done the first four injections then the next two and today was my first single injection. I got the results from a blood test that I did last Thursday and...
Yeah sorry* 3mg pills :P...
I'm tapering off it now too, my doctor has me decreasing by one pill every three days as tolerated. I was at four pills, now down to 2 today. Btw I hate tapering :P...
Yeah it seems that I am. I am currently on Entocort but slowly getting off of it shortly, on azathroprine and just started humira last Tuesday. And okay I'll mention that when I talk to him soon....
So a few weeks ago I was getting really bad stomach spasms like gas pains it delta like, but super bad to the point where I couldn't stand up straight and had to basically stop what I was doing. This...
I'm not really the praying type, but I defently will be thinking of ou and your family! I can't imagine what you are going through and I truly hope for the best! <3...
Hey! Your just like me! Aha. I went to my doctor on Thursday after calling him because I was feeling worse being on Entocort and azathroprine. I go back to him on Thursday to start humira. I'm a...