Agree with @beave, this sounds like a very logical route right now. Good luck, and keep us posted on your surgery and recovery....
Sorry to hear Randy, Keep us posted. DId you get a cause of the fever? Is it viral perhaps, covid? Hope you're feeling better soon....
You're faced with a very difficult decision to say the least. There certainly are some IBDer's that have no regrets opting for the surgery route. I've posted here previously about a friend that had...
Just wanted to wish you luck going forward. Keep us posted indeed. Not sure what other biologics you've tried(?). Of the newest ones, Rinvoq seems to be getting good reviews. Ironically, Entyvio...
My Daughter was on Remicade for 15+ years. Went to Stelara, but didn't have anti-bodies to Remicade, she's one of the few that could actually go back to Remicade is necessary....
There was a previous view that combination therapy, (anti-TNF + Aza), was successful with preventing anti-bodies. Not sure if this is still an accepted view or not. Agree in the harm of drugs like...
Minnie, You're going though so much. Hard to believe your Crohn's is under control, and Rinvoq is working, but you're still having such unbearable issues. Wish I had some advice/answers for you. Only...
Just wanted to add. My Daughters GI is going to stay the course with Stelara, but going to every 4 weeks as opposed to 8 weeks. She is having some symptoms, mainly a pretty severe constipation issue....
My first guess would be dietary. Would go with a trial and error approach, but first might suspect lactose intolerance. Very common, and usually occurs in early adulthood. Gluten would be something...
Hey Clo, Thanks for your post. My Daughter is really good at tracking her symptoms, and usually doesn't ignore anything that doesn't seem right. We'll hopefully keep things quiet until she gets her...
Susie, I was just floored reading about your Daughter. It seems from what I've read that there's plenty of hope regarding successful treatment. Not sure how long you've known, or where things are at,...
Hey Clo, First off, thanks so much for your ongoing support. As I stated to @scifigal, it would seem that Humira would be a good choice. There is an update though. She now has a new GI nurse. It's...
@scifigal, This was my thinking as well. Rinvoq is getting good reviews, but minimal. With as much success as she had with Remicade, it would seem that Humira would be the more logical choice....
My Daughter is considering Rinvoq currently. Glad to hear it's working well for you. As for your cholesterol, the only thing you can do is modify your diet and exercise approach. Try to decrease your...
Hey Paul, Thanks for your reply. She was on Remicade for about 14 years. Didn't discontinue due to antibodies. She always felt extremely good Crohn's wise on Remicade, but unwell physically in many...
For those that have followed, I'll try to spare you too much history. Briefly, my Daughter recently had some updated diagnostics. Two MRI's and a lower scope. She's been on Stelara for about a year...
Thank goodness someone brought things back to life. Longest I've seen the forum go without any activity. Hope everyone is well....
Joanna, Yours is certainly one of the more moving post that I've read in a while. There are many people in the world that opt for not having children. I does seem worse when the decision is made for...
Thanks Paul, That's really good info. and could be very useful. I'll inform my Daughter about this, and let her check it out with her GI....
LOL!!! Thanks so much Susie, Hope I wasn't too hard on you, but of course I'm sure you know I was joking about it all. It seemed like as soon as you asked, everything went sideways. She seems to be...
Clo, Thank-you so much for the kind words. If you read my previous post to Susie, you'll see we've had a rough week. I didn't know what happened to your Son. A parents worst nightmare. The...
Susie, I'm sure this is going to sound very confusing, but I've been cursing your name. Since your post inquiring about my Daughter, things have gone a bit downhill, and I choose to blame you for...
Hi Susie, Thanks so much for asking. I've been active on the forum, but you're right, I haven't given much of an update on my Daughter. Not too much to tell actually. Her GI is having her stay the...
Minnie, I agree with @straydog. Food is definitely individual. Avocados are high in fiber, so you might introduce them starting with small amounts and work up from there. That bodes well for most...
The first time she tried a veg based it was by Lorna Vanderhaeghe. The second time around was from the Doctor, and might very well have been ferrous bysglycinate that you mention....
As any IBDer know all too well, iron supplement, (oral), will almost certainly cause stomach upset and constipation. My Daughter went through several years of trial and error, finally settling on a...
Has your Dr. suggested statins at this point? Most of us don't want to just add medications, but statins are pretty well tolerated....
Minnie, I would really push for the tube so you don't have to go through the agony of trying to ingest the mannitol. It sound to me like you have a blockage somewhere. I'm even more surprised that...
#WelcometoCanada...
Randy, 24 years of this is incredible. I'm so glad that you're making it with this treatment. This may be a stupid question, but do you ever eat even the smallest amounts or get overwhelming cravings...
Clo, Have to agree with you here. The commercials certainly make this disease look like a walk in the park. I know that the intent is to market the medication and to show that it can bring about...
I really don't have any insight, and don't want to upset/offend either, but I would contend that there's been a concerted effort across the board to make commercials, advertising, media etc. more...
You've done extremely well considering you were essentially unmedicated. As mentioned, Pentasa is totally ineffective as an IBD treatment. Since you don't seem to be having major issues outside of...
A low residue diet is mainly a low fibre diet. Fruits should be soft, veggies cooked and no whole grains. As for milk/dairy, it isn't technically an avoidance food, and has no fibre, many IBDer's...
Minnie, So sorry that you're feeling so exhausted and I'm sure at your wit's end. This disease can be incredibly difficult to manage, and at times can take total control of one's life. I think you...
Minnie, They are plant sterols. A plant based supplement. They may in fact work, I have no experience with them, but some of the evidence is anecdotal. I would ask you Dr. before trying them....
Did he give you any numbers for your total cholesterol Minnie? Fortunately, if you do require statins, they are very well received. Many take them without side effects, and for many it's long term or...
Could go low residue for a week and see how you feel. Also, stay off of the typical avoidance foods, steamed/soft veggies. BRAT diet type choices and see if it help. Good luck, and hope it settles...
Minnie, Seems that you share of problems are persisting. So sorry for this. I'm certainly no expert in what you're experiencing. It does seem to me that you need to see someone to discuss you're...
Minnie, So sorry for your recent struggles. Hopefully, It's viral related and will pass in time. Good idea to follow up with your GI non the less....
I really have no experience with any kind of abnormal pancreatic function. Many IBDer's that are prescribed 6MP of Imuran often develop pancreatitis, but it will resolve after cessation of the drug....
Great news Labs', Always good to hear good news indeed. Wishing you continued success....
Ironically, I was thinking about her recently as well. She hasn't posted in quite some time now....
Great news there, congrats on that, wishing you well....
Wondering about an obstruction. Esp. since you feeling nausea and like throwing up after eating. The cycle of rapid healing from Remicade, can unfortunately cause scarring that can result in...
Starting with your back pain, it certainly sounds like sciatic nerve issues, esp. since you're experiencing pain travelling down your leg. Not sure why they would prescribe Pred. for that. There are...
I think that since it's already been a month, it might be a good idea to make an appt. If you haven't any diagnostics done in the last 6 years, you are certainly due for some updating. You could get...
Good new Paul, Hopefully the peace of mind will be of benefit....
Minnie, Good luck!!! Really hoping Rinvoq works well for you. Keep us posted....
Minnie, I does seem to be borderline long enough for Stelara. I would be nice to give a few more months, but considering your new fistula, and markers. I've heard really nothing about Rinvoq. Really...