Simplified, have you looked into a mast cell stabilizer like ketotfen (don't know where you're located as I don't think this is available in the US) or gastrocom? There's a small study out of Sick...
That's awesome! Congrats....
Oh right, the leaky gut scenario. I thought there might have been a more direct causal explanation?...
I don't know but I'm curious as to how Dr Hoffman thinks food sensitivity can cause fungal infections exactly? Which med did he rx for this?...
Calprotectin stool test. Some use lactoferrin (also stool)...
electro, we brought this to the attention of our Gi, also the head of a "top" ped IBD clinic and a "top" researcher/clinician. She hadn't heard of it either as of last year. For some reason, if it's...
Ima, we're learning a LOT from that test though I must admit there's good reason for not having this info (psychological, it's terrifying). But I understand so much more about my daughter's symptoms,...
It can be problematic to supplement with niacin if you have mthfr/methylation issues so be careful with that and do your research. I'm by far an expert on that stuff but I know that's the case, would...
I predict remission for you Somedude. Fingers crossed....
Haha, that's because it's for my girl. If it were me I'd have ripped the colon out long ago....
we were supposed to go to the Caribbean to do this last summer but my daughter was to sick to travel (it was the pretrial). They're having great results so far though the numbers are small. These...
Do you take iron supplements or are you eating a lot of iron rich foods? If so, stop/cut back for a week and see what happens. This happens to my daughter with iron....
Hope you're recovery continues. Some swear by cipro for their IBD, I know a few who have used it to get into a solid remission. It is a scary drug though, I guess you just know who will benefit and...
MilkycocoxD - you're in Alberta which I believe is THE hotspot internationally for IBD....
Well that's different from SAD, isn't it? Yeah, fermented food etc have been lost likely to our detriment. And the environment is full of toxins, through in the hygiene hypothesis and a ton of...
Nope my daughter never ate SAD, all organic, all home made including baby food. It's way more complicated than that. Love it when people assume you've caused your/your child's disease....
Awesome! I've read that cymbalta is being used off label for IBD with some success. Do you think that might have helped at all?...
CGK - thanks. that seems to be what the bit of reading i've done indicates. anyone got any good links re: the safety of this (being lazy, will google it later otherwise...)...
Thanks Indycat - do you know if it lists pml as a risk - is it not able to cross the blood brain barrier? Is it safer?...
Is this not a new form of tsybiri and does it carry the pml risk? Why is this good news (sorry haven't been following this)? Anyone know?...
And, maybe it's more common in Tuscany (but I don't think so) but gluten really is the mainstay of the Italian diet. I don't find it's well catered for at all. Like here, you can find alternatives...
Celiac disease is huge in Italy and IBD is on the rise as well - when my daughter first had symptoms most Drs assumed it was celiac because her dad is Italian. I assume that was for the tourists...
panca positive/ anca negative is actually UC or CC (crohn's colitis)....
Oh my goodness! I hope they've figured out what caused this and have you on the mend asap! You must have been terrified. Are any family/friends with you?...
My brother's had proctitis for 12 years and it causes him minor issues. He does not take meds (only during flares and then it's oral asacol) and has never done rectal meds. He's lucky. My daughter...
A couple of my friends were evacuated from their water front condos. It's crazy. Calgary of all places. Of course, Harper wants to do all he can except for the big elephant in the room with it be...
There's a woman with a jpouch on jpouch.org who takes it for arthritis and says it's really helped with pouchitis. You might ask there? Good luck, I'm glad there's more coming down the pipe. As for...
Well I tried to go above our GIs head last year and scheduled surgery for my daughter who has steroid dependant pancolitis. Her GI did not feel it was time. It didn't end up happening and though it's...
Actually the hospitals I know of which were trialing FT for UC were doing it on the grounds that it was an experimental procedure without having a protocol for it. Hospitals, at least top teaching...
Yes it's common. They generally give a ppi with pred. though not sure with uceris....
Good luck with it herbgarden....
http://www.npr.org/blogs/health/2013/06/18/193069110/fda-backs-off-on-regulation-of-fecal-transplants Good news for those of us who like to play with poop....
The thing that gets me is the way people who've made these connections long ago were labelled quacks making it very easy not to do much research on it. I'm not saying treating the cut is going to...
No one saw that coming of course.....
Thing is this connection had been made over twenty years ago. I would have been nice if they'd put a little more research into what the connections might be instead of dismissing it outright until...
You sound like a pro already. I don't think you need our advice. But it's easy to get stuck in a rut for sure. Eggs, avocados, stock and yogurt are your best friends I think. Great that you're whole...
Yeah, unfortunately I'm learning the hard way that she'll make a fine old teacher (no offense to the teachers out there who can actually spell, do basic math and don't have serious psychological...
Appears so at least in some cases. I guess a public apology to Elaine Gottschal is in the works right now? http://m.theatlantic.com/health/archive/2013/06/in-autism-the-importance-of-the-gut/276648/...
Cheap and healthy and easy to make foods (depending on your tolerances and you've said you have no issues so...) are avocados (alone with lemon and salt, with tomatoes an chicken/corriander for...
NCOT, I agree with you. I've spend a lot of time on alternative/diet boards and I do believe that a good amount of the "healthy" followers of some of these diets (raw vegan, paleo) have orthorexia or...
Ugh! So sorry to hear that! I hope it's viral or infectious and NOT IBD or anything equally difficult to treat. If you're interested, you can go on Qu's website and contact them. I believe they're...
pb4 why don't you join the trial?...
My daughter was supposed to be in the the pretrial for this treatment which was taking place in the Caribbean last year. Unfortunately I didn't feel comfortable traveling there with her because of...
Three months daily of fts with no results. fecaltransplantforuc - your website says you improved after starting ssris. There's a well documented benefit to some IBDers from anti depressants. Since...
No, I'm not talking about promethius, but about something like 23andme. As you probably know, my daughter's had a UC diagnosis for four years and we've been trying to avoid surgery because it's more...
I asked this on the UC board but thought I'd post here as well. Has anyone's dr had them have genetic testing to determine UC vs CD beyond the promethius test? There are genes which strongly...
I don't know how prevalent that one in particular is in the general population but there are a few (including NOD2) which are correlated strongly with CD and not UC. There's a lot of research backing...
Has anyone's dr had them have genetic testing to determine UC vs CD beyond the promethius test? There are genes which strongly correlate with CD ie. NOD2 so why aren't we tested for them to determine...