Most GI's in the US, at least the ones I have seen and read think Azathioprine works better when taken along with a biologics, I took it for 10 years along with Remicade, Humira and Cimzia. I had to...
I have done Remicade, Humira and Cimzia and with them all I had fatigue and aches for a day or two after, as far pain around the belly button I don't remember so much, did you do the loading dose of...
I was on Pred for 7 years, 5 of them just on 5mg, as soon as I would try and got even 1g lower I would get really ill. Finally last year I did the 1mg ever six weeks and finally got off of it. I have...
Ask the vet but we always gave our dogs boiled chicken and white rice when they would get sick and have loose stools. My guess with a dog would be steroids they would give them, like everyone else...
I have had two resections and after each one the urgency has gotten worse. I take Questran Powder and Immodium daily and still have accidents, to the point I only have a window of a few hours that I...
You can't be working when you apply for SSDI. I am on year 4, one filing has gone to the Federal level and then my lawyer had me start a new case and just got turned down for that, most people do get...
I had my first surgery in 2002 and second one in 2012 for scarring so yeah 10 years was right on the mark. deb...
I started two weeks ago and it is making me feel worse, I think I am just going to stop, I remember when it first came out and I tried it, remember it not working then either. Deb...
Having had a Emergency Resection due to a perforated bowel in 2002, very long recovery and a elective bowel resection due to scar tissue that no bio or med will fix in 2012 with a very short recovery...
The Biologics may help but it depends if the stricture is inflammation or scar tissues. My first resection was an emergency resection due to a perforated bowel, thus the diagnose of Crohns. My second...
I am 56, have had CD since 28, so half my life. Have had two resections and have gone thru Remicade, Humira and currently Cimzia. Been on Imuran for 13 years, just got off Prednisone after 5 years...
How has it worked out for you? I have gone thru Remicade, Humira and currently on Cimzia, in metting with my new GI he is going to do a colonoscopy in Feb and then we will decide which med to use...
I had my first emergency resection in Feb 2002, had a perforated bowel, big mess, almost killed me. I then had my second elective resection in Jan 2012, so 10 years in between and all those years I...
Same here with Walgreens, went online to refill and it was wiped off my account. I don't think my insurance or Dr. office is going to want me to go in every month, so stupid, I am on a pain contract...
I live in a small town in Oregon and the Walgreens and Walmart are both out, I finally found some at Safeway. Good Luck....
I have had Crohns for 27 years and I have never lost weight from it except during the time I had a surgeries. I usually do not lose my appetite even knowing something I might eat will make me sick....
I also recommend getting a Lawyer but here in Oregon they will only take your case after you have filed and been denied the first time. They don't want to waste their time doing the initial paperwork...
I filed in December 2012, had two rejections and am now waiting for a hearing. I got sent to a shrink since I had listed Depression on my application. I also have Arthritis and Fibromyalgia but they...
It is not true that if you have never had surgery you do not have scar tissue. Crohns causes inflammation in the lining of the intestine which in turns causes scar tissue so you very well could be...
Scar Tissue is usually from inflammation or surgeries. My second bowel resection was for scar tissues that built up and was causing obstructions. My surgery took four hours cause I had two different...
I almost died from a perforation that leaked for three days. That is how I found out I had Crohns, I do not know about gas perforations but I do know it was the worst pain in my life, even more so...
Well it is April 2014, I went to the Psycho test and it was probably 30 minutes of testing, questioning mostly on memory and stuff. I got denied again so now waiting on a hearing. I will turn 55 in...
Thanks Ides, I take Wellbutrin and Xanax and have some Depression and Anxiety but my main filing was for Crohns, After talking to my lawyer he says it is pretty standard. My husband thinks I am nuts...
I am being sent for a Psychodiagnostic for SSDI, not sure what that has to due with Crohns, anyone ever been to one of these and if so what do they do? :rolleyes:...
I live down by Eugene, OR and have a daughter that lives in Boise, I would not move there. I would move to Bend though, It does get cold but hardly ever rains like over here. Boise is super hot in...
I have been on Imuran for the last 12 years, all with Remicade, Humira and now Cimzia. This is probably the best I have ever felt except for joint pain now that it is getting cold. Also had my second...
I filed last December for SSDI. I am 54 and was turned down the first time, got a lawyer, here in Oregon they will only take it if you have been turned down the first time. They filed the appeal in...
Well after five months finally got my denial letter. Guess it is time to go Lawyer up. They said I could still perform my job as a Project Coordinator in this economy, uh ok, that is when I had been...
I have been on Imuran for 10 years but still take prednisone on and off, right now just 5 mg, cannot seem to get below that little amount. But for the long run it really is not good....
I think when you first start it they go by your weight but then you should have blood work done every 3 months to see your levels, I have been on it for 10 years and I weight 220 and can only take 50...
I have been on Cimzia for a couple years and never had problems with blood pressure, maybe you should just monitor it more as everyone can get different side effects. Good Luck! Deb...
Yes, that sounds pretty much like a blockage. When I have totally blocked it is non stop vomiting, pain comes in waves. The first time did they do a CT to check it out? You seem to be handling it...
I use a 25G x 1", it holds 1ml. It is pretty big but it needs to go into the muscle, your pharmacist should be able to advise you....
Good grief, scary that Docs just are not going with the correct amount per the pharmacy. I have done the Remicade, Humira and now Cimzia which may not last much longer either. My GI was mentioning...
It seems that with Humira and Cimzia most GI's want to combine it with Imuran. I started taking Imuran 10 years ago with Remicade then Humira and now Cimzia. When I had surgery last year I continued...
Wow, that seems a lot, I only take it once a month, Is insurance going to pay for weekly? I would be concerned with that much myself....
I did that with some cookies on Sunday that I bought for my grandaughters that were coming over, I think I ate 3/4 of the box, got very sick. I also know better! Deb...
Prayers have been said, so sorry....
I had mine dilated when I had a colonoscopy. Not sure how he did it but I have always had problems in my rectum also. He said if it was still bothering me he could do it again but it has been ok...
Tacom: Yes repeat surgeries are a lot easier if you are not obstructing and it is planned, my second one took quite awhile due to all the scar tissue, plus I had a full hysterectomy at the same time...
Hope things get better for you quick, I do not have a bag so do not have any advice, just wish you well...
In 2002 one night I started throwing up non stop, went to ER and they found a bowel obstruction, sent me to our big Hospital and they diagnosed Crohns, Had a NG tube for 4 days and cleared it. Well I...
I am pretty much in the same boat, I adopted my husbands Grandaughter when she was 9 mos old, she just turned 9 years old, she is the only kid in the house as all our others are grown. It can be very...
Interesting Ides, I do take a B12 injection monthly as it runs on the low side due to resections. I will have to check about the folate level, thanks....
Yep, made him do it this morning and put in the mail, hopefully it won't take too much longer. I had talked to a couple lawyers before I filed and they both thought mine would go through but they...
I am back on the Imuran since last month due to having problems, had a colonoscopy and my the disease is back at surgery site, but like I said I am having some weird stuff happen, not sure if it is...
I drink Shakeology and have not had any problems so far....
Yes, those are the forms. I am in Oregon and all three of my docs, Primary, Gastro and Rheumy agreed I should file. The social worker at the hospital thought I would not have any problems due to my...
I took it for 10 years, no problems, I had my second resection a year ago and stopped it and just kept taking Cimzia. Well after about 6 months started having problems again so back on the Imuran and...
I filed electronically Dec 18, a week or so later got a packet in the mail to fill out, sent that in, ever since then when I go online to check the status it says In Medical Revue. Yesterday got a...