themrsrockstar, I will say, salads are something I haven't been able to eat, even when following SCD. Everyone is different though. The foods I can't eat are: apples, pears, popcorn, lettuce (I can...
I agree with colitis32 on most of that list. I wanted to add that I am currently doing the Slow Carb Diet (written about in the 4 hour body). I mix in a little paleo to help supplement because there...
I went through that 2 years ago, where I was in so much pain and NOTHING helped! NSAIDS (ib profen, advil etc.) aren't recommended because they can cause more tummy issues. I would double over in...
I remember having anxiety once when I was on prednisone. My heart would start beating fast for no reason and I once went into a full blown panic attack! It was horrible! My dr gave me a prescription...
I totally understand!!!! I think we've all been there!!!! :) I recently started doing the Slow Carb Diet (book: 4 Hour Body by Timothy Ferris), but there is a lot of legumes/beans so I rely to the...
Thanks ya'll!! I am just so frustrated, I actually told my husband, isn't having diarrhea all day enough of a burden, must I also have teeth decay as well?! haha I am thinking the pain is from the...
Get a bite appliance made for night time grinding. It will keep your teeth from touching in the back and help relax the jaw muscle. If it is really bad, talk to your dentist about using a...
I just had to have a root canal (my 1st ever) done the week after Easter. I went today to get my teeth cleaned, I have 7 cavities AND they say that my tooth next to the one I JUST had a root canal on...
Thank you!!! Yes, when the dr did the examination, she pushed on something and I felt like I was going to poop, so I tightened everything up. Apparently most women have the opposite problem so she...
My symptoms presented a little differently : diarrhea (I've never had constipation)unexplained rashes near elbows/arms/knees - sometimes more hive-like, extreme nausea all day, but especially first...
Hi! Kind of a personal question, but at this point with Crohn's, I have no shame! I noticed after being diagnosed with Crohn's 7 years ago, that intercourse with my husband became painful. I told my...
I also experience pain during intercourse. My ob/gyn couldn't necessarily find anything "wrong", but it started after being diagnosed with Crohn's. She said it could be due to inflammation, but she...
I'm glad I found this thread, but now that is has been a while for the women on here who have had babies, how did everything turn out? I am currently on 6mp and going to the dr today to talk about my...
I was worried I wouldn't be "cleaned out" in time for my last colonoscopy and I asked the nurse about it and she reassured me it was fine. That they actually have a "vacuum" like thing that helps to...
I am getting ready to try and conceive, but am currently on 6mp. Did you get off of all meds when TTC because your dr told you to? I have an appointment with my Dr. for 3/3, but am trying to do all...
I wanted to give my perspective on 6mp, since I've been on it for 2 years now. I was terrified of 6mp after reading all of the forums and side effects. I have successfully be on it without any issues...
I've only had one incident so far that I was speeding SO fast to get home to poop, I'm surprised I didn't get pulled over. Do you think they'd let me out of a ticket if I pooped my own pants while...
I actually had those symptoms happen to me last summer. For absolutely no reason at all, my normal "flat belly" ballooned out like I was 7 months pregnant and it would be so incredibly painful! I...
Two pretzels are walking down the street... when one was "assaulted" (a salted) hahaha :)...
My husband and I were dating before I had Crohn's Disease. It was hard at first, but I've been so lucky that he's extremely supportive (with the exception that it took about 5 years to explain to him...
I agree with Kazbern - get a copy of your records so you know what is going on. If there is no inflammation, obstruction or strictures at the time of your pain, then the dr. should follow up with a...
Hi Ladies, I have currently been on 6mp for about 1.5 years now and I love that it's a simple pill and it has finally started working for me! I've gained a healthy 20lbs that I lost during a bad...
I used to be on Ortho Tri Cylcen and then OTC lo and both were horrible! I had my period for over a week and I'd spend half of it in the bathroom with horrible upset tummy and vomiting. I have since...
Yes, I called my gi and he ordered more blood tests to check levels....
I have taking 6 mp for 10 months (50mg daily). Over the past month, I've started to get itchy all over without an indication of rash/hives. I haven't changed any lotions etc, and I'm a Skincare...
I wish I could post a before and after photo on here to show you just how badly my stomach bloats out! I have no idea what causes it and what to do when it happens. This just started happening about...
I've been on 6mp for almost 10 months now (and was on it previously for almost 2 yrs) and I've never had hair loss *knock on wood* it has been working for me when other drugs wouldn't, so I'm so...
My GI dr mentioned last time that I should try a probiotic (he said it could go either way, make the diarrhea worse or make it better), but he didn't give me any samples. I am taking a probiotic by...
Thank you! I have been taking photos (wish I could show y'all!) and will be showing my dr. the puffy belly. I do have a stricture in my terminal ileum, but I am not sure this is what it is b/c I am...
Over the past month or so, on and off, I have been having my belly gradually get bigger and bigger during the day. I normally have a 26" waist and when it gets big I have measured around my belly...
I struggle with eating clean whole foods without getting bored with my diet. I typically eat: breakfast: eggs/egg whites, turkey bacon,sometimes I eat blueberries or strawberries, black coffee with a...
I have read some older posts about eye issues with Crohn's, but am not sure whats going on. I have had Crohn's since 2007 and have never had any eye issues, until this morning. I woke up in the night...
I have no libido anymore. :( I'd say the last 3 years I have had zero libido! I thought it was my birth control at first, but now I'm starting to wonder if it's just part of the disease. I find sex...
I was on Asacol when I was first diagnosed 5 years ago and I never saw a difference. My dr has since put me on 6mp, but I was also on Apriso last year which is similar to Lialda and/or Asacol. Ask...
I finally found a diet that seems to be working for me! I found the SCD diet to be too strict for me too, I know I could never follow it completely because I love food way too much! I cut out wheat/...
I have a question about Remicade too... - For those that work out, are you able to workout hard after getting the infusions or do you feel fatigued so much for 2 days after that you can't work out,...
Sweetbabyray - I don't have any children ...yet, but the PA at my GI dr's office has Crohn's and is currently pregnant. I asked her about it just in case for the future and she said she was on Cimzia...
My GI dr prescribed Levbid for me (hyoscyamine -generic) to take at night. I tend to get more pain at night, but also bloating too. I have read on old forums that many have taken this drug. Do you...
hey Debs! I'm on 6mp (since December) and I never get headaches. I've been on it twice now and both times the first week I get seriously sick, like having the flu. I vomit a lot and feel tired/weak,...
Kt's Momma - I wanted to respond b/c I have been on both Asacol and on 6mp and can give you a full report on both! I was put on Asacol when first diagnosed with Crohn's in 2007. First of all, it was...
dorri - Thank you for writing this thread! I have been struggling with the Crohn's "Diets" as well! I too have read a wheat free book, "Wheat Belly". I get so frustrated because one minute something...
Hi everyone! What supplements, vitamins, protein shakes do you take/drink and where do you buy them? My pharmacist also recommended I try aloe vera (is it a drink or a pill?). Currently I take: 2000...
Chewman- what are you eating for dinner? I might try some smartones for lunch, they sound yummy! I can't handle granola bars unfortunately, but eggs/egg whites and turkey bacon seem to do well on my...
I took 6mp for a year, it kicked my Crohns into a remission like state (i never got rid of diarrhea, but pain/vomiting went away). I went off of it for almost 2 years without any issues. But about 4...
This has been happening to me for 3 weeks now! My stomach bloats out and it gets hard in certain areas, when I press on it, it makes strange noises! I saw my dr on Monday and he put me on prednisone...
I'm on 6mp and my dr said I cannot get pregnant on it. Once I hopefully start feeling better, if we want to try, my dr suggested starting on Cimzia. The nurse practitioner in my dr's office has...
Hi! I am not sure about the correlation, BUT I can tell you that I was on 6mp a few years ago and when my dr bumped the dosage to 75mg I started having severe panic attacks for no reason. It got so...
Hi! Does anyone else have a stricture in their terminal ileum? I saw my dr today and he is hopeful that 50mg of 6mp will work for me (I'm starting on month 3 of taking it), as well as Apriso, and I'm...
Thanks PathogenKiller! I have been thinking of trying the Paleo way as well. My issue is ... sugar. I LOVE sugar. I can't seem to give it up and the fact that I know I can't have it makes it even...
Hi! I am on 6mp (have been on it 60 days, but was on it previously for about a year). I *knock on wood* have had no major side effects from it. I am also a cosmetologist and can tell you that there...