I had a really bad reaction to the Humira and we decided to wait to try something else. Now that stellara is an option my Dr wants to try that....
Thanks scifigal, I didn't ask the surgeon about the plug, I hadn't even heard of them doing anything besides a seton for them when I was seeing him. I guess I'll have another go around with my gi on...
Bania, thanks I assume my insurance would not want to cover it either, my deductible and bout of pocket are so high I think I would foot most of it anyway but still. Scifigal, I saw a surgeon for bit...
I have atleast one, i think now possibly two RV fistulas, one of them is going on two years of constant abcess and drain. I am in horribke pain most of the time. I keep reading and hearing about...
Years ago I was on a round of prednisone I was feeling great CD wise but going insane and taking my family with me only sleeping 2hrs a night. My husband bought me some chamomile plus tea that had...
Humira can cause heart issues. I did the 2 loading doses in June and developed a really scary arrhythmia and some eye issues. I googled the side effects, asked around and found some people that...
Happy to share, hopefully it will work out well for the both of you, all in the name of health and science of course;-)...
From what I read the peas should be sprouted in the dark to have more DAO, and used at the two leaf stage by placing them in a blender with water and making a smoothie with them. I have sprouted...
Thank you, it is worth a shot at least. I am not fond of the idea of where it comes from either but I am less fond of the idea of some of the other available options. Which one do you use? I ordered...
Stumbled across something the other day that sent me on a research tangent. I am just wondering if anyone else has looked into the research or information on CD and the involvement of Mast cells,...
2 yrs 9mo and counting...
Has anyone heard of this, or tried it? My Dr recommended I try this as an alternative to going back on the prednisone. I have been able to find little about it online as far as reviews. I found one...
Wow, first I would find a new GP, and a good GI now. second, are they giving anti-biotics along with the steroids? a good combo of high dose anti biotics (generally cipro or flagyl) along with a high...
My suggestion is to look into IGG allergy testing, It is only beginning to be recognized in small studies as a cause for CD symptoms. I had mine done a couple years ago and it has made a world of...
I am so freaked out right now I don't know what to do. My husband died in a car accident less than two weeks ago, Tuesday I finally called the company benefit center to find out when our health...
Entocort is supposed to be non systemic and is not supposed to cause the mood swings etc, however the first time I took it I had to stop bc the mood swings were soooo bad. It seriously would have...
Another consideration along with the die off is MSG intolerance. Gelatin and chicken or any bone broth contain MSG. While it is not the MSG additive that is added to so many packaged foods that is...
For me having an IGG food panel made all the difference in the world for my crohns, SCD did help me a bit before I had the test done but it wasn't 100% but it didn't eliminate all of my problems bc...
I have had a couple of infants in my child care with it in the past year, one his mom took him in to the dr and got nystatin for it. It took a week to clear. Another one mom was having issues getting...
I had very mild areas of eczema on my legs when I was a child, developed it on the inside of my arm by my elbow at 17, it started on my scalp around 25 as mild dandruff and then full blown oozy...
I am 37 and my cycle has always been irregular, I don't know if it is related to CD or not. I generally average about 10 cycles a year but so far this year I have already skipped two. In my mid 20's...
Pls read above note from me. ~~ Ides...
I wish I kept a list, but there are certain foods that many CD patients are intolerant to, not all of us are intolerant to all of them so it is sometimes hard to figure out. I know some are citric...
My apologies, abstracts are short summaries. Just trying to get the info out here since most of the information available from Dr's and internet resources still say the tests are unreliable or even...
I take as few meds as possible, Ginger does help a lot. I grate it into a cup of hot tea and drink it, or press small slices through a garlic press. you can chew on raw or dried slivers of it as...
Just more info for the IgG testing. This is a real connection for not only CD but for lots of different issues. It is being proven over and over again yet Dr's are still telling us there is no...
Is it looking very thin or are you just noticing a lot of hair falling out? My hair got thicker during my pregnancies and while taking prednisone for long periods, then shed brushfuls daily after the...
I find that sometimes when I am having frequent watery D and fatigue I am dehydrated. for some reason though my urine will still be clear and it can take a couple of days until I get that drawn...
I found that Calcium and vitamin D3 would help in the stool dept, but I am not really sure why they did. Also the yogurt always seemed to help, both the greek and the homemade SCD while I ate it but...
I don't know about tests other than ultra sound, or maybe hormone levels. I also know of several women who were not celiac but got pregnant after cutting out gluten, maybe coincidence maybe not but...
London lurker: those are just a couple I have found specifically, if you go to Pub Med and enter Candida albicans, Ulcerative Colitis, or Candida Albicans, Crohns disease you will find pages of...
Unfortunately, if we want real answers we have to look for ourselves, I find this one difficult to follow, but I get the gist of it I think: http://www.ncbi.nlm.nih.gov/pubmed/17919633 This one is...
My conclusion is: They study stuff but don't do anything with it unless it involves billions of $$$ in drug therapy or expensive testing. http://www.ncbi.nlm.nih.gov/pubmed/19471251 Am J...
That is a little hilarious that you say your Dr's say that about crohns and UC, My GI's still thinks food has nothing to do with it and don't have any faith in my test results, but the proof is in...
I don't use culturelle bc it is expensive and I think only has one strain of probiotic, swanson vitamins and puritans pride have several brands that are much cheaper, still guarantee potency, and...
Also, look back to a post I did last month "recent study on crohns" there is a link to an abstract article, I think I may have even posted a link to the actual study. Also to remember, someone had...
Unfortunately, the first study I came across I think was in 1988, and the suggestion was that enteral nutrition or a complete restriction of yeast could be warranted. However of the many tests on...
I am seriously interested in the supplements they recommended and the one thing that the Dr blames it on. And sometimes the assistants can be more helpful than the Dr's. My first stay in the hospital...
I started having issues with my heart racing in my early 20's, along with periods of extreme sleepiness/fatigue that seemingly came out of nowhere. I questioned several dr's about it and they said I...
I had been in my first horrible flare that lasted almost 8 mo before conceiving my last child. I started tracking my temp in Sept to get an idea of my ovulation schedule, I went on entocort and cipro...
I have never been told of any disease in my rectum, at times it would feel as those it were inflamed but usually only when all hell was breaking loose and I think everything was inflamed during those...
I was on prednisone for most of atleast the 2yrs prior to my surgery, starting at 40mg and then tapering off if I could. usually by the time I got down to 5-10 my symptoms started coming back and I...
If I remember correctly my GI said budesonide was more for disease located in the small intestine. The first time I took it I had mood swings so bad that I had to stop after about 2 weeks, I was...
I had switched to Lialda so I could take two pills a day instead of 8-12. Mesalamine had little or no value on me, I only took it to shut my Dr's up....
Mmmmm, love a good char on my steak, I love the cruchy fat, I let the grill flame up so it is nice and char-grilled on the outside and plenty pink in the middle. What about browning meat in a...
No, luckily they were able to reconnect everything during the original surgery. They weren't sure going in what was going to happen but I woke up in one piece with nothing extra. Even though I had an...
Also, for those of us who are sick all of the time the main culprits are most likelt things we eat all the time, yeast, wheat, favorite fruits or veggies etc. Edited to add: I do not follow a...
This is barely being recognized, I have only found one pilot study of only 8 people, But IgG food intolerances do cause crohns symptoms, maybe not in everyone, that has not been determined by any...
For my own curiosity I was just trying to get a picture of where people stand on diet as it possibly relates to CD symptoms. I notice some strongly believe that diet plays a major role, while others...
Hmmm, well, I will say it is a bit confusing, but yes I agree that foods play a huge role in the downward spiral of our state of health. I have never heard of MRP's but I am one of the believers that...