Hi my transit time is roughly 2 hrs I only have 2metres of small bowel left now been suffering with dehydration due to drinking so much fluid in this hot weather and emptying bag (a vicious circle)...
Hi I too agree that you need to get a GI I suffered with abscesses and a fistula' was given remi but only managed to have 2 infusions and got a reaction on 2nd dose which was a shame as the small...
Colonfree, I suffer with dehydration which has finally had a knock on affect to my kidneys and scarred them. I was recently prescribed by the kidney doc sodium chloride ( salt tablets) & bicarbonate...
Hi pop over to the ostomy forum on here there will be lots of people who have been through your experience and will give you advise...
people complain about having a stomach pain though a sick bug for 48 hrs and yours goes on for years 24/7 :rolleyes:...
I have to take slow release sodium chloride tablets and have a blood test done to make sure they are working x...
Hi, I'm sure you will be fine Most people have that thought 'am I going to wake up after surgery' pass through their mind. Just remember there are going to be loads of professionals in the room with...
Hi , thanks for your replies Like NCOT that was what I meant in between bag changes my regime is similar to as NCOT. sometimes I don't have time to shower every time it needs changing so I just use...
Hi what a dreadful time you had . Glad to hear your doing well with the Ileo though considering you probably didn't have time to prepare for it. I haven't had C diff but there are a few people on...
I use to use warm water with the complementary wipes (given by the suppliers of my pouches but, they never sent me enough.) So I now use baby wipes with Aloe Vera in them and then dry off with paper...
Hi NCOT, I take calcium tablets which I have on prescription from Dr. They are called Adcal-D3 which is 1500mg calcium and 400 I.U D3 I have to take one tabs twice a day. They have worked really well...
Thank you all for your replies I obviously haven't missed out on anything great by not using them haha! x...
Hi Mike, great news that your now UC free and able to get on with life and be pain free. I agree with the other's try and be patient it will get better .Your body has gone through a lot both...
Hi Larasmom, Thanks for sharing such a lovely story. It's like you were both meant to be there at the same time. Enjoy having tea togetherx...
Hi, thanks for you reply. I can't see anything that resembles a filter I have a little white Velcro dot at the bottom of the bag at the front and one further up in the middle that sticks together if...
Hi all, Well 16 months since I had my ileo surgery and I have only just noticed as I opened a new box of pouches a strip of white stickers at the bottom of the box What are they for? am I suppose to...
Hi I too have magnesium issues and take tablets daily for it. Been in hospital twice for top ups Its usually worse if I have got dehydrated x...
Hi, just wanted to say I used the gel sachets when I had a loop ileo they worked great at soaking up some of the liquid especially at night. I still use them as I have an end ileo now. wishing you a...
Very sad news. I'm sure she will live on in many people's memories. Sleep tight Rosemary x...
Hahaha, that's hilarious! Thanks for sharing xx...
Hi D, it took me ages to find a bag I liked I tried loads 1 piece 2 piece small, medium & large sizes I finally settled for the Coloplast SenSura too but in a one piece drainable with Brava strips...
Hi, I use to suffer with cramp in my legs and hands quite often. Sometimes its due to dehydration which I had a lot of but, now take sodium chloride tablets also Bicarbonate tablets. I now get cramp...
Sounds like Gallstones or Gallbladder to me. I would get an appointment with your Doc and have it checked out ....
Hi I came off Aza 3 weeks ago due to high kidney function. The IBD nurse and renal doctor told me that this drug doesn't affect the kidneys but I had blood work done last week and the Creatinine...
Hi, Glad all went well with the surgery and your doing well which is great! Wishing you all the best for the future x...
Eva lou so pleased to hear the surgery is now out of the way and all went well. Wishing you all thee very best for the future xx...
Hi I had an epidural and the morphine pump together although you can just have the epidural it worked well for me was still able to get up and walk as the epidural only numbed the stomach area. By...
Hey Luke, The first few weeks can be quite daunting but it does get better. and as the weeks go on your confidence will build up also, once you find the right pouch for you that will help too. You...
I tend to be the other way if I fall Ill I put it down to something else very rarely to Crohn 's. Think this has been my downfall in the past.need to listen to my body and stop being in denial that I...
Hi, I use the same pouch & set up as ks1905 but don't use a belt...
Wishing you all the best with the reversal and a speedy recovery x...
I like Schoolbusdriver wear my pouch slightly sideways. I'm female and wear briefs that have a pocket inside where you place the pouch I'm sure they do these in pants for men. It makes me feel the...
Hi NOCT, can totally relate with you with the leak on the bedding. What pi**es me off more than anything is when I've stripped the bedding to be washed that week put all clean bedding on to then get...
Great news! Glad to hear all went well will be looking out for your updates x...
pmedic, Thanks for your suggestion. I took myself off of it on Monday so, will see if it makes adifference I really hope so! NCOT, will ask about allopurinol didn't realise there was something you...
Hi Jen77, I'm going through a similar thing I'm on Imuran and my liver enzymes have come back quite high too. Spoke to pharmacist and they told me to come off it until I speak to IBD nurse or GI Have...
Thanks for the link will have a look. Going to see if I can get an appointment with IBD nurse tomorrow and see what they advise I'm not really happy about the Liver enzymes being high it says to...
Hi NCOT, thanks for your reply. I have been having kidney issues since July was referred to a renal doc had numerous tests scans bloods etc. which came back clear and they still can't find a cause...
Hi, Can anyone tell me how long it takes for Imuran to get out of your body? I have been on it since April 2013 100mg daily what would be the next maintenance drug I could try? Have been on Remicade...
Hi I can only sympathise with you, fistula's are awful things to have to deal with. I too suffered with these although, mine were the ones coming through the skin on my stomach. I really hope the...
Hi When I had a temp stoma 4 yrs ago it too was just a hole and a nightmare to manage but, the reversal went ok and was done within less than an hour! good luck with the surgery x...
Where can you buy this if you live in the UK? is it a powder or a liquid? I use cavilon but would like to give this a shot x...
Hi, congratulations to you reaching your 1 year. Reading your post was like reading about myself I'm 13 months with my Ileo and don't regret any of it. I can do so much more and eat what I want This...
H, I was diagnosed 35 years ago aged 13 with Crohn's Started with inflammation in the colon treated with Salazopyrine. the rest of my info is in my signature below. mine definitely changed locations...
Hi I too take vit D3 5000ui everyday especially in the winter months to stop getting a deficiency I just got them from the health food shop....
Hi, not sure whether it can be done laparoscopic. I have had 4 open surgeries twice for small bowel resections. Never had the choice. Hopefully someone will be along who maybe able to answer you...
Hi, just want to wish you luck with the surgery and hope everything goes well with the J pouch x :smilewinkgrin:...
HiI went abroad last August and swam everyday either in the pool or the sea I used the Brava strips they are half moon shape and very waterproof and move with your body my bag never moved all day...
Hi, sorry to hear you are suffering so much right now. I haven't suffered with adhesions so I can't really help, but someone will come along who can help. It does go a bit quiet on here at weekends...
Hi when I had a reversal done a few years back I felt like I was constantly living in the loo for the first few weeks and couldn't wait to take something to ease it up. I tried lomotil and also...