Hi Everyone, It's been awhile since I have been on or reading the forums, but I see quite a few people from back in the day when I was. Hope you all are doing alright. I was on a rollercoaster since...
Ok great, thank you! I will get those on the list. Habs - I was concerned about infection too, but I still have my seton in, and the area does not seem to be inflamed, and surgeon checked not too...
Hey all, I am on Remicade every 8 weeks, still have a draining seton in, but it is almost fully healed and set to be removed in a month. I have been working and going to school the last 6 months....
Hello, Sorry to hear about your troubles. It really is hard to offer full on advice as each fistula is unique and so is the surgery to fix them. The only way you may lose bowel control is if there is...
I use Metamucil daily with lots of fluids...usually helps but not sure if its an option for ya...
Congrats!!!! Beautiful picture and so great to see. Hope you both are doing well!...
just a mention..not so much on the increased side effects but one birth control I was on mentioned that it may not be as effective when taken with prednisone...prednisone was listed in the same area...
Well yeah from what I know the abscess can continue to form because the outside of the skin heals faster than the inside, so the infection builds up and recreates the abscess. The seton is laid in...
Hello, Sorry you are having problems with this abscess. I cant give you too much advice about how something should feel after surgery as it varies person to person, so long as you follow up with your...
Hi, I really think the amount of scar tissue will depend on severity of the fistula, location, if surgery was required, etc. It is always different for each person. I am imagine regardless of the...
I have been reading more and more about the SCD on here, and I finally picked up the booked yesterday but haven't had a chance to do a thorough read yet. I have a stricture which left me on low...
Hi there, Sorry you are in so much pain. Each fistula and seton placement is different so it is hard to give you a straight up answer because each surgery is different depending the severity of the...
ack, sorry for all the typos, hope you can manage to make sense of that. I really need to start proof reading before I hit send :(...
I only have one, and maybe the position of them makes a difference but I take a 4x4 gauze and fold it in half with the crease part out and one flap of cause on either side of the seton *if that makes...
Hi All, I am currently looking to travel abroad again. I went to Ecuador and Peru early 2012 before my fistuala and partial bloackage later in the year which resulted with me on Remicade. Before when...
One thing to consider when making diet/life style changes. Try to do so in moderation. Your body needs time to adapt to new foods and new routines or you may find yourself more run down then...
Thought I might post here as its kind of related. I have noticed hair loss since Jan-feb of this year. Started off as normal shedding, then I was losing handfuls in the shower, no bald spots, just...
I've noticed the same thing since my flare last year. I have gotten back into running and weights again, but no matter what I eat or do the belly sticks, no matter what my weight. I feel like it...
Wow, yeah that is so much to deal with, Health issues on top of 'regular' life things make it super stressful sometimes. Hope the health things settle for you and all the best with the wedding...
Hi :) I am on remicade, I had narrowing of the ileum and peri anal fisutala which I had surgery for in Oct 2012. My dr put me on remicade in Nov 2012. I honestly feel a million times better. Before I...
Hi there, I had a fistula that they said was blind ended. It went off my colon and off to no where. The only reason I found out I had one, was eventually an abscess formed at the end and filled with...
Hi neatgadgets, I am not sure if it would be recommended the day after, but I guess each situation is different. In my case I had surgery Oct 24th I think and started remicade around Nov 10. My...
Hi, I started remicade in Nov/2012 after major narrowing in my ileum. I was on a low residue diet for almost 7 months. I noticed some relief after the first two infusions with a reduction in pain. By...
Hello, Sorry to hear you have been having so many problems. I have a peri anal fistula that formed and abscess as it never surfaced. In October I ended up having surgery to clean out the abscess and...
I know this may make me sound crazy, and I feel pretty silly being depressed about it but(t).... I wish I had a picture of what my bottom looked like pre crohns....cause lately (keep in mind I had...
Personally I have never experience increased hair on my back, but do notice an increase of it on my face, like on my upper lip and neck. I have dark hair so the increase makes it seen easily. I...
I was on that awhile back, I cant remember how much it cost. I know when I was on pentasa I was paying quite a bit even with my coverage. Do you have any medical coverage? Im in Alberta, have blue...
I am currently on birth control pills, regular ones. My GI or dr never mentioned any concern with them. At one point i went on Depo (injection birth control) for a year which stop your periods, as...
It does seem like and aweful lot that she is going through, with it recurring contantly. I know that they sometimes dont really know what is going on until they get inside, even with an MRI. the...
I just had surgery done on a perianal abscess which also had a fistula which a draining seaton was put in. I am not sure exactly what he is feeling as each surgery is done differently based on each...
I had a facial when I was on pred, I didn't find it made it better or worse. Mind you I dont have overly sensitive skin. If you trust the place and they use the special products, I say give it a try....
i find when i am on pred i get more like a rash than actual acne on my face and neck. oddly enough i found a zinc creme, like a diaper rash creme works the best on it. I put it on at night (cause its...
I have heard some storied, where people avoid food because they begin to associate it with pain. Have you tried something like ensure or Boost, to try to up your calorie intake?...
Hello! Just an update, went for surgery on the 24th! Everything seemed to go well, wont really know until I am all healed, they put a drain in and got rid of the abscess and opened up the fistula....
It really depends on the medication you are on. I am on a few different things that you can see in my signature. I ended up talking to my pharmacist cause i was hitting an aweful point and couldnt...
Good Luck! Yes the trip was amazing, I am so happy I was able to go, I had no problems with my crohns when I was there either! Not sure if it was the fresh food or the lack of stress but it was...
Ive been running into the same issue, have been on low residue diet since August, I haven't found something that works perfect yet, but I drink plenty of fluids and try to have a couple hot drinks as...
Thanks kazbern, No I have a fistulectomy(sp?) booked for oct 24 which will also drain the abscess as it keeps filling. The remicade they think will fix the narrowing at the ileum but wont start me on...
Ive looked around, and unless you want to use one of the foundations logos, there really isnt much that can full on represent crohns itself, I find. I think you should try to find something that you...
Hi Question everything - Glad to hear the remicade works for you :) What do you mean your memory is affected? Did you get a chance to talk to the GI? Like when I take a pain pill for example I feel...
I'm sorry to hear youre having problems with the fistula again :( I am wondering too if it is the C-diff that is making all the problems and once that is under control if the remicade will help with...
Hi All, Okay so quick overview. Narrowing last portion of the ileum, fissures plus a fistula with an abscess formed off it (waiting on surgery). So my bottom end wants fibre and things to move...
I love this!!!! Thanks so much for sharing, totally made my day :)...
Hi, Sorry to hear of the changes of diagnosis. The major difference between UC and crohns is the fact that crohns can affect anywhere in the digestive system... So depending on where the disease is,...
I cant give you a straight up answer, but most things that play with your weight will play with your digestive tract, I am not sure what is in the or them supplements, you would need to break it down...
I am so happy I saw your post on here :) Its really nice to hear a story from someone who has gone through this and get first hand feedback. I already have wipes ready to go and my aunt picked me up...
Hi Justcantbeleave, I didnt get in for the fistulectomy as it was too complex a problem for local anesthetic so i am scheduled for the operation on October 24th. I have been on many different meds...
Sorry to hear you are having so many problems with the same area eebs086. It does seem from what you are writing that the abscess is in the same spot. I currently have an abscess found this picuture...
Hi All, Well went in today, which was suppose to be consult/local anesthetic for drainage of the abscess that developed off the fistula ( feel like i need to publish a book on my medical...
Hello! Been awhile since Ive posted, but have been lurking around lol. Currently battling a flare up for which I spent a week in hospital on IV prednisone and currently tapering off on while I wait...