So I started azathioprine 200mg a day and my doc lowered prednisone from 20 mg to 15 mg a day because the increase did not help at all. My GI recommended to continue remicade infusions with...
Maybe a mod could post something on treating Crohns naturally. I see quite a few threads regarding people wanting to treat Crohns naturally or that it'll go away. Mostly seem to be newly diagnosed...
I was diagnosed with Crohn's disease in 2005. The difference between Crohns and UC are a few. With UC I've heard only the colon is affected and it is always in one continuous section. Crohns can...
Thank you NCOT, For now I play that fun (NOT) waiting game until I can get in with a rheumatologist. If I lived in any other state if probably already at least have an appointment scheduled, but bc...
Hello NCOT, I might fall in the multiple health issues. I don't know though, I'm not 65 or older. I do however have multiple health issues. My PCP isn't sure whats going on and I have been dx'd w...
Hi bananagirl, I'm a little concerned I've heard from two ppl you being one of them that took prednisone, remicade infusions and azathioprine/6mp/imuran. Both of you said 50mg of azathioprine. They...
Thank you NCOP I didn't even know to talk to a colorectal surgeon. My GI said we'd consult with a surgeon (he didn't say what kind) if I need surgery. Always good to know my options....
Madcat25 were you on a higher dose of azathioprine and they're lowering it because your going to start remicade? They want me to take 200mg of azathioprine a day, 20mg of prednisone a day and...
Thank you Labradorite hugs to you :) I always say take it one day at a time with trying to take care of myself and my chronically ill daughter. Now its a minute or an hour at a time. I was just very...
Thank you NCOT, By responding to me I dont feel all alone and that has helped me more then I can say. I have strength to keep going knowing I'm not all alone. My PCP did run the antibody tests and...
Thank you PV, my doctor tested me and said I don't have the antibodies, but my RF factor was positive. My PCP doesn't know what's going on. PCP and GI recommend adding 200mg of azathioprine a day and...
Things can change drastically I've learned in the 8 years since I was diagnosed. Almost all the symptoms you list I have pretty similar symptoms except the warm feeling you think might be reflux. I...
Its ok I'm on the west coast and not on the Internet a lot. Thank you :)...
Unfortunately I can't take methotrexate because of pulmonary fibrosis. My 1st pulmunologist told me to never take it. Unfortunately I've taken azathioprine w prednisone in the past and it did nothing...
I've had 4 remicade infusions and was on 10 mg of prednisone when I started. After the second infusion I noticed pain, swelling and stiffness in my hands. Last infusion was May 10th about a week...
I'm not sure about your eyes, I have sensitivity to light now that I started remicade. I've always had burning, itching and dry eyes, when I've been on medications of not. My eye doctor did nothing...
My doctor called w lab results. My ANA is negative now she said. How could it have been positive in 07 but now negative? My RF factor wasn't normal, though it wasn't really extremly abnormal she...
Thank you Steve and NiceCupOfTea, I don't feel so alone now. I was told by my first pulmunologist to never take methotrexate so I don't think I can try that. My GI did say awhile back that at some...
Sounds like increase in prednisone is what I need. Unfortunately I've already tried humira and cimzia so can't take those, believe the cimzia caused my pulmonary fibrosis. My first pulmunologist told...
Thank you PV, basically they did nothing wrong in prescribing remicade to me even w a positive ANA is what I'm understanding. A little more assured. I had labs drawn on Thursday and my PCP gets back...
Thank you, I'm pretty certain I should stop remicade, but GI doctors recommendation now is premedicate w prednisone the day before day of and day after. I'm really scared, I live in an isolated town...
Does anyone know if I should not have gotten remicade because my ANA was positive prior to getting? Or has anyone been given remicade with a positive ANA before remicade? Please view my previous...
Thank you, I might go to the ER, what keeps me from going is thinking I'm not gonna die. I'm assuming, so is it an emergency? I feel like it in ways because I'm in so much pain and don't really have...
I saw my PCP yesterday, I told her I remembered in the past I tested positve for ANA but rheumatologist said it meant nothing, she seemed concerned (she's been my PCP for about 19 mo, the PCP I saw...
My last infusion was May 10th, my doctor doesn't prescribe any premeds. The infusion nurse said to take benydryl and Tylenol after my first infusion because I had reaction like fever chills headache...
I've been getting remicade infusions. The last was my 4th. I've had increasing severe pain/stiffness/swelling in joints and muscles. After third infusion I noticed my hands were hurting more then...