Entyvio,as you know may take some time, I myself have been on it about 9-10 months, helps a bit but I still get a run of the symptoms, work stress does not help. I've had one resection just so you...
Forgive me for being frank, Everybody is different and we metabolize drugs at different rates. I generally knew when Remicade seemed to wear off. I pushed for the Week shorter. Not the ten days when...
Take heed of your gut, pun intended. Stop taking Remicade if you are experiencing problems. It's not quitting, it's self preservation. It worked for about a year for me then the weird stuff started,...
9mg would do the trick for me. but also guess there are weight to maximum mg ratios....
Had 40 CM removed about 16" TI. went rather well just a week in the hospital. They wait for a system restart. Nothing major. recovery was not bad. heavy lifting at 4 to 6 weeks. no regrets. T...
73monte, Remicade had that effect but not real pronounced when i took it. Went to a Neuro for that and memory, basically got blown off. Trust your gut (pun intended) more than anything else.Your...
A resection, possibly one rough week and then mending. I did it in may of 12. made a difference, there is one question you should question if they do it at the ilium the valve does it stay or does it...
You have too much time on your hands to dwell on the odds, say and I am quoting an earlier post 3% chance , that's a 97% chance of not having it. You see the cup half empty. you may miss out on one...
What a run around, get a hold of your insurance co ask about clinics ect instead of E Rooms cost quite a bit less, explain you are trying to manage costs, appeal to their greed. I rarely take pain...
Bucko, " And occasionally ibuprophen." Let me be the heavy here. DO Not Take NSAIDS! They are counter productive. Tramadal is a pain killer, may work. At least it works for me when i need it. Then,...
As it was explained to me, it is the class of drug that makes them list PML as a possible side effect. T...
Every visit generates money, follow the money trail. It may be the bean counters are running the practice. I'd be sure to tell the new guy "It's poor customer service to drag every thing out" It...
They warn about PML but have never had a case when I started. It's slow to start from what I hear. I have had 3 infusions so far, nothing weird, just cold a lot of the time. At least I don't worry...
Brian, I had 3 infusions now, seeing some slow change, I get mine in the afternoon and then head into work. 5:30 to 4 am shift. Nothing a pot of coffee won't cure over the shift. I walk, climb and...
Knee and other joint pain yes, but never that severe. Are you allergic to it?(Remicade?) antihistamine tablet might rule that out, did they do an antibody blood test? We all react differently to...
MsMac63, Having been on Remicade in the past, your symptoms don't sound like it is caused by Remicade. It sounds like you have something else is going on. Time to see the Doctor. T Better Living With...
Your guessing at what is going on just raises your your anxiety level and blood pressure. Stress is what you want to avoid. Good that you are headed to the "Pros" to get direction. I'd go for a...
Not trying to be a wise guy, physician heal thy self. Quit playing doctor, see the GI, get blood work done let them make the diagnosis. Generally a colonoscopy is done to determine if you have...
Have your blood pressure checked! In a drug store or at the docs office. How's your B12 levels? I keep B12 in liquid form on hand, it's cheap and easy. Cimzia was a bust for me, after Remicade....
The idea of taking a drug about the same time everyday is really about a more constant level of the drug in your system. By changing the time frame you get a roller coaster effect or rolling hills,...
Get it in the Drs office, get remistart. hospitals overcharge. i got stuck with 10k + at the hospital and very little at the drs office with remistart. the hospital waited to long to send out bills,...
Having had Remicade and am on Entyvio now, 3rd dose. Remicade had a quick effect, whereas Entyvio is not kicking in yet. MP6 is that like Entocourt?sp That's what I get in a pinch. seems to help...
I'd take that 1/2000, Sounds like great odds from where I am. T...
Acid reflux? Did you have blood tests. Flu like symptoms? Metallic taste? I have experienced the ammonia bleach first hand and developed pneumonia from it. You'd have breathing difficulties....
I'll give you a hint. Your not getting enough ionizing radiation to worry about. Your exposure time is a short duration also. You're 17 i believe, you remember anything about the inverse square law...
First off, I was glad I had the resection. It took a while to normalize after surgery, weeks for me, No medications for over 2 years. Inflammation resurfaced currently trying Entivio Just had my 3rd...
Thanks, T...
I'd start here: https://en.wikipedia.org/wiki/Restroom_Access_Act http://www.ccfa.org/living-with-crohns-colitis/personal-stories/allybain.html?referrer=https://www.google.com/...
I'm trying Entivio here, wish there were stats for it. 3rd loading dose on the 29th. No joy here yet. T...
Doc said to try it for one month. any one try it? He said it was expensive but that Costco had best price. I am not a Costco member. The IBS crowd uses this,but crohns new to me. T...
I was about 192 +/- then I don't look my weight, I'm about 167-170 now, I only took what the doctor said. T...
minnietoty, I noticed a difference at about the third infussion, actually great. for me i just knew when it was wearing off, loser more frequency and energy level. I went 8-7-6. All I can say is I...
They are two weeks apart for a leveling effect. Did mine in the belly, hope it works for you. a small hint, let it warm to room temp for 30 minutes goes much easier....
Power density falls off as an inverse square of the distance. 1/2 watt is for regular folks, I believe there are 14 WiFi channels, 11 of which can be used by the general public. I have the "knack"...
Yes, I post in the Crohns forum, am 57 and with the other clubs I've been drafted into, I am overwhelmed. My father had PCa. He did not like to talk about it. So I Question Everything. I am a...
I started with 3 tablets a day, I woke up with the worst pain, recognized it by what the GI warned me about and discontinued use. pain finally wore off. I seem to fall into the group that gets the...
One thing, Remicare get it, it will save you a bundle. Infusions at the DR's office is a great deal cheaper than a hospital. Read the side effects from the drug and be watchful, I too had side...
I'm with several others on Azathioprine, Doc warned me about the pancreatitis. Two weeks to the day I started it hit.I stopped immediately. told the GI never went back. Went on to Entocort and latter...
I don't want to join the club that's taking all you good men. I am going back to doc to find out where the last PSA level is next week. previous one jumped 3.4 to 7.6 . I am so pissed off at the doc...
Yep, close enough. Think UD....
First question actually, Delaware. Second question, 40 min due to I got a shot of saline due too dehydration....
No pre drugs. saline after the Entyvio. I washed it all down with 20 oz WAWA coffee. Then I went to pull a 10 hour shift....
That's what I Felt, my head cleared. I work in a warehouse that is about 2 million square feet. Lots of cardboard dust, it is in the air so it does not matter if you are in the office or not. You...
Tramadol or triple filtered vodka as needed which does not happen very often. GI offers pain medication on a regular basis I decline them I have left overs from time back. I usually tough it out...
Habs, You need an Rx a for therapeutic stay during the winter months down by US 1 Mile Marker 0 (Key West, FL). Refillable every 30 days as needed. No expiration date. T...
:-) {{CROHN'S}} Thanks for the feedback. T...
Started Entyvio yesterday regular not clinical. That door is open to try. T...
I'll agree with Jen77, some where after 3rd dose. You will know it, at least I did My energy level went up pain went down and the frequency of bathroom visits went down. It's great while it lasts,...
Cleared my head, Nurse said Crohns affects sinuses, never heard that before news to me. So far so good. most of the stuff i found on this drug is from 2014. Just hoping this stuff will help. My hat's...
A PCP is important if you find someone you can trust.I have had a few PCPs but only one I trust, at least she listens to me. brief explanation, been the brain tumor route already. 3 PCPs basically...