Hi UC, this is my 3rd month in a flare and I'm tired of it. I've been on Lialda for about a year and Asacol for quite a while before that. Entocort was added 4 weeks ago. My Dr. is talking about...
Can I ask how the L Glutamine helps you ? Is it an anti-inflammatory? I read that it was also good for insomnia so this may be great for me. Thanks!...
Hello, yes I had the Prometheus test done in March. After years of being told I had crohns colitis I learned I have ulcerative colitis. I know they are similar, but it's good to know exactly what you...
SMfromCA, my lab result sheet reads, reference range is between 200 to 1100. I don't have a J pouch either, but B12 deficiency symptoms can be fatigue, weakness, confusion/foggy brain, sore tongue. I...
That's interesting Pluot, thank you....
Hi SMfromCA, I'm glad you asked this. My count is >2000 and my doctor told me not to worry, that the excess comes out in urine. I'm curious to hear other responses. The reason for my test was...
Hi I would definitely stay away from accutane, it can cause or aggravate existing CD and UC. It sounds like you're describing cystic acne. Does your dermatologist know that you have CD? He should not...
My CD started in my rectum and now I have severe inflammation of the cecum. Would have been nice if my doctor told me; it took me getting my own colonoscopy results because I was feeling so ill and...
I just started an interesting book "The IBD Healing Plan and Recipe Book" which is very informative. I've been living with IBD for years but am still learning. The author is Christie Korth, a...
Can I ask where you buy the powder slippery elm? I haven't tried it yet but I see lots of people on here who take it religiously. Thanks....
I was diagnosed with UC before using accutane years ago. As an adult now, I have occasional breakouts and my dermatologist said he would never prescribe accutane because it can cause UC, or make it...
Hi packinhtmama, I can relate. I have bouts of nausea that last days and days, then I'm fine for a few. I've been living on chicken soup and ginger tea for the past week. Just had bloodwork done and...
I can relate. I enjoyed some wine this weekend and am still paying for it two days later....
The Breville juicer I have is fantastic; it's the compact version, works great and not too tough to clean. Apples, carrots and celery together are very tasty....
My diagnosis is crohns colitis, patchy spots in my colon which is why Asacol was prescribed. First Lialda for a couple of years & then Asacol. I have limited dairy and gluten and am trying to eat...
Thank you big betty! I actually bought motion sickness pills this morning but they make me sleepy. I'll try your suggestions next....
Hello all, one of my main symptoms is nausea and I've tried everything - ginger and peppermint teas, pepto and I have a medicine called Ondansetron (generic) but nothing seems to work. My daily med...
Change of seasons brings on flares for me and yes, winter seems to be the worst....
I have used a small plastic container, like a soup takeout, that I can throw away when finished....
Hi Shea, sorry you're not feeling well. Just an FYI, there is a group of doctors in NJ (Hackensack Digestive Disease Associates) that specialize in IBD. They work out of Hackensack Medical University...
I can relate Minnie. I just got into work and feel like I need a nap already. My bloodwork is normal, I take extra B and D vitamins and also watch my diet. Coffee is out of the question for me and...
It's hard to resist that awesome smell when you walk into a movie theater, but for me popcorn causes pain....
very cool, wish I had known about it....
Hi Usher, I sometimes have a fuzzy brain feeling which I've blamed on hormones, but it could be the meds. I have been taking Asacol for the past 6 months, switched from Lialda. I was diagnosed with...
Hi Usher, sorry to hear you're not feeling well. I had no trouble with entocort and am tapered down to 3 mg now. I see you're on iron supps, that causes me nausea. Have you had bloodwork done...
Myself 09 - go to ASACOL.COM. They offer a discount card where you pay no more than $20.00/month. It has worked for me for the past year. Good luck!...
No_pain I just remember a pretty green bottle the aloe came in, I don't remember the brand name. For the coconut milk I buy SO Delicious-it comes in a cardboard container. No refrigeration until you...
I just started drinking coconut milk in fruit smoothies, with bananas + berries or an avocado, and have no trouble with it. I've read wonderful things about aloe vera, but it gave me D....
Thanks everyone for your responses. So far so good on the Entocort, no problems at all....
Minnietoty thanks for your response. I'm calming down a bit. Be well :)...
Thanks kazbern, I am starting at 9 mg and then tapering down....
Hi all, I have had mild to moderate CD for many years. I can't remember the last time I needed steroids, but am now in a bad flare and am starting Entocort. Does anyone have any good things to say...
Hi Canadachick, I'm also trying to put on some weight but am not trying to get pregnant. My GI told me to try Ensure drinks (there is one with extra calories for weight gain) and try eating smaller...
Hi Shelley, I'm sorry about your diagnosis. I've had CD for most of my life and I'm 52. Definitely do some research and don't get discouraged. I have long periods of remission. Like you said, the...
They may be a little more pricey but I take GNC multi-vitamins because they have "ultra mega" doses, extra B and D vitamins. They also have chewables which are low in sugar and aren't bad at all....
Hi Casey, I've had CD for many years also located in my colon. If I have smaller meals throughout the day, I feel better. Nausea is big problem for me, and if I over eat I really suffer. I stay away...
Thanks everybody, feeling much better today. I'm new to this forum and it's nice to know there is a place to share our feelings. Stay well....
Thanks pb4, you're right it has to do with severity and willpower, which you seem to have datawraith. Better days are coming....
Having CD for many years I know what's OK and not OK for me to eat and drink. Today I woke up and said "I need coffee" - tea or smoothie was not going to do it for me. Here I am, 2 cups later already...
Kal, for breakfast I either have a protein shake or I make a fruit smoothie in my blender..banana, some kind of berry plus coconut milk and a little ice. This gives me some energy to start the day. A...
I agree with you kix, crohns is not fun. Sorry to hear about your suffering Kal but you will get better. I'm currently taking asacol and have been on meds for many years (first diagnosed with colitis...
I can relate because I too am exhausted. I was 1st diagnosed with UC back in the 1970's. Over time my diagnosis changed to CD. No surgeries, thank goodness, just medication (asacol as of today). Some...
I've never had a problem with imodium, I have used it and relied on it many times. The liquid formula works quickly....
Hi everyone, I'd like to find out what brand of probiotics you all recommend. I've tried GNC brand but didn't feel any different. I've had CD for many years, lower colon only and take (3) 800 mg....
Hi, I'm new to this forum and I'm glad I found it. Lately I've been limiting my gluten intake and it has helped my crohns tremendously. I didn't cut it out completely, just cut back. Gluten free...
I used Prepopik last month for my colonoscopy and I wasn't happy with it. It took hours to work and I didn't think it cleaned me out as well as other preps I've taken over the years....