Holy cow I guess that makes sense! I'd Todd my r the sane thing and been told I looked perfectly normal and so she had no explanation. Crazy! Thanks for answering this for me!...
Well he is pre medicating the other things Solumedrol extra strength Tylenol and benadryl. He probably hasn't suggested the pred method fearing that I might stab him or burst out crying lol. I will...
Sometimes we have to do everything we can to put ourselves first. I hope by having some rest and seeing the research hospital, will get you into a better place....
I was first on remicade back in 2010 for around 9 months, while it worked it worked great was the best 9 months of my life. Fast forward to the summer just gone, I'm flaring again and my only med...
I feel kinda stupid asking this.... you say they posted the results quickly, do you mean they mailed those results to you? Or you got them some other way..?...
Wow. I never knew this... I was on entocort for a year. No tapering off dr switched me straight to pred with a flare n tapered the pred, ive been off of both for 3 months. Could this be why I am so...
I'm glad this thread was created. Ive had crohns for 4 almost 5 years now and just this year they found a nodule in on my lung too, that was about 3 months or so ago now. I worry every time I get...
I was prescribed it for my crohns pain and I didnt notice any difference what so ever. It just took my appetite away completely so I stopped taking it....
Thanks no gain. I think I'll get my levels checked first cos im already taking a Multivitamin is by centrum so I guess it's a fairly good one? I also take high potency b12 supplements to. My diet is...
Thanks I have an appt in the 31st to decide if the remicade is working. I will mention taint vitamins etc I just know my mum will be there and it'll be awkward lol. I'm just so ready to be a normally...
Should I tell my family doctor or my gi about these issues? I just want some answers so people know I'm not just exaggerating... my parents don't mean to be unsupportive they just think a positive...
Thanks. It's just so frustrating. My iron is ok not sure about the others my patents pay for my medical fees and theyre not really helpful in finding out these answers. Theyre not being uncaring they...
Urghhhhhh how is it possible to struggle to wake up. To be so tired you don't feel safe to drive. So you avoid making long journeys alone. I'm so exhausted both physically and mentally I cannot focus...
Even if I'm on azathioprine too? Huh I wonder why I was told otherwise! Thanks though glad to know I can do that....
Its safe to take while on biologics? I swear I was told not to take it while on infliximab...?...
Thanks but I have already called and mentioned I feel bad when I requested the blood tests. Its starting to worsen if no better I may just turn up at his office and ask for a nurse to see me...
Sure will! If you go for it get him tested for anti bodies first!!...
All the time. pretty much live drinking laxatives lol...
I have a friend on facebook that promotes essential oils for every thing and often thought the same. I read om pinterest that lemon grass is good for inflammation pain... would be interesting to hear...
I asked for a blood test cos I was feeling pretty poop n am impatiently waiting for my 3rd remicade infusion. The dr said jus to keep my appt on the 30th. Bit that doesnt help how poo I feel. ive...
Im in a similar situation... im retrying remicade and the only one I havent tried that my dr will prescribe is cimzia... im also not a candidate for surgery at this point because I have too much...
I disagree. Both losing and gaining weight is equally as damaging psychologically. I was always a healthy weight for my height before this disease. When I was first diagnosed I became extremely...
Yeah my bloods came back "ok" whatever that means lol doesnt always mean healthy just means my dr thinks I can wait till my appt lol! I think I'll agree to a couple more infusions if that's his...
My dog is my best friend. She always knows when im sick. She follows me to bed every night instead of my parents. She will comfort me when im sad and kick me when I fidget roo much lol. She never...
Hey I did have the prometheus test and it was negative. Only had two infusions so far but am not seeing any improvement yet... I was hopeful but now not so much to the point I'm going to get bloods...
I was on remicade about 2+ years ago. I had my second infusion (for my second time around) last week. You can get a blood test to see if you have anti bodies. Its expensive though... and im not...
Thanks guys. I just felt silly cos when I was on it two years ago I saw improvements almost immediately the worst affects after an infusion was that id sleep alot for about a week n id get a rash...
I was in remicade/infliximab about 2-3 years ago. My first GI took me off if it after 9 months because a had a hefty flare which left me hospitalised for 4 weeks. my new gi tested me for antibodies...
I didn't change my mind gumby you were right tho I probably shouldnt have gone. Because of course no one really realised what a sacrifice and effort I was making. I ended up eating crap food the...
Thanks again. I really don't know what to think about any of it. I decided a few hours ago that I would go camping if I achieve nothing but to share how unwell I can really be instead of hiding it. I...
Nicecupoftea - sounds so sinister lol but your right in this whole time ive battled this disease ive only had one friend stick by me but then I moved across the world and all I have now is my mum lol...
Oh wow i didnt come online yesterday as it was a bit of a tough day, but i certainly wasnt expecting to get this much support! THANK YOU scifigal im sorry you went through that, i had similar...
Im constantly feeling guilty or very very alone. Ive had crohns for four years now, was diagnosed at 18 and had to learn to grow up and deal with it very quickly. Spent the first year in denial like...
Thank you!! My parents are looking into the different payment plans we qualify for! We have rather good insurance so they do cover a lot! I just feel guilty when the bills start arriving... not to...
Sorry!! I should have added at the end of my story that last year my family and I moved from England to the US! Best and worst idea ever! lol. My healthcare is better here but we certainly get what...
Thanks question everything. Im not even sure if thats what hes going to suggest yet as i would have thought hed have suggested it by now! I guess i will know more after the weekend! Thanks for those...
Yeah I have heard nasty things about all the drugs we take though! lol MTX is out of the question, if my doctor says no i trust him, generally he knows what hes talking about, i just guess hes...
My doctor has asked for the weekend to mull over my situation. A little concerned that hes not sure where to go from here but i am also grateful hes not rushing in and doing something rash. I...
Hey. Its hard to always understand what your body is saying. I often have "normal" labs or what i am told are normal labs when i KNOW it is my crohns playing up. Key point was last week my bloods...
Thanks vitaka! And thank you PV a change in meds is def going to be requested! I want to retry remicade and ive also never been on cimzia so there are still a few options out there yet As for the...
Thanks guys. its a relief they found something as now I feel justified to fall apart lol its prob psychological im allowed to be unwell now haha. I hope the nodule is just an anomaly of some kind....
Quick update: Nurse called re the ct scan. They saw narrowing of the small intestine and a nodule on my lung. not sure what this all means but am on low residue diet gotta stay on the pred n will see...
Thanks gumby! I'm gunna try and avoid taking them then and go back to soft diet. Im sorry you study the way I do too but it's nice to hear I'm not alone!...
Thanks crohnietoo that sounds so horrible! What are they suspecting/looking into next? I wish our bodies would make life a lil simpler sometimes lol like dealing with the disease isnt enough we have...
Hi. Lil update. i was/am suffering bad bouts on constipation. I literally have to massage and force myself to go and basically this caused some issues. I called the nurse (my drs away atm) explained...
Yup. Was constipated before the pred. And Yup they both prob the cause of feeling poop. Urghhhhhh. I'll give the nurse a call and suggest that When my Dr comes back we look at colonic inertia. He's...
Yeah ive not been taking the lorcet for about 2 months, try to only take it when necessary and I was put on the zofran after the constipation had already set it. Its def not to do with the medicines...
Hi. no I dont think so. That would be the easiest answer and my body doesn't usually produce those lol. I had an xray done about 2 weeks ago that looked normal, would narrowing have shown on there?...
I've been suffering bad constipation. Been taking mix of senna miralax x2 day am also on 40mg pred (been on pred about 2 weeks or more) and am on an antibiotic x3 a day & 200mg aza my body seems to...
Wow I used to just think I was being a baby lol. I can feel like I have a fever n only register 36.9 C lol makes me feel better to know im not alone!...