My experience was awful. I got hepatitis induced by 6-mp. And if you know anything about Hep, that was crazy. My skin, eyes and nails turned yellow and I itched for at least 15 days, then my doctor...
Oh girl I work my butt off! Literally haha! Like you, I refuse to work less, try less or take it easy...I want my kiddos to have the best of everything! I teach preschool and my co-worker is a...
I do, I need a therapist bad, and I wouldn't need one for all my childhood issues and all that crap if it weren't for my Crohn's, I always felt like I was angry but I could deal, but with the Crohn's...
Thank you for the advice on the lemon water cleanse. I am on the lowest dose of Prednisone, which might help A LOT with getting the weight off. I hold grudges a lot, and sometimes I feel God is...
I feel bad just for posting this. Ever since I was diagnosed with Crohn's i haven't felt like I have much support from my husband. I live in the US, away from my family, it is just God, him and I...
So, you dont think it is the 6mp? Is more likely that this is the prednisone?...
Hi, I have had an ingrown toenail for about 35 days now..it grew out and it seemed like it was gonna be fine, but now im considering having a podiatrist just to remove it...is that something any of...
Thank you Steph and Gumby, that lifted up my spirits. I read the mortality rate thing on Wikipedia, it says on my instructions for the medicine and my doctor did talk about the pregnancy a year ago...
I am in the U.S. my om lives in Brazil. We talked about remicade if it happens that 6mp doesn't work and i know that pregnancies with remicade are possible. I just read that there is a very high rate...
I enjoyed my 10 months of remission...a short one. Now, I was at the doc's today and he put me on 6MP. I am so sad after reading that I wouldn't be able to have a child while on it. I am only 27 and...
I got pancreatitis while at the hospital...although no one can tell me why. It could have been from pred, from mesalamine or from endoscopy. It was awful, awful...but no one could really inform me...
Hi, i really don't know the dosage, I think it is 5 for every pound you weight...but I was very sick at the hospital on that day and they only asked me to make a decision on whether I wanted it or...
Oh, I hope it works for you...it is an amazing medicine! :)...
Remicade helped me a lot. 3 days after I took it I left the hospital! It was amazing for me. I haven't taken any since, it had been over a month, my doc thinks I may not need it and I can just stay...
That is awful how people are so selfish...one of my friends came to the hospital to see me and said "I don't think i will ever complain about headaches ever again!" and that was sweet of her, it made...
Carrots and green beans seems to not digest well with me...but zucchini, I just boil the living crap out of it and it's never been a problem for me, I love it. haha Sweet potatoes are good also....
Idk what to tell you, with the exception that my doctor gave me Asacol one time at the hospital and that passed undigested, I could still even see the color of the pill. But he did warn me about that...
I had been diagnosed with UC in January...and now, last month I had another hospital stay and they said it was Crohn's bc it was in the ileum, so, I guess whenever the infection moves to the small...
I tried remistart and the jenssen program..they didnt even answer anything yet..it has been 3 weeks...now, Lialda, withing a week I had 3 sealed bottles at my house..really fast!...
It is interesting I found this thread about "cure". My boss' wife actually has CD, as do I, and she is working on a new vaccine type thing for Crohns...she is excited about it. Hopefully there will...
I got Lialda for free from the ShireCares program. Does Asacol have such a program you can apply for?...
I went to the PCP, and she got me an appt right away for the GI, tomorrow already! I am thrilled, he will be able to give me all my meds now, I hope, even cimzia or remicade if necessary. Thank Lord...
Thanks...will do!...
Thanks Kaz! I don't know if they discontinued Lialda for me bc the mesalamine was doing more harm or not...i don't know if that is the same thing in penstasa, bc I am taking that now...but I will ask...
I was the same way a month ago before I went to the hospital. They found I had severe duodenitis, and then after I couldn't keep anything down again bc I developed pancreatitis. Don't wait until you...
Hello all, question...I am going to the doctor this afternoon, not the GI, but a PCP. This morning as I had a bowel movement, the feces were laced with blood all around...no pain, no discomfort, but...
I have always been a few pounds overweight. I am only 5'2 and weight 150. I don't look "fat" or sick. Right now I am at 140 bc I was at 156 and lost 16 pounds while I was admitted to the hospital,...
I got a flu shot, but still was sneezing like crazy. My husband was sick but I didn't get anything. I always use hand sanitizer now all the time. I bite my nails like crazy, and I need to stop bc...
@ Dave- i will surely try that in a month or so when my symptoms are better, right now i would probably eat everything in my path if i could..and i would make a batch just for me hahaha i remember...
I haven't drank soda since I was like 17...so that does not bother me. I know someone else who has CD and they drink Starbucks everyday. Now, chocolate I am just dyinnnnng to be able to eat...not...
Babeinthewoods- Thanks! I will definitely try half a cup of coconut water today to see how it goes. I feel like I need to change my doctor as well. Lots of doubts and little time in the office when I...
I am surprised bc my boss' wife has Crohns as well and now that I was diagnosed she says it is the worst enemy! And my doc also said that no oils! Never! I am reluctant to try coconut water, even...
My doctor said that anything with acidophilus is good. I just started 3 days ago. Hope that helps. I am pretty new to all this, so, that is all I can tell you. I eat lactose free gluten free organic...
I am sure there might be some American doctors there...no? Are you in a region where there are a lot of tourists? Usually there is always someone who is familiar with it, you just have to look very...
Wow, I can only say wow...I second Monte...are you religious? I have turned to God, on the worst night of my hospital stay I felt like I wouldn't wake up the next day and I know in my hear that God...
I had UC, but recently, the inflammation has moved up to the Ileum...so...they are waiting, but it looks like Crohns, doctor has recommended that I even try Cimzia now....
I am not sure at all...it was such chaos on the day of the remicade, I had gotten blood infusion and so many other medications..and it was around 10pm when they gave it to me...I will know more...
I have been given an emergency infusion of Remicade on the 4th, so, almost 2 weeks. I have been doing well, but yesterday and today idk why, but I have been feeling so down. The insurance I have...
Wow, my worst fear would be getting pregnant...it is such a distress in itself to have this illness. I hope she really does get better. Tell her to take it easy, sometimes it is not worth it to just...
I had my first infusion about 2 weeks ago...and it helped me on the 2nd day after it...i actually was able to leave the hospital bc i got the infusion. Now, 11 days later I feel like I need another...
What is it that oregano oil does that stopped ur bleeding? was it recommended by a doctor??...
I am so very sorry for he conditions you are going thru right now. I can't imagine losing a loved one and having this sickness all together come back so suddenly. Go to your doc's appt, see what is...
Symptom free, be able to eat healthier foods that give me the vitamins I need instead of getting it from a bottle. Be able to move without pain, work everyday. I don't care how I look as long as I...
I think I won't be juicing...I am too scared for that right now...As far as liquids go I am just on water and peach clear ensure...nothing else. I ate the yogurt an hour ago and it seems to be okay....
DMC- i just tried it now..waiting to see how it digests...thanks!!! Very hopeful about this :)...
I think he just feels that it is too strong of a medication to go to right away, he says he wants to try other things before Remicade to see too, he says Remi is way too toxic and the chance of...
CGgirl- i looked online on how to make it and its kinda complicated and needs a machines and all, so, i kinda just gave up right there and then haha. DMC- ive tried ov before when i wasnt sick, it...
My GI had mentioned to me 6MP before my emergency Remi infusion, but now he has mentioned Cimzia bc he really doesnt want me on Remi long term, he feels im too young for that...does anyone take...
I see this thread was started a while ago...I have a question. So, while I was at the hospital, my GI said he wanted to start 6mp, but said that due to the drug taking effect only 3 weeks after...
I am sorry you are going through this, we all are very sad to read all the updates here. I am especially sad because I am new and I have read what this disease can do to people in the long term. But...