Yes, I'm on disability for CD. I couldn't get through the paperwork on my own. I was intimidated after reading that almost everyone gets denied at first. I used an attorney and the process was so...
Yes the same combination of antibiotics has helped me also. I understand what your describing, within a couple days I went from scary sick to back to what is normal for me. I have tried all the usual...
I had the genetic testing done a few years ago. I got lucky and my GI doc had it done as part of a research study (free for me). I had already been diagnosed through colonoscopy and there was no...
I'm looking into entyvio also as all other options haven't worked for me. I recently joined a Facebook page called Entyvio Warriors. I've read mixed reviews but it's a great place to ask questions....
Thanks, Im open to any suggestions at this point. I've never tried the SCD diet but have done the all liquid a few times. I've adjusted my diet over the years and pretty much stick to my "safe" food...
I experienced lupus symptoms while on remicade and cimzia. Humuria gave me severe headaches so I never made it past starter doses but it seems i just cant tolerate any of them. I can sympathize with...
I've been seeing a great GI doctor since 2007 but he has told me we have tried all of the current medications he uses to treat crohn's patients and its time for me to try the research hospital. I...
I have been blessed with two healthy children and I have severe CD. I consulted with my GI and OBGYN and neither where concerned about CD being passed down to my children. I have a big family and I...
I've had problems with really high copays for meds. I was able to get some assistance and I think it was directly from remicade. My doctor was great and had the application forms and helped me figure...
Congratulations. I have severe CD and was on lots of meds including cimzia before I got pregnant with my second child. I was overwhelmed with meds and sick of side effects so I went against doctors...
Wednesday described exactly how prednisone makes me feel. I have been on a 40mg dose for six weeks, this has been a last resort to get me by until my appointment at research hospital. I know without...
Hello, I had similar problems with side effects from Remicade. I understand how depressing it can be when the medicine that's suppose to help feels like its doing more harm than good. In my case I...
I tried cymbalta a few years back when I was desperate for anything to help with pain. At the time my symptoms were under control with other meds but I still had constant pain and the many doctors I...
Hello, sorry you are feeling so bad. I understand how scary it is when nothing seems to help and you just keep getting sicker. When I am at my worst I have trouble keeping food down too almost like...
Sparkle plenty - where u able to find an alternative to the biologics that worked for you?...
Does anyone else just feel terrible after doing their Cimzia injection? I do the injections at bedtime and wake up the next morning feeling weak with sore muscles and can barely manage to get out of...