Just curious. Are there any specific enema treatments available for Crohn's of the large intestine/rectum? I had a subtotal colectomy last year and still have my "stump" - rectum + part of sigmoid...
Gumby, who is your GI at U of C? I have had a fantastic experience so far with Dr. Rubin and his team, particularly his fellow Dr. Kinnucan. They have been EXTREMELY responsive and effective with my...
Yeah, I'm fine. It was more annoying than particularly threatening... Stoma nurse confirmed it was a prolapse/hernia and we are ordering a special hernia belt from Nu-Hope. She also said surgery to...
I personally like the Gummy Multivitamins that you get in bulk at Costco. Each individual gummy I believe has 100% of your daily allowance of Vitamin D, as well as a bunch of other goodies (including...
This isn't a super-new phenomenon, but I've been noticing it more and more lately...perhaps as I'm getting more active... When laying or sitting, my stoma is generally half an inch to a full inch...
I may give Dr. Rubin a shot - thanks!...
Ttt - no chi- towners?...
I've been taking them for a few months now. I usually take them with food so hopefully they stick around my stomach longer :). So far so good. I haven't seen any gummy in my bag......
Since the other thread on Dr. Yun seems to have died... Does anyone have any recommendations for GI's in Chicago? I've been treated mostly at Northwestern (had a brief consult with Dr. Yun - have no...
My colectomy was performed by Dr. Billimoria at Northwestern, who was excellent. That being said, he was a surgical oncologist by trade, not an IBD/GI doctor. Maybe that says a lot in and of itself....
Actually, I have, but only once and more or less in passing. I wasn't able to form a strong opinion on her. She seemed okay, but didn't blow me away either. I'm in the market for a GI in the Chicago...
Meh. A few extra strands of DNA in a food product isn't going to create an inflammatory response. Not to belittle your idea, but our bodies just aren't that *micro*. If you ask me, I think it's a...
Is there any way to attack this problem via dietary changes? ie: Eat "bulkier" foods such as potatoes to thicken the output so it doesn't leak? Eat more/less fiber?...
I would give a cautious endorsement for "the bag" as well. My situation was similar to Smackie - two weeks before my 30th birthday, I started getting sick, and four weeks after that my colon...
I'm a huge Cavilon fan. Other than this, plus a barrier ring, I don't use any other products. I usually get an extra ~2 days or so out of my wafer, rarely have any issues, and my skin looks great....
I went from 100% regular & healthy to a perforated colon in **30** days. So yes a lot can change in that time. If I have one regret it wasn't being aggressive enough with my initial treatment. Don't...
Is a flu shot recommended even if you aren't on drugs?...
Thanks for the reassurance. It SEEMS like everything is back to normal. No more tightness when I get up, etc....
I'm absolutely shocked there isn't a post already about this... So last night I got take-out pizza after work. Instead of doing the sensible thing and getting a taxi or riding the bus, I decided to...
I am absolutely floored. He almost shamed even *me* into working out again. I don't remember the last time I was this surprised. My condolences - he was an inspiration to us all....
I don't mean to be super critical, but aren't these drugs a little dangerous to use prophylactically?...
Yeah, I think I'll go see the WOCN rather than the surgeon this time around. I'm setting a mental deadline of October 15th. If I don't see significant progress by then, I'm setting the appointment....
Ohhh....I LOVE PEANUT BUTTER!! I liked it before, but now I absolutely love the stuff. It's also one of the things my ostomy nurse advised me to eat immediately after surgery, especially in tandem...
I'm a relative newbie to the ostomy, too (April 2013), but I've had great results with the following routine: -- Prep as much as possible. Cut wafer to size, get all materials together, etc. -- Take...
I drink a cup of coffee every weekday. I would suggest eating breakfast first before diving into a cup. Supposedly, the acidity of coffee is not good for you and should be tempered with food. Same...
Thanks for trying, at least. I've thought about buying some tongue depressors and laying that across my wound. This would elevate the abdominal pad and keep it from settling in the affected area....
I've seen several talk about the hydrogen peroxide trick. "A capful" is the most frequent amount....
I'm on about the six month mark, and I've yet to find a food that has given me any significant issues. The only thing I haven't tried yet is nuts (wasn't a huge fan of them before, so why tempt fate)...
Believe it or not, I actually (somewhat) have a choice. And so far, I've elected to stay with the stoma rather than mess with an IRA. It boils down to one simple fact: The 30 days I was sick with...
Here's a picture of the problem area (circled): https://docs.google.com/file/d/0B88WDgMZekdGTXBVM25mLU9Mdkk/edit?usp=sharing I'm not sure if it's necessarily wet or dry - it just is. It doesn't seem...
Yes - the wound was addressed by my doctor when I went in for my check-up a few weeks ago. They used some silver-nitrate to burn away some "granulomas" and said to check back in a month. It's almost...
So it's almost six months to the day when I had my ileostomy surgery. Yet I still have a portion of the incision site that refuses to completely close up.... Any tips, tricks, or products, that will...
FYI - Much to be my surprise, the surgeon did NOT push the rectum removal surgery. She barely even examined me... Unless there's a change in my condition, we basically agreed to revisit the issue in...
Extremely helpful, NCOT. I'm glad you decided to stay around the forums. We have to stick together ;). That's kind of my rationale. I don't see the risk/reward skewed in my favor in regards to the...
As far as I know, the CD DX came from the "skip lesions" found in two colonoscopies, plus the biopsy of my excised large intestine....
Hi all, I'm going in for my first major post-surgery check-up in four months. Part of the conversation will be options for the "next surgery".... So before I get into details, my question to all of...
*raises hand* I had an ileostomy in April and was tentatively diagnosed with Crohn's. The initial diagnosis was indeterminant, but I think all of my doctors had a meeting and just decided to start...
At the end of the day, Crohn's is an auto-immune disease. If your body is attacking and destroying your own intestines, what do you think it would do to a foreign intestine? :nono: Fire in the...
For takedown surgery veterans: Does the burning sensation ever stop, or is it something you always struggle with?...
Apparently, mine looked like this only a month after becoming symptomatic :p....
If we're talking about the same thing, this is what I use. Can hardly tell I'm wearing the bag with this puppy on... http://www.vitalitymedical.com/stomasafe-classic-ostomy-support-garments.html...
Please, veer down that road as much as you want - the more info on IRA vs. ileo the better.... My rectum was a little inflamed, but apparently they weren't too concerned about it. I have what I call...
I have the two pieces and I find I have to swap it out every 4-5 days. I tried to go six days last week and ended up springing a leak :/....
Thanks for the replies. I figure it was worth a shot :). One other thing I've read....since apparently this is Crohn's Colitis, I've read such patients are at greater risk for developing arthritis...
http://www.vitalitymedical.com/stomasafe-classic-ostomy-support-garments.html I'm sure you can get that product from whoever your supplier is....
Hi, I underwent a total collectomy in mid-April for a sudden and intense episode of Crohn's Disease (apparently). I now have an end ileostomy, and have a follow-up appointment scheduled with the...
Oscar the Pouch is classic. I love it. Someone else on here called it "Gurganus" - I almost herniated my gurganus after reading that.......
I'm kind of in the same boat, though maybe not quite so extreme. I lost 50 pounds from start to finish - and in just three months post-surgery, I've gained about half back. I really really want to...
By seal, do you mean barrier rings? I have found those little hunks of clay work wonders on preventing bag issues. Another accessory I've found that helps tremendously are the "mesh" undergarments...
Hi, From reading various posts, it seems that for most, Crohn's/UC symptoms seem to build over the course of years. My particular case seems to be highly accelerated? Is there any precedent for this...