I haven't posted in awhile, but saw your post and thought I'd lend some support. I was diagnosed late in life and have been through many meds over the last 4 years. One has finally worked!! It's...
Hi Smallfry I had the opposite diagnosis. My biopsies said colitis, but there were many spots on my colon that were affected...so my GI said it was essentially crohns, not colitis. It is not a cookie...
It's hard to get off the prednisone Do you taper slowly? Even if you got it to 7 and hung out there for awhile, it's better than 10 or 20. I had a very hard time getting off. It's important that you...
Hi Starman. Had the same thing happen to me. I had noticed my bowels were "cranky" , but not really symptomatic. I was 60 yrs old!, I was shocked! (My sister has crohns and was diagnosed at age 12)....
Hi: I've just gotten approved for Entyvio too I'm waiting for a bit before I start though. I've been taking Cymzia injections for almost a year and have been sicker and sicker...adding more...
Hi. I've been on and off Prednisone for two years now. It takes a long time for your scattered thoughts to settle down after stopping or tapering Prednisone. It does get better though. Take care...
I tried Humira. Built up antibodies very quickly. I noticed it stopped working and GI was very surprised. I had tried Remicade before this, same thing. 6MP couldn't tolerate. Elevated Liver enzymes...
I'm so happy to hear this. Gives me hope....
I also get sores in my mouth and on my tongue and that for sure must be the crphns....
I had so much pain in my joints and muscles about 2-3 months after starting Remicade. I saw a rheumatologist and he believed it was from the Crohns, not the Remicade. I do too. I take 5mg of Pred and...
I'm sorry to read this. Take good care of you. Thinking good thoughts. Trishke...
Stef No, not confusing at all. Thank you. I think I will check into those numbers. I didn't know that!! I'll admit the idea of a painful injection and the thought that it might not work are...
Thank you Stef I'm terrified to start Humira. At least with Remicade you have the support of the other infusee's. (Spelling :) Trishke...
Hi. I'm new, but jumped right in on another thread. Here's the long and short of my story. A year ago I ended up in hospital and was diagnosed with Crohns. I'm 60, so it was a shock. My sister (who...
He's not on prednisone? Or something to stop diarrhea? When I first got sick we even tried OTC diarrhea meds. You might need to complain to GI a little louder? Good luck....
Also. Gi have tried to get my sister to switch to Remicade, even though her levels are fine. With that said, she has bowel issues. Things are not perfect!! She's like you. Doesn't want to upset the...
I'm older too. My sister has Crohns since she was 12. I was diagnosed last year at age 60. She's successfully taken 6mp for 17 years. I got sick from it so I've been on Remicade since June. Now they...
Hey, sorry about your recent diagnosis. I was diagnosed a little over a year ago. My sister was diagnosed at age 12 and had taken 6mp for 17 years. My MD thought, great she's a sib and has done well...