Doctor also put me on 20 days of predisone and Amitiza for constipation. 24mg was too strong. Trying the 8mg. I have CLL and can not take humira. Anyone else using amitiza?...
Glad you are out of the hospital....hope you are doing well...Glad the miralax is working. I was drinking miralax daily and taking stool softners, to no avail. Dr put me on amitiza. Tried the 24mg...
Been having a bad flareup, had to do 2 colonoscopy preps (due to constipation). Crohns in my ileum and rectum. Dr gave me 1000mg Canasa suppositories. Having bad arm pains.....anyone else had this...
I have the same problem. Havent gone for almost a week, miralax does not work. The only thing I can take for my crohns is a steroid and imflamitory meds. I finally took ducolax and have been up all...
Thanks everyone for the great ideas....I am thinking about going gluten free, and eating smaller meals. Cant eat rice or salad at all. I love bread, but will try to elimanate it from my diet. I ate a...
Thanks everyone....the dr told me to take the lax and miralax, I am barely having a bowel movement, not enough to make me feel better. I cant get Nexium otc yet. Not available. Trying to figure out...
I take nexium for Gerd, I have always had d with my crohn's, but since I had to switch meds, I now am c on the time. My crohns is in my small intestines. Taking predisone and another steriod, but has...
Hope everyone is doing well today...been gone for awhile. Insurance wont allow me to take nexium, and since the first of the year, been having trouble with my bowels. Ending up in the er in March. My...
I have a friend who is gonho on this stuff and wants my husband and myself to start taking this. Told her I would not take anything unless the dr says it is okay. Have you heard anything about this...
Hope everyone is doing well. My husband had 100% blockage on the right artery and 50% blockage on the left. He had his heart attack Saturday, Jan 5th. Had 2 stents put in. Will be starting rehad on...
Thanks...
Just checking in on everyone. Hope all is doing well. Been mia for awhile. My husband had a massive heart attack and we are just now home. If I had not taken him to the ER he would not be here. 100%...
So glad to hear that! Going in Saturday for the scans....
Thanks for your help. Didnt know about taking antibodics could effect my Crohn's....
Back from the GI appt. Dr is putting me on budesnide 2x day. Ordered blood work and stool testing, having a cat scan done, possible radiology scan, and checking on my gallbladder too. Said something...
Forgot...also told to show my cancer dr the rx for the meds to make sure it was okay for me to take. Seeing the new cancer dr today at 2:15....
I have seen a GI dr 2 x in Springfield Mo from April until June of this year when I was diagnosed and then got a new dr (GI) here in Kansas and I have only seen him once. I called and made an appt...
I was offered Prednisone and the other...I cant remember. The dr didnt seem to concern about it though so I thought I would be okay. I really try to watch what I eat, but it seems that something is...
Thank you so much or your responses. The dr seem like I could just watch what I eat. Apparently NOT. I have had more episodes of this in the last 4 yrs than I can count. Will be calling the dr again...
Up again as usually all nite, throwing up and diarrehea. I hadnt eaten much of anything yesterday. The top part of my stomach gets real hard like concrete with pain every time I get sick. Does anyone...
Went today and bought alot of vita mineral water with lemon. I love the taste. Will be slacking off the pop and will be talking to the dr about a gluten-free, dairy free diet. Also will be cutting...
Thanks for the info. Will try keeping a food diary. I already have switched to decaf coffee and use Silk instead of milk. Now I need to stop drinking cola. So hard to give it up!...
Can wait to try the Acorn Squash Pudding. Looks and sounds yummy!...
Thanks for the welcome /community/emoticons/smile.gif The CLL is steadily getting worse, but I am on the wait and see. No treatment as of yet. I go to the dr every 3-4 months to have my wbc checked....
Just a quick hello to everyone. Reading thru the forum and getting excellent information about Crohn's. I was diagnosed with CLL in 2009 and with Crohn's March of this year. I havent seen anyone...
Im a newbie here and saw the topic Crohn's and immune. Just diagnosed in March 2012, been having trouble for 3 years. I also have CLL (Chronic Lymphocystic Leukemia), Fibro, and Chronic Fatigue. I am...