Canada is pretty awesome...
Will let everyone know. It is a good story for sure...
I will be moving to Canada when I retire(2.5 yrs) or hopefully sooner. She has small kids and mine are pretty much grown so best option. She lives in Saskatchewan in a small town called Melfort...
Have not been around here much. Met a crohnie who lives in Canada and we are engaged. I fly there from Texas a lot. I just started to have to do my entyvio infusion at home due to a change in my...
No did not work. I am doing well on entyvio though...
Been on entyvio for over 2 years. I do every 4 weeks. I am pushing it to 6 weeks now and hope to get it back to every 8 weeks. It's the only drug that ever helped me. I stopped with the Tylenol and...
just find a compounding pharmacy...
Vega One All in One Nutritional Shake is what I drink now. Plant based with no soy and no Gluten...
i probably had 6 doses before it kicked in...
i do entyvio every 4 weeks. may be worth a shot...
Thanks. I'm gonna hold off on it...
Not sure how fast they could rise. Mine spiked very high in a matter of days. Just something to consider. My GI back then didn't believe it was the Imuran but as soon as I stopped the liver numbers...
Did they check your liver numbers. Imuran almost killed my liver...
I'm doing every 4 weeks. If I go more than 5 symptoms start returning...
Been busy and doing fairly well. Met an amazing woman with Crohns in a Facebook group and now we are engaged. She has been educating me on nutrition and supplements to help. I really just don't like...
So been on entyvio over a year. No remission but I'm doing ok and functioning well. My gi wants to add methotrexate now. Says the pill form will keep me from developing antibodies to Entyvio or I can...
Ok so currently 8 am doing entyvio every 4 weeks. I'm still bleeding daily and have urgency issues. Gi wants me to start Uceris and Methotrexate. Any thoughts. Not a Mtx fan and only tried Uceris 1...
I can do the mesalimine enemas no problem. These are tacrolimus enemas. Had to be custom compounded. It burns pretty much. I will try some hyoscyamine sulfate which I have for cramping. I've never...
lol. trust me its all the way in there...
These tacrolimus enemas are just not staying. Maybe 10 minutes then they gotta go. Never had problems with enemas b4. Any tips on how I can retain these enemas longer?...
So been doing these for several days and it has not gotten any easier. It just burns like fire in there. I am lucky to hold it in for 15 minutes the I spend the next thirty on the can. I just don't...
thanks subduedjoy...
It's mostly in the Rectum and descending colon. The rest is not bad. I just upped Entyvio to every 4 weeks also so maybe that will help. If not I'm not sure what options I have. I've been through all...
bad as in sever crohn's with lots of ulcerations. I bleed a lot. Just hoping it will be enough to get the meds over the hump. An assist. I never think supplements and diet alone would help me...
Shop around. I tried 3 compound pharmacies and found very different prices. I got 14 enemas for 190 dollars...
Entyvio is up to every 4 weeks now and I am still in bad shape according to my last colonoscopy. That's all I take besides the enemas which I just started(like liquid fire up my rear by the way). My...
Ok so I'm on entyvio and now adding tacrolimus enemas. In addition I've decided to go Gluten and dairy free as well as add a lot of supplements. The idea is to just go all in to get to remission....
No one said anything about blood test to me...
I know I don't come here as often as I used to but it's nice to see familiar faces and I know there is a wealth of information here. Yall need to see my almost completed full sleeve tattoo I think....
Not coming up till July 17th or we might. Sounds like fun...
Lol no I have a girl friend in the Saskatoon area. She has crohn's also. I try to go visit once a month :)...
My gi had previously recommended cyclosporine enemas. I think she wants the enemas so they get a little higher up in my colon...
These are custom compounded though so not sure how they will be labeled...
So my super expensive enemas need to fly to Canada with me. Whats the best way to get them there. I mean I can't take that much liquid in a carry on(I'll need 7 bottles)....
Ok been on Entyvio quite a while and can't quite get remission. Bad spot close to rectum. GI wants me to do Tacrolimus enemas. Has to be compounded at compound pharmacy. I can't find much info at all...
No never tried those enemas. I just had a colonoscopy and this is the new treatment they want me to try. I was very sore after the colonoscopy though and they thought I might have a tear in my colon....
We shall see. I'm trying to avoid these as they sound harsh. However if they could put me in remission finally it might be worth it....
I can only find studies on it as an enema. That is what it reads in my follow up paperwork from my last visit though. Not much left I have not tried so maybe my GI is wanting to try something cutting...
That has been suggested as a possible add on for my entyvio treatment. The mesalimine enemas or cort suppositories have not helped clear up my stubborn area near my rectum. Anyone ever done the...
Plenty of help here. So I hope you feel welcome and stick around...
The thing is that cheap and healthy for most people does not work for a lot of people with UC. Lettuce, fresh veggies, celery, onions ect! Many of us can not eat that at all. That's not saying she...
I think it is definitely easy to not be able to afford to eat healthy. Some people are poor and often times yes working multiple jobs and such does not allow one to spend a lot of time cooking. That...
I drink them with no issues. I have also met some people who drank only ensure for like 2 months and swore it put hem in remission since it "rested the gut". Not sure I believe that though. All you...
The real trick if figuring what foods give YOU problems. Everyone is different. There is no specific diet that works for everyone with UC. Things that are healthy for normal people like fresh fruits...
I hardly ever have any pain even when in a super bad flare. I'd just consider myself lucky to not be having the pain...
Had my 6th or 7th dose a few weeks ago. It has gotten me off of Pred and also I have not missed any work in 6 months. I am not in remission and still have some blood. I go anywhere from 4 to 8 times...
Lot of people start of diagnosed with UC then later it is switched to Crohn's. That happened to me as well...
I have had 6 or 7 doses so far. I am still just maintaining. Still have a stubborn area by my rectum that won't heal up. Still going 6 times a day with blood often. I am doing hydrocort suppositories...
Pathology report came back Hashimotos disease. Not sure where to go from here...