That sounds like an entirely reasonable approach. Good luck with the surgery and keep us updated....
What type of microscopic colitis do you have? There are two main types: lymphocytic and collagenous. Microscopic colitis is most commonly diagnosed in middle-aged women. For some, it flares only...
When I suggested a university/academic hospital, I was suggesting one that has a dedicated IBD specialty team. Not all do. Many GIs treat IBD along with countless other gastro diseases, but only a...
Happy to hear your NP discussion is consistent with what you're reading here. I would make the choice based in part on whether or not you have other health problems or family history or risks. All of...
The risk would be if you accidentally swallowed some (or a lot), and the risk would be to your esophagus and to your stomach. It's not going to make it intact all the way to your colon and it's not...
A few comments: It's well known that some people with IBD respond positively to certain antibiotics. But it's only a temporary effect. Antibiotics do not work as a long term treatment. The thing is,...
Regarding combo therapy with an anti-TNF like Remicade or Humira along with imuran/6mp, the combination is a little more effective than anti-TNF monotherapy. It's not a huge difference but it can...
Yes, going by the colonoscopy results of 2022. That looked bad, and serves as a baseline for what you're deaing with. I don't see what the hydrogen peroxide has to do with this at all. I think you're...
Yes, you are correct that symptoms don't always correlate well with disease activity. Sometimes mild disease can have lots of symptoms, and sometimes major disease activity has minor symptoms. It...
This is a generalization and probably over-simplification, but what I've learned at conferences is that Entyvio is a really good med for UC, but for Crohn's it's less wonderful. It has FDA approval...
Also, I'm actually a little surprised that the Prometheus results came back with "Pattern Not Consistent with IBD." Of course, I don't know their precise algorithm, but your results show several...
Thanks for sharing the results. If I were you, I'd seek out an IBD specialty center in your area, perhaps at a university hospital or at a hospital in a large city nearby. Then probably get another...
https://sciencebasedmedicine.org/earthing-update/...
For the most recent images, it looks like the first three images are for the 2022 colonoscopy; the fourth image is for the 2023 sigmoidoscopy; and the fifth image is the Prometheus Test. (That means...
Try this: https://www.dropbox.com/scl/fo/1h52buq3op4b7l47h1h1u/AMkMcQB0kYuYujOedPTLhm0?rlkey=hj58v5q7sbgfqzgii9zahnmh8&st=3gern57e&dl=0rl...
OK, I can see those biopsy results. Can you also post the scope results (don't need to see the pictures, just the text describing what was seen, but you can post the pictures too if you want)?...
We don't need to see pictures of the pictures taken during your scope. What people are asking for is the written part of the scope results and the written part of the biopsy report....
You'll probably need to type them out. That's what others have done when sharing results....
Oh boy, a few articles written by naturapaths and published in low-level journals or pay-to-publish journals....
The "science."...
It's an S1-P receptor modulator, in the same class as Zeposia (ozanimod). They prevent certain leukocytes from leaving lymph nodes and entering blood circulation, thus preventing them from ever...
They request this because some supplements can increase risk of bleeding (for example, fish oil), and some supplements can cause colored staining that can look abnormal on the scope. I doubt any of...
And here is an article on Stelara and extra intestinal manifestations of IBD: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10636694/...
There are different types of joint issues associated with IBD, some tend to flare when the IBD flares and some tend to be more independent of whether or not the IBD is flaring. Different drugs are...
Cortiment is the brand name. Budesonide is the scientific name for the steroid in Cortiment. As I stated earlier, I agree that avoiding steroids is a good goal. But occasional steroid use is low...
Hi Natasha, there seems to be some confusion with what your nurse said or how you heard it. There are risks from long term steroid use, but it's not cancer that is the concern. It's other things like...
Stelara is an IL-12 and IL-23 inhibitor. Mirikizumab is a more targeted inhibitor of IL-23 only. Risankizumab is also a more targeted IL-23 inhibitor. There are some studies showing the targeted...
No, it's infliximab, not Humira. Infliximab has recently been approved as a self-injection. The advantages over the infusions are convenience for you and cost for your insurance (not having to pay an...
^So you're disregarding all the genetic studies that have found over 150 gene mutations that increase susceptibility to developing Crohn's disease? The studies showing that for monozygotic/identical...
ANA can go from positive to negative, from negative to positive, etc. It can go up and down too, while staying positive but varying in levels. It can be positive for a lot of reasons, including...
A Google search of "ulcerative colitis men women" shows multiple studies, with some saying prevalence is about the same, others showing slightly more men than women, and others specifying that rates...
At the conferences I've attended, they've presented data showing it's fairly close to an even split for IBD overall. Yes, there might be a mild preponderance for males and UC and for females with...
Keep in mind that rates for IBD are about the same for women and men. This applies more to the group of diseases that includes lupus, rheumatoid arthritis, sjogren's, etc....
Pentasa - just like any other mesalamine - was never approved for Crohn's disease at all. The mesalamines were FDA approved for mild to moderate ulcerative colitis. Based on that, many...
He's right that the data shows very little or no benefit of pentasa (or any other mesalamine medications) in the treatment of Crohn's disease. You have probably done fairly well because your Crohn's...
Are they changing your diagnosis from Crohn's to UC or are they saying that you have both? What has led them to change their thinking?...
It varies from person to person. For me, it doesn't do anything unless I take it several nights in a row - and in that case it doesn't force a bowel movement, it just makes things a lot easier to...
I had a lot of headaches after the initial infusion/loading dose of Stelara. But they were in my forehead only, not my neck. They weren't much different from headaches I've always gotten, just a lot...
The following are generalizations but are based on data: 1. For a person with UC who gets no response from an anti-TNF like Humira, the odds of Entyvio working aren't very good. 2. For a person with...
What corticosteroid did you try? What dose and for how long? Did it help partially or not at all?...
Do you have a copy of the biopsy report that led your doctor to conclude this is UC and not Crohn's disease?...
What medicine did you take for the parasite? Is there any evidence the parasite remains? Did you respond at all to Humira? Partial response?...
I don't have personal experience to share, but low stool elastase can happen as a result of IBD-related diarrhea (ie, it's kind of a false positive), but it can also be a real positive. Sometimes IBD...
Pretty often on here I've found on here that I disagree with a GI's treatment plan or something the GI says. But in this case I pretty much agree with your GI's assessment and plan. I think this is...
Interesting. I'd say this is more evidence to suspect Crohn's disease, to get an indictment, and even enough to put it on trial, but is it enough to convict? Hard to say. A biopsy of that area would...
Ah, ok, I see. I'm in California too but not on Kaiser. My girlfriend is though, so I kind of know how they work in house. You might be able to get the test done and work with Prometheus to pay your...
Yeah, I think that's a reasonable approach. Hopefully you continue to improve and this never becomes an issue again. But if it does, you'll have a pretty good idea what testing to do. Did you ask...
Thanks for letting us know that the MRE came back clear. That's good - but also a bit frustrating I'm sure. How are your symptoms lately? For what it's worth, I was feeling fine when I had the...
Haha, I meant that the original post in this thread has been edited. IAC's post first said that Dr. Pravda himself had been banned from this forum, and that is what I was responding to when I said it...
Sorry clo, I wasn't clear. My response was meant for the original post. And now the original post has been edited....