My dr has tried me on every medication but humira and now wants me to try Cimzia.It's a new drug for crohn's.Has anyone ever taken this?If so are you having any problems?...
Hello, I've been reading that medical marijuana can help with crohn's and in tests done it helped 90% of patients.Has anyone tried this? I haven't but anything that will help I want to know more....
HELLO, I have had crohn's for 15 years that I've known about it. I.ve tried every drug and am currently on the remicade and had 4 surgeries. I continue to have problems with diaherria and pain. I...
Hello,I have been on remicade for 6 years now and it is no longer working for me.My dr wants me to go on humira.Has anyone had bad experiences with this med? It sounds frightening.with the hair can...
Thank you all for the advice. I do have balled up muscles at the base of my neck that hurt really bad when I push on them. I will try this. There is a hotel the kids and I swim at in the winter that...
Hello,I am 45 years old and have crohn's disease as well as fibro. Does anyone have headaches that last for days with the muscle pain and what does your dr prescribe for it?My muscles are so tight in...
Hello,I was having a bad flare,but got double infusion of remicade and on 40 mg of predisone. But my stomach is still constantly after I try to eat anything growling and hurting, Does anyone else...
Thank you all for the advice,will try it...
Hello, I am having a bad flare and have went to the bathroom so much that now I think I have hemoroids. My bottom itches and is sooooo painful.What can I do? My gi called in cipro and flagyl already...
i have been on remicade for 2 years and have had bad headaches and no dr can fugure it out. I just deal with it. I went to rheumetologist and all. I had scan of brain they dont know. I take pain meds...
Hello everyone. I just had a colonoscopy and had swelling in my iliem, I spelled that wrong but anyway I get a infusion of remicade this week and am on 40 mg of predisone. Does anyone elses stomach...
Hello, My crohns is flaring again and I am on the remicade,but now my dr has me taking prednisone. 40 mg daily. I cant sleep but only an hour a night and not today at all and am still up. What can be...
Hello, I have crohn for11 years now and am on remicade. I also have fibro. I have tried not taking the pain meds like tylenol 3 and tramadol but am sooooo tired that i cant even go without it and...
hello, has anyone got headaches all the time from the fibro?Ihave very tight muscles in my neck and back it balls up and hurts terrible, then i get sick to my stomach.I go to a neurologist next week...
Hello everyone, i Had surgery again to fix my leak and the fistula. I had the first surgery in nov and had 4 jps then one. I also had to have a cyst on ny ovary drained and falliopian tube drained....
HELLO, i had my first surgery november 19th and am still not right. I had a leak in my intestine where they fixed it. That caused a fistula and 4 abcessess. It has been quite an ordeal. I had 4...
Hello, I am still hanging in there from my surgery in november. Remember i got a fistula and 4 abcesses after the surgery. I am down to one jp seton. I went to dr yesterday. He says i still have...
Hello, I have fiibro and restless leg syndrome, crohns. I just had a resection for the crohns. I was wondering if any one else has leg cramps so bad u can't sleep till u just are exhausted. My dr has...
Hello, I had surgery on the 19th of november, to remove part of my intestine. I then developed 4 abcesses and 1 fistula. I was told i have a small tear in my intestine also. They are hoping it will...
Hello, I'm still hanging in there. I went to dr yesterday and still have 1 drain in. My next appointment is in 2 weeks.The radiologist says the fistula is getting better and that i only need 1 drain...
Thank you Gail. He told me all 4 drains were connected inside so he said the other cavities looked good, but he still needs the one to drain or i would fill up with pus. There is about 60 cc a day...
Hello everyone. I went back to the surgeon and the radiologist today. I saw the surgeon first. He looks at my stomach and says everything looks and feels good. Remember i had 4 drains put in went...
Hello i got 1 drain out leaving 3. They didn't find anymore tk goodness. My whole front stomach hurts to where i have to walk slow and hunched over. I did notice this morning when i take 30 mg of...
Hello, I will tell him to look for fistulas with mri tomorrow. I just can't believeve the pain. I get up to go to bathroom and start sweating and get sick and dizzy then have to lay down. The drive...
Hello, yes they are doing them by ct scan. A radiologist is putting them in. They are jp drains. They haven't found anything other than the abcessess. I don't know why i have so many but they are...
I went to the dr yesterday and was in pain. He found another abcess. He put a drain in. I was at hospital all day. I now have 4 drains since my surgery a week ago. I can't believe i got all these and...
Hello, its saturday night, my surgery was a week ago last wed. I had gotten the 3 abcessess. I went home thanksgiving.I still have 2 drains in. It hurts really bad when i get to end of peeing. The dr...
. It is still real sore Hello it is the next day.The dr that did my ct and put the drains in came to see me this morning. I told him my surgeon was talking about letting me go home with the drains in...
1 was on left side of pelvis and the other was on right side and believe it or not the other was in back of right buttockcks but deeper by pelvis, Has anyone else ever got these absesses after...
Hello everyone, I am in the hospital right now from having surgery last wednesday. Today is the 25th. Thursday after the surgery I started to have abdominal pain. They kept acting like i was faking....
hELLO, tHANKS FOR THE ADVICE. i DEFINATELY WANT TO BE UNDER WHEN I HAVE THE SURGERY. i SEE MY SURGEON MONDAY IF I CAN WAIT THAT LONG. iT HURTS TO EVEN HAVE LIQUIDS RIGHT NOW....
Hello, I am 39 and looking at my first surgery. I have 3 areas that are partially blocked and on liquids now. I am nervous as to what pain this will be after surgery and how long it will take to get...
Hello, I was just recently out of the hospital with a partial blockage. They were able to get it undone without surgery, but every 5 months am in hospital. He put me on 60 mg of predisone and i take...
Hello, I was just recently in the hospital for a partial blockage. I haven't had to have surgery at all yet. I have had crohns for 7 years that i know of. They got my blockage undone with steroids,...
well, I really don't know much about the humira have you heard anything about it?...
Hello all, I was in hospital for 6 days with crohns flare. Luckily they was able to catch it before it blocked. I am taking 40 mg of predisone right now. Thursday i am going to go to drs to talk...
HELLO ALL, I have been taking aziothioprine for about 3 weeks now and have been extremely sick from it. I am in a real bad flare and trying to keep out of the hospital. My dr put me on predisone...
Hello, I have been having a flare for 2 months now. My dr started me out on 40mg predisone and 50 of aziothioprine. That was working so he started to taper me on the steroids. I got down to 10 mg of...
Thank you all for your input, I will give it a little more time with the headaches. As for the ulcers i have 3 already, but they are getting better. I seem to have a lot more hot flashes too....
Hello everyone, I just started taking azathioprine for about 2 weeks now. I have a terrible headache every day. I know it has got to be the medicine. However when i looked it up i don't see it as one...
Thanks brit for your reply, I was wondering if ulcers was a lot more common in someone with crohns. The pains I have are a lot like The crohns pains. I do not have the heartburn, Just the crampinf...
hello all, I went to my dr day and had an upper gi. He found i had swollen stomach and 3 ulcers. I have crohns in my small intestine. I was wondering if anyone also has ulcers. I don't have the...
Hello everyone. I am new to this sight and had a question. My mother has diabetes. She is visiting me right now. Whenever she does her sugar level i had her do mine. It is always low according to...