Oh my heart just breaks for you, I'm so sorry. I'm sorry about the added fears with the clots. It's hard when you are just sitting around worrying. Is there things you can do that you would enjoy to...
Hey there, I've had my stoma for several years now and I just wanted to share a suggestion that sometimes works for me. I still get that itching and burning sensation once in a while when I am not...
I just wanted to say you will be okay, ask for versed or something to help you relax. Talk to a counselor or someone there if that's available. I have gone under anesthesia twice this week and...
I had bad night sweats tapering off prednisone and I normally don't ever sweat so I think this is normal. Maybe check with your doctor just to make sure but tapering can be rough. Hang in there, I...
Another abscess junkie here, just can't seem to stay away from them 😩 I was diagnosed with ulcerative colitis nine years ago but my doctors now thinks it could be Crohn's. I've had a colectomy and...
Also the burning could be yeast related, maybe your nurse could take a look?...
I'm sorry you are miserable, I think we've all been there. I have to use a convex system too, otherwise I can't keep a good seal. I also swear by the Eakin seals, they are a lifesaver for me....
Thanks, better get strict about it again. I did feel great when i followed it 100%, but it is not easy. Especially when u don't feel well enough be making so much food. So glad you had great success...
My normal is probably 6-10 times over 24 hours. Pretty much just every time I pee. I empty more when I'm in public than at home because I'm more conscience of it showing. Maybe focus on chewing...
Hi all! I realize this is a really old thread, but I just wanted to ask if any of you had long-term success after dealing with a gracilis flap procedure? I had the surgery in January and it seemed to...
Thank you! My surgeon said that there are so many scar tissue pockets (I've had tons of surgeries and procedures) that normal bodily fluids can get trapped and if it gets trapped it becomes infected....
You could just use one of those squeeze bottles that they hospital cleaning perinatal wounds. The hydrogen peroxide I buy comes with a flip top That has a little hole in it that you can squeeze I...
Smd, I had my rectum removed and booty closed up two years ago. I always had slight pain when sitting that never really went away. I didn't do anything about it and after about a year it started...
When I had a new ostomy I had a bit of a problem with too much output. You can get dehydrated if it's too watery for too long. I had to use a product called questran two picking things up but that...
Hey guys! I've been using an antibacterial soap to clean around my stoma in the shower, but I'd rather use one that is not "antibacterial" if possible. I know you don't want a soap with oils, etc,...
Add me to the list! I haven't been on this site much but iIve been dealing with two pyoderma holes since last summer. I'm happy to say they are both finally healing up. One is on my scar where all my...
hi all, diagnosed with uc about 5 years ago, i had my subtotal colectomy almost 3 years ago. recently got pregnant and miscarried, which forced me into a flare. i know i'm flaring because of my high...
haha! that's cloroform! it's totally different:) chlorophyll is what helps give plants their green color....
thanks guys! i have cbc's fairly regularly and all i ever look at is my SED rate, which is high right now. think i'm flaring. have the nodules on my knees that kill and back and neck pain. at least...
because we can't absorb as much as people without pouches, are we permenantly deficient in some things now? i've done lots of research and can't find any info? anyone talk to their docs about this? i...
i have the best solution that i just discovered. i was always paranoid too! so get some chlorophyll (either liquid or capsules) the more potent the less you have to take. it's good for you anyway...
thanks gals, i did get the hysteo-whatever-gram to see if my tubes were blocked and they aren't so that was a relief. littlE, do you already have a baby or no? justjenjen, i'm so uneducated, i don't...
is there anyone else having a hard time getting pregnant after ileostomy? i had an emergency total colectomy during my 2nd trimester of my first (and only pregnancy) and now have a beautiful 2 year...
i use hydrogen peroxide too, it's cheap and works well. and i rinse the bag with water here and there and it seems to help. i feel like the first couple days i don't have any problem with odor, then...
yep, they are in juniors sizes. i usually wear a 2 in gap, old navy, etc. and got a 5 in the jolt jeans. so i think juniors sizes run smaller. the longer shorts look cute, the ones at nordstrom were...
we're currently trying right now. i got my colon taken out during the 2nd trimester of my first pregnancy. my docs say that i shouldn't have trouble conceiving again, i hope not... i had issues with...
okay, that's the problem. i can't find a pic online even on the nordstrom site where i got them YESTERDAY! arg! here's a link to the shorts, but you can't even see the waist so it's sorta pointless....
i just found some jeans that are perfect for ostomates! they're called 'the lounge act' by Jolt. i tried looking for a link online to show what they look like, but couldn't find them. i think they...
i use the glad press and seal too, just tape it on top. still get's a little wet but not too bad, then just let air dry or blow dry if i'm in a hurry! sometimes i don't use anything to cover it, like...
i've gotten several massages and never had an issue because when you are on your back they have your front covered up and when you're on you stomach, they can't really see it. if they've ever said...
oh my gosh, good luck!! you'll feel so much better soon i promise! saying a little prayer for you!...
another 'planes, trains, & automobiles' fan here. i love the office, 24, and a bunch of reality crap that i'm too embarrassed to admit. movies, i like indie films, comedy, zombie, mobster and...
i would get some tight wife-beater tank-tops (sorry, i don't know what else to call them!) to keep your pouch close to your body under shirts....
hey, thanks for asking, we're doing great. our little guy is 6 1/2 months already and we're going to start trying for #2 soon! people think we're crazy after all the drama we had, but life is going...
i got my ileo during an emergency surgery due to a perferated colon during my 2nd trimester. it was touch and go but we did fine and i have a beautiful baby boy now. my doc said that we should be...
i try using the search and it NEVER works for me. i'll try something like holister and it only says 1 match in all of history or something crazy. am i doing something wrong? help!...
i live in washington state...
hey angela, i was pregnant when i had my ileo surgery and it was a pain, but worked out fine. i did have some issues finding a good seal but i had never had a bag before so i think i would have had...
wow, we have very similar journeys as far as when we were sick and the whole 'ruptured colon' deal. glad you are feeling better and ready to start biking. i have bike shorts that i wear under baggier...
i just saw that part! i wish we could know if there were any celebs that were ostomates. does anyone know of any?...
where did you hear that? i just flipped on 'celebrity apprentice' and he's on it. i like him even more now, seems like a good guy even though i'm not much of a country music fan....
thanks guys! things are going great, just adjusting to the lack of sleep and the pain of breastfeeding but i couldn't be happier (even though i'm an emotional wreck with these hormones!). jonas is...
ash~ ooh, how exciting- september is going to be action-packed:) i'm so happy for you, you have lots to look forward too! so here's the update: i ended up having a c-section on the 6th because my...
ash, that is such a cool idea and i think it's brave of you to go. i think stuff like that is hard but also healing and is a great way to remember and honor your little girls. allow yourself to feel...
how exciting that you got your wedding bands, makes it all the more 'real' huh? congrats! and house hunting is so fun, even though it can also be stressful. hopefully the market is as great there as...
hey ash, thanks for checking up on me. i've been doing really good, getting out of the house as much as possible for the next 21 days because i know i'll be home-bound for a while after the little...
hope it works for you too! oh, also i'm sure you've heard all this but other tips: avoid sugar/sweets at night as well as huge meals, read before bed instead of tv, don't work out too late during the...
i've had to gain weight having uc in the past and here's what worked for me. don't be afraid of fat, it's not all bad and eating stuff with good fats won't make you flabby. just have real fat, not...
TPN stands for total parenteral nutrition and it's a mix made up for you depending on what you need that provides calories, protein, sodium, fat, vitamins, etc. so that people who can't eat for...
i had difficulty sleeping after my surgery for the first month and a half or so. the ambien didn't work for me, it would help me fall asleep but i would wake up an hour or so later wide awake. i hate...