Hi gumby44, Thank you for the advice! I'm 35, been diagnosed for 8 years. I am able to go very long stretches where I feel great and I can eat just about anything, so I don't feel like I'm even sick...
So, after my hospital stay a few weeks ago, I have generally been doing fine. Small amount of pain here and there, but I'm eating mostly normally (although nothing raw). I had my follow up with my GI...
No abcess on ct, bloodwork showed slightly elevated white count with elevated proportion of bands. Otherwise cbc and cmp were totally normal. My last dose of tylenol was 13 hrs ago and the fever...
I had an episode of cramping abdominal pain friday night, which happens maybe once or twice a year and my GI lets me ride it out at home. I go to clear liquids, start cipro, and the pain usually...
I'm what I would classify as marginally controlled and my GI wants a colonoscopy at every 3 years, and an MRI enteroscopy at least once a year (sometimes twice). I had a LOT of procedures in the...
Just my non-professional but longtime Crohnie opinion, as someone who has been on biologics for 3 years, if you're feeling ill, wait a day or two to take your shot to see how it turns out. If it's...
I was on Cimzia for 2 1/2 years. My Dr. starting finding microscopic evidence of increased disease activity recently, even though my symptoms were (mostly) controlled. I was starting to have pain (my...
Well, it's official. Switching to Humira on Sunday. When I got the starter pack I was pretty surprised to see a quadruple dose for the first loading dose! With Cimzia it was dosed more frequently at...
Has anyone made the switch from Cimzia to Humira? Cimzia was my first biologic, and it worked well for almost 2 years but has started fading. She's considering switching me to Humira because she is...
Yes, I was diagnosed with Crohn's in 2006. I had a pretty typical presentation, with inflammation in the terminal ileum and first part of the colon. My colon has cleared up over the years, but the...
Antibiotics have always messed with me in one way or another, don't feel bad! I've only been put on Augmentin one time but apparently it wasn't the right drug for my situation (or strong enough),...
I stayed on Entocort for about 3 years before finally moving onto Cimzia. I would do 6 weeks at 9mg, then go down to 6mg. My Dr. said I could stay on 6mg indefinitely as long as I was feeling good,...
I agree that a hypersensitive reaction to Remicade shouldn't necessarily preclude her from other biologics. They are the same class, but they are all made in somewhat different ways. Remicade was the...
Congratulations!!! My husband and I are about to start trying for our first, and stories like yours make me feel so much better about going for it!...
Propofol is fantastic! I wouldn't agree to a scope again any other way. It does make me a little loopy for an hour or so after I wake up, and I usually feel like going straight home to nap afterwards...
Has anyone here done a second loading dose of a biologic? I have been on Cimzia for almost 2 years now with great success, however I am starting to experience issues in what I now term my "danger...
Ultimately this is up to you and your partner, and there are plenty of ways to reduce the risk of transmission...but, I can speak to what I am guessing is your "worst case scenario," which is that...
I am on Cimzia (basically the same thing as humira, give or take) and my Dr. requires that I get bloodwork done every 3 months. I have CBC, CMP, SedRate, and CRP done each time. Every 6 months she...
Anyone have these? My electrolytes are fine, Vit D is bargain basement low, but other than that my vitamin levels look fine. The twitches existed before, but seem to have gotten worse since I started...
Just my opinion, too, but I'm also on Cimzia, and PLEASE call your doctor. My GI (who is fantastic, thankfully) told me one important thing before going on this drug: No sickness, problem, or...
Entocort worked really well for me for a few years. Eventually the disease outgrew it and I had to move onto stronger meds, but it's definitely worth a shot. I had absolutely no side effects at all...
Has anyone ever experienced this? I did my second set of shots yesterday. My first set 2 weeks ago went without incident, no noticable side effects. Yesterday I did my second set of shots, and about...
I have had 3 partial obstructions, all in the past year. The first time, I was on my honeymoon in the Bahamas and I had NO idea what was going on. Then one a couple months ago, and one last week....
I just gave myself my first Cimzia injection this afternoon, with a nurse's guidance. I was really freaked out about it, but honestly it was very easy. The needle hurt a tiny bit when I did the first...
I get partial obstructions occasionally where my stricture is located. Whenever this happens, I get terrible nausea and sometimes vomiting. If the nausea is always associated with cramping stomach...
I've had 2 CT scans, one in the ER a couple years ago for acute pain and abdominal distention, and recently a CT Enterography after a long weekend of pain caused by a partial bowel obstruction. When...
So, I've been diagnosed with Crohn's for over 5 years, went from Pentasa, to Entocort, and now my doc tells me the biologics are the only good option left. I just got married, and want kids in the...
I recently finished a 10 day course of Cipro and Flagyl for a flare, and at the same time my doctor put me on Entocort. This morning I woke up with that most lovely of antibiotic side effects, a...
Have you had a CBC done lately? How low is your hemoglobin? I was having crushing headaches every day, usually in the afternoon, but I thought it was just stress from my job. Then they ran my CBC and...
My response is also may be a bit graphic for some, so please skip if offended. I've had the surgical variety and I barely bled at all. I think it really varies from person to person. I was not very...
Hives are itchy raised circles (welts), for me usually on a background of red skin...although sometimes the skin is red without the raised patches once the welts start to subside, and occasionally...
Well I decided to take a little of both approach here. I filled the Rx for the Medrol and I bought some zyrtec. I took the zyrtec last night around 6, and I woke up today without a hive on me. If...
My general doc could only come up with "well I guess you must be allergic to something" and gave me a prescripton for a Medrol dosepak. I've avoided steroids to this point with the Crohn's, and I'm...
Over the past 3 days, I've been battling recurrent bouts of very severe hives. Monday night, I broke out on my trunk and arms. I took some benadryl and it went away by the time I woke up Tuesday. I...
Has anyone ever had a really annoying itching sensation all over associated with their Crohn's? I have had the sensation all week, in random spots all over my body, but most often and most severly on...
So I talked to my GI doc and she thinks the symptoms are just a bacterial overgrowth, so she's putting me on antibiotics. I've read on here that probiotics work well too for bacterial...
I have pretty mild Crohn's and it doesn't bother me very much, however this week I've been having symptoms that are worrying me. My disease is mostly located in the last 8 inches of my ileum, and...
So I saw my pdoc yesterday, and after discussing with him some of the weird depersonalization, washed out, depressed kind of feelings I've been having all of a sudden, he concluded that the ativan...
I threw out my neck/shoulder last night and I'm in a lot of pain. I have some Flexeril left from when I hurt my back awhile ago, but I haven't taken any since I've been on the Ativan. I'm only taking...
You know you're a mess when concerns about your anxiety med are causing you more anxiety, right? /community/emoticons/smile.gif Thanks for the warm welcome. I'll definitely keep posting. I'm pretty...
I took my regular dose last night as the on-call doc recommended, but I'm not enjoying how I feel today again. Something isn't sitting well with me with this medicine. I slept fine, but I just feel...
I've been here for awhile on the Crohn's forum, but this is my first anxiety post. I've suffered with anxiety for most of my life, but it became bad enough over the past year that I finally decided...