Hey Mom2Times--just checking in to see how your son is doing since he's similar to mine. We see the doctor next week so no new news on this end. Let me know......
Thanks all. The doctor had us take him off Prevacid for a couple weeks and had him retested. His fcp level is now less than half of what it was. Still not in the normal range but going in the right...
Eva Lou: Sorry you are going through this. My 11 y.o. son was also diagnosed this year with Crohn's. He, too, is on Pentasa and Prevacid (and Omega 3 and multivitamin). Waiting on newest fecal...
Glad to hear the Pentasa is working for you. One day at a time. My son's fecal calprotectin wasn't good so we took him off the Prevacid (per doctor's orders) and will then test him again to see if...
Eridon: He's on Prevacid which I think is a PPI. So you're saying it's possible that taking PPI will result in an elevated fcp? I'll ask the GI on Monday and greatly appreciate the information....
His colonoscopy was just a few months ago. Everything has been improving since he's been on medication and at our last GI visit--about 15 days ago--she said everything looked great and to see her in...
Looking for input.... Last visit with my son at the GI was great--normal blood-work (everything in range--SED, CRP, etc.), no symptoms (ulcers, rashes, blood in poop, etc), he's gaining weight and a...
Mom2Times: Just received the latest bloodwork--other than low glucose (a fluke) and a slightly elevated RDW--everything else was Normal! Telling you this as there is hope for going the slow and...
Hi there--sorry for the delay in response. We saw Dr. Flick at CHOP as our second opinion. He felt we should go with something a bit stronger IF three things were a present--unimproved bloodwork, he...
My son is the same as yours. 11 y.o. and recently diagnosed with mild Crohn's as well. Our GI is from DuPont and we got a second opinion at CHOP (and yes, had all the tests you can imagine). I've...
I just joined this forum recently as my son was just diagnosed with Crohn's (11 y.o., 62lbs, ~53in.) which sounds similar to your child. I wish you as much support as possible in getting all your...
Kazbern Thanks for the input. I will research Entocort v. Prednisone as I definitely don't want to stunt his growth. The bone scan came back normal which is good and the doctor says that shows he...
Just a quick question to this group. My 11 y.o. son had his MRE recently which showed the last 15cm (5.9in) of his small intestine was inflamed. He's currently on Pentasa (after having...
He's feeling much better and has gained over 2 pounds in 2 weeks which for his size is great. I guess I just don't want him to be on a biologic this soon for the rest of his life. But, we'll take one...
No NSAIDS. Nothing but vitamins. And yes, strong meds would be good if it helps-just prefer not to have him on that forever... Hoping for a cure or better treatment in his lifetime. Thanks for your...
The dr gave us pictures from the scopes of the "bad" areas. Minor ulcers scattered throughout his digestive tract. No other issues like fissures or blockages. Colon/rectum is fine, esophagus other...
Crohn's is confirmed via the scopes. Mild apparently but still worries me terribly especially since the blood work done after being on Pentasa for 2 weeks shows no changes in his inflammation levels...
My son was dx with Crohn's a few weeks ago and confirmed with endoscopy/colonoscopy. He's been on Pentasa for 2 weeks and the GI had him get blood tests done which showed no change in his...
Thank you both. I will check back after the tests are done. Your support is greatly appreciated....
Hi everyone--first time here and I'm hoping to get some feedback. I'll try to make this short. My son (almost 11 y.o) has not grown in height in a year. We took him to the doctor and his weight was...