Twigirl812 she is not bleeding and hasn't bled since July 2013. But somehow her blood levels drop. Yes is is around the sigmoid colon region but the doctor hasn't prescribed the meds you named. She...
My daughter is now on her 4th infusion.of entyvio...technically the first 3 are boosters....she is not happy...had a visit to doctor and he says let's give the 4th and then do a colonoscopy and see...
Thanks {{crohns}} for your advise..will definitely take another opinion... Achi1968..... Unlike some people on this thread, my daughter had her first infusion last week and will have one next...
My daughter just had her first infusion of this....going for second on Monday... She now is advised to stop all other meds except some vitamin pills Humira was able to control 80% but her lower colon...
The insurance company has just approved this drug for my daughter....she gets her first infusion on Monday........finger s crossed....hope this works!...
Thank you.....very important info...
Thanks for all the posts and advise....will speak to the doctor again....as well as the insurance provider... He said he has written back to the insurance... With regards to humira not working....it...
Well the insurance co has come back saying they won't approve vedolizumab... And wrote back to give her remicade instead..... Can they really do that? Isn't the doctor the best person to decide ? Is...
Ok...thanks for your inputs...my daughter is still not in remission...even after over 2 yrs...
So the doc called in and said the sigmoidoscopy confirmed his thinking abt humira not working...he has recommended this new drug for my daughter vedolizumab.... Heard and read thru this forum a lot...
Kazbern... How does that work? Sorry to be dumb but I am just learning.......
Thanks Julia Beave...she is already on immuran....even I think humira is working but not all the way..as PVT mentioned I am hoping that doc continues with humira but puts her on short term...
My daughter recently got her sigmoidoscopy done which confirmed that humira is not working which she was taking weekly. It has helped her stop bleeding and control bowel movements but since she...
I can understand whr ur boyfriend is coming from...my 20-yr daughter is diagnosed with crohns 2 yrs back... And not yet into remission... Due to which she has cut out from boys completely...she is so...
Thanks for all your posts...well the scope confirmed that humira is not working...doc yet to discuss future course...as well as checking the detailed blood report to know where the issue is...
Hmmm...ok....she is undergoing sigmoidoscopy today to determine if humira is working....doc don't think it is.... But no she doesn't have heavy periods...
Hello, My daughter is on humira for the last 1 year.....however, she needs regular iron infusion as her iron levels keep dropping...is it a common issue? In one of my earlier posts....there were...
My daughter is asked to do the same on 29th... And very similar reasons...chk inflation as they think humira not working...and to decide next course of meds.....glad that u got some resolution.......
I shall find out if Iron smart is available in US Thanks...
That's interesting..... Vegetable based!!! Any names? Shall know on 29th what's in the doc's mind...
Ok... Thanks... Have a sigmoid appt on 29th as doc wants to see n b sure b4 he changes meds...she does take vitamins..but no iron supplements as she constipates which again is not good for her...
My 20 yr old daughter has been di agonised with crohns 2 yrs back....and since then she has been on medication and doctors have still not said that she is in remission....she is on immuran, lialda...