Thank you both for the reply. I spoke to my GI at 8am, he told me that I have been through this so many times that he knows I know when it's time to go to the ER. He did tell me to start 40mg of...
It had been about 2 years since I had a significant GI bleed. I use to get them about every 2 months, but for some reason, about 2 years ago they stopped and I had a nice run of about 2 years where I...
Hello after a long absence from the forum. Over the past few months I have had a series of obstructive episodes, but all CAT, Colonoscopy, etc.. are showing very little to no inflammation and no...
I had a capsule stuck in my terminal ileum for almost a year this was in 2008 into 2009. x-rayed every few weeks to see if it came out, and it seemed to be floating around the terminal ileum...
I doubt it is the Tumeric as it is an anti inflammatory I have taken it for a while now. While I know side effects could be different for everybody, I would think that such a severe reaction so...
Lamprey If you have crohns, but a colonoscopy is "too uncomfortable" for you, you are going to have major issues. The depression comes when you feel like a victim of the disease and you do not take...
I take it weekly with no issues No different protocol for it either On the c.diff Typically, if you are taking a course of cup to or flagyl (I am taking both right now), you should be taking a...
Rays Mom As long as you do the Metobilism test, you should not have to worry about a bad reaction 6 MP has been a great drug for my crohns which has not responded to Humira, PEntasa, etc... Only...
Gumby I had the same issue about 10 months ago while recovering from a GI bleed Afterwards, the bleeding stopped, and my Hemoglibin and Hematocrit started comning up, but my heart was racing all the...
YOu may want to look into vedolizumab. Same as Tysabri without the risk of PML It is currently in Phase III trial and proving to be very effective...
Most people with Crohns suffer from Depressionand Anxiety, so you are not alone Here is the deal, even thinking of removing any part of your interstine is insane, even if it is out of frustration....
I agree, You should look to Cipro or Flagyl as first steps, I would thing surgery would be the last option when there are so many other effective solutions Also, I noticed you joined a crohns forum,...
You should try Iron Picolonate It is very easy to tolerate and does not constipate It worked miracles for me (brought my Hemoglobin from 7.5 to over 12 in about 6 weeks)...
Looking for insight here I am on 125mg of 6mp Weekly humira injections And 25mg prednisone daily Earlier this week I started feeling tightnrss in my upper chest (almost base of my throat). Went to a...
Remission lasted about a year for me, (Resection at terminal Ileum 21" in July 2005) - Started having obstructive issues in 2006 - Started GI bleeds in late 2007 and had to get 3 inches removed at...
To whoever is reading this I joined a CCFA webinar today on treatments and possible alternate therapies for Crohns and Colitis They had a 45 minute QA session at the end of the call, and although the...
Ok I just wanted to rule out obstructive episodes...
I hate to state the same thing as others, but why would your doctor stop the Pentasa and 6MP They are both very effective at treating the disease, and side effects are not "burning stomach" a few...
Agreed - Definitely Signs of Anemia - HAve the doctor order a quick CBC to see if you can rule out Anemia Good luck...
Have you had a CBC done lately I get the same cramps when I start to get GI bleeds (unseen bleeds as well) A CBC would let you know if you were anemic, or losing blood...
Guys Same thing for me here Humira is not working for me and I have had 2 severe GI bleeds in the past 6 months Doctor put me on 6MP 2 months ago and is weening me down from Prednisone - But old me...
Was the Blood Dark (like Marron Colored) or Bright Red? Also, was the stool liquid or solid If you have a large GI Bleed, the blood acts as a laxitive and you would tend to have a few bouts of Tarry...
I read about the GSK trial - That is an oral drug correct?...
I have a quick question on Tysabri I did a bunch of reading on the medication as my doctor feels that it may be the next best course of treatment for me as Humira does not seem to be working anymore...
Hello I went Gluten Free and processed Sugar Free about 8 months ago. (I have been LActose free for almost 15 years) I can certianly tell you that the sugar free was the biggest difference...
A quick question for anybody on the forum today about a slightly increase heartrate I am having I had a recent fairly significant GI bleed about 3 weeks ago my Hemoglobin count dropped to 9.1 and...
Unfortunately, it is definitely blood, Do you mean that Pred can cause an upper GI ulcer to bleed? Thanks...
People have been on much higher doses for much longer for treatment of certain types of cancers etc... I agree, on 40mg of pred, I went from 15 watery BM's a day, to one solid I have been tapering...
What kinds of meds are they putting him on for the inflammation in the upper and Lower GI The things I think you need to ask are a- is it active inflammation (which they can treat with Prednisone and...
Gumby44 You are correct, They tried capsule endoscopy in 2007, and it got stuck in there until my resection in 2008 where they retrieved it. I also believe that the bleed is high up in the small...
I just want to know if anybody else gets this Every few months or so, I will get an episode of blood in the stools It is black and tarry, and usually I lose about a pint of blood in these epsiodes (I...
Just needed to vent...
I had a standard scratch test, and had bloodwork to follow up...
Guys I have had Crohns for the past 15 years (iagnosed for 15 years probably had it since I was a teenager) - 2 re-sections in the past 7 years. Last week, I had a bleeding episode from the Small...
Guys Would love your insight as this is something I would love feedback on I had my last re-section over 4 years ago, and was feleing good (only one minor blockage issue) Today, at work, I went to...
Thank you all for the posts BEeSting, I am going to do some reading up on LDN so thank you so much for the info, Also, I am going to ask for a push enteroscopy, (baloon enteroscopy) to see if they...
Ok - So it has been 4 years since my last resection. (and about that long since I posted...sorry) I am a 37 year old Male, diagnosed at 23, but had stomach issues since I was 19 - I was resectioned...
CrohnieToo my Endocrinologist recommended against a biopsy of the nodule as this may cause a "Storm" So they are doing an Iodine test (2 day CAT test) to determine if the nodule is causing the hyper...
Guys Thanks for all the responses Always good to know that we are not alone in this Take care...
I was diagnosed last week with Hyperthyroidism My main symptom for the past 6 weeks has been a very painful neck (fron part right where the thyroid is) CAT scan and Ultrasound with blood work...
I am a longtime Crohns patient, with 2 resections, etc.. on Humira for 2 years Over the past 6 weeks, I have had severe pain on the right side of my neck, and have been short of breath with heart...
Ah Ha Finally explains it darn, I thought I was a pig Thanks for the post I will talk to my doctor about this...
Jen I used to be a professional football player, had Crohns through my career, and it really flared up afterward. I always felt that I was extremely strong, but after my first surgery, I ended up...
I have been on Humira for about 4 months now and have gained about 40 pounds That would be great 3 years ago when I was 160 pounds, but I have ballooned to 250lbs I work out 4 days a week (1 hour on...
Are you currently taking Iron supplements? That will definitely turn your stool very dark Take care...
Hey Sounds like it is at the distil end of the Large Intestines or in the Rectum Especially based on color, and the fact that it happens after you pass stool Could be a fissure, hemmeroid, or polyp....
Was the stool dark black or maroon and sludgey or bright red?...
I have had 5 transfusions and 2 episodes of bleeding over the past week. The doctors have scoped be top and bottom as far as they can go, and found only some minor ulceration in the terminal ileum. I...
Had my capsule endoscopy done 5 weeks ago, Still has not passed... xray confirms it is still in me Doctor says there are cases where it stays in for a whole year rare, but it happens See your Doc for...
Thanks for the note The massive bleeding stopped 4 weeks ago, but I have occult bleeding that has brought my iron count down to 7.8 and hematocrit to 25 I am going into the hospital tommorw for 2...