Hello, Just wondering what supplements you take for Crohns and what you have found helpful? I am especially wondering about women because I feel like being on steroids for so long has wreaked havoc...
I am. It's just more what if I go to a new doc and it's the same? He is willing to allow me to kind of- he told me I should just stop cold turkey and he has never heard of someone needing a slow...
Thanks for the replies! I am more concerned that my doctor doesn't understand... I just feel like I am out of options because searching for another doctor is difficult and even then sometimes...
I agree... i guess I'm just at a loss as this is the second doctor to tell me that and going to a new doctor is so time consuming. I feel stuck. I almost want to just not be honest with him and say...
I have been on prednisone for a year and a halg, starting at 30 mg. I'm now at 5mg and every time I try to go down, I get head aches and feel really tired or nauseous. My doctor says this isn'y...
The 6mp I take is mercaptopurine and on the bottle it says not to use if pregnant, which is why I am concerned. Thanks for your input everyone :)...
Hello all, I am currently on a low dose prednisone (hopefully stopping soon!), 6mp, and remicade. I worry getting pregnant would be dangerous because of these meds, but also worry about hormonal...
Probiotics are the only supplement I take where I've actually noticed them working. I'd especially take it if you're taking antibiotics, just make sure to take them at separate times....
Tomorrow I do my prep for colonoscopy. In the past, I was prescribed a different drug than Miralax and it made me feel terrible and bloated and didn't even start working until I tried to go to bed. I...
That sounds absolutely terrible. I'm sorry you dealt with all that! I would say don't give up hope and you're not alone! I was sic for four and a half years before I got my Crohns diagnosis. Tests...
I'd go to a doctor if the symptoms are really bothering you. There's always a possibility it's Crohns, but it doesn't sound likely. Fissures are extreme pain, that sounds more like hemorrhoids....
Thanks for the responses. So from your all experience it doesn't mean remicade isn't working? Just more dealing with withdraw from pred? That's what my hope is....
So because of insurance complications and all that I have been on prednisone for about a year and a half. Most of that time I was at about 20-30mg. I started remicade infusions about 5 months ago. I...
VS 3 Made me so sick. But if it works for him, that's great! Anyone with Crohn's really should take some probiotic. I've found it's the only supplement I noticed made a difference, it just took a...
So I have entocort, how do I go about using that and the prednisone as I taper? If that makes sense. What dosage would be the most beneficial? I am down to 7.5mg a day... but my symptoms are coming...
I have been steadily taking 20-30 mg of prednisone for a year and have had two remicade infusions so far. I am feeling a lot better, but everytime I go below 10mg of prednisone the diarrhea and pain...
I take one called Fusion Plus that my GI doc gave me. It has priobiotics, iron, folic acid, and other vitamins so it is meant to be easier on the stomach as other iron supplements gave me...
So I'm gonna finish my loading dose next week and after that I am wondering if it is better to take two shots monthly or do one every two weeks. Anyone have any experience with that? Also wondering...
I have tried to SCD diet off and on (being very strict when I was on) and found that it did not help me very much. That being said, I already was eating a pretty healthy diet. That's so wonderful it...
The best advice I would give for surviving is to get to know yourself/your illness. I feel sickest in the mornings, so I always give myself at least two hours for my stomach to do it's thing. There...
It took me 4 years of pain to be diagnosed, so I know how frustrating it can be. I would just say keep fighting for yourself. Find a doctor that works for you. I once had a doctor ask my mom if I was...
So I was diagnosed about two months ago and am currently on pred at 30 mg and taking 6mp. I was feeling great the first week of pred (i've been on it two weeks at this point), but now am feeling more...
I am very open about my stomach issues. I talk about poop with all my close friends because it's a huge part of my life & I'd like them to better understand what I'm going through. I don't tell them...
So I was recently diagnosed with Crohns and the first thing prescribed to me was Lialda. It did help, but not all the way. (I've noticed most people with Crohns need more than just a mesalamine, so I...
I have not been on antibiotics and have had stomach problems for about 4 years. Good to know it's not sounding like ulcerative colitis though. When I first starting have issues I had a nonspecific...
So I don't yet have an offical diagnosis but I just got finished with a colonoscopy and some of the results given in the paper to me mentioned multiple erosions in the terminal ileum and...
So I am getting a colonoscopy Wednesday and have lost the prescription for the Prep (it was Prepopik, which I've never used before) and was wondering if I should just do the Miralax/Dulcolax prep I...
If you put in the supp. just within the anus, about to the first knuckle, you'll be good. No need to spread the cheeks. I usually lie on my side right after for a bit and maybe clench to push it in...
As far as the infection goes, I can't exactly recall what the doc said as I was 17 at the time and not really paying attention, that is mainly what my mom tells me and she could possibly be...
This is my first post on here so bear with me... In 2012 I started having GI issues, starting with terrible constipation then lots of diarrhea. Went to GI doc and got a colonoscopy stating I had an...