I'm in the same boat as you. The meds aren't working for me either and entyvio is my next drug to try too. It's very frustrating but like you said, at least there is something to try. Sometimes...
it is hard but what else can we do but carry on? ((hugs)) to you and i hope your issues get better too...
They say I'm atypical because I guess I never present in a way that makes it easy to figure things out. And I'm usually not as symptomatic as my labs/diagnostic suggest. My labs I could have done...
So since last May I've been in a flare. We did steroids and of courses got better. Stopped steroids and labs went right back up. Increased humira to weekly and labs improved after 8 weeks. Now it's...
During this last flare I ended up having uveitis four times. I'd see the dr and he would give me prednisone eye drops and older the taper finished it would come back. Since being on entocort and...
While on humira with 6mp I was actually in remission and felt good. I stopped the 6mp because I wanted to try for a baby (the dr was aware) and by three months I started to flare. So while the humira...
There are some wipes that can be flushed. The ones I buy specifically say on the box that they are safe for septic systems and normal toilets too....
The end of this week makes six weeks on entocort and about three weeks on the 6mp. I think I feel a tiny bit better? I have to call my Gi on Friday because that's when she was going to taper me but I...
best of luck!...
I was only on entocort years and years ago when I had my first read (and bad) flare. Entocort did nothing and I was switched to prednisone. Which of course worked but i had all the side effects from...
My disease was all terminal ileum and right sided. That's where most of my pain is too. I'm on 100mg of 6mp and humira every two weeks. I had the Prometheus test done when we caught the flare and I...
sorry to always be posting questions. For awhile my disease was status quo but now it's just spiraled out of control. I've never had it like this so its all new to me. I've been flaring ever since I...
I used to not say anything about my crohns. Then I got sick and hospitalized where I work so my close friends, family and a few coworkers knew. Fast forward to last year and I had major surgery with...
Im on 3 pills a day and it has helped but didnt clear it completely. Ill be on this dose for at least another month so maybe it will do a little more. I hope this doesnt come back after I stop the...
I'm currently on Entocort so it's better than it was but not as good as my baseline or how it was with the prescription hydrocortisone. I don't need much hydrocortisone since it's located but I was...
I never had skin issues until recently and since crohns affects everything it's so hard to pin down what is doing what. Argh....
So since the end of May I've been flaring. I've had uveitis twice and had issues with the skin on my face, mainly around my nose, cracking and peeling, flaking and being Red and itchy. The seem told...
I know with humira they offer a payment assistance program. Does entyvio offer anything like that to help with the cost?...
I was schedule for a small bowel resection and had to do a two day bowel prep. When the surgeon Went in she saw it was going to be much more extensive of a surgery than she thought. She ended up...
Thats why i didnt think it was uveitis, I didnt have much pain and only minimal light sensitivity! Thankfully when I went to the eye dr he diagnosed it right away...
Hi there! I have crohn's and am a registered nurse . Do you have any specific questions on how you're afraid it may affect you? I know for me one of the biggest things I've had to deal with was...
Thanks all! It turns out that I have uveitis and it's assumed to be related to the crohn's. My inflammatory makers are elevated and I see the Gi tomorrow to see what my next step is. I've been suing...
hello again, Has anyone has the Prometheus blood test done to check for antibodies to the humira? I was on humira and 6mp but had stopped the 6mp in February in anticipation of trying for a family in...
I've had crohns for years now and never had an issue with my eyes. Back in March I had an eye infection and was prescribed tobradex. It seemed to clear things up. Ever since then I'd have issues with...
ive been on 6mp since i think nov of last year. i noticed my hair started falling out a few months after i was on it, but at the time i was on prednisone. ive been off the pred since may and my hair...
hi all, my migraines have gotten worse (usually 1-4/month) to now 4-8/month. so my doc today wanted to start me on low doses of pamelor at bedtime to help. i guess in higher doses they use this for...
thanks everyone for your help. i think it will end up with a 2nd opinion, which i wanted to get before i have kids. i like my current gi doc, but think going to another one in the city and a larger...
i guess mine sometimes get like that. but not real small, not small enough where i would think they would be snipped off in the office. ouch....
im thinking i have a skin tag too, but mine never shrink down to nothing. but ive had them long before i had serious syptoms with the crohns. grr. im glad i have this board, because honestly where...
and to think i thought i had my crohns figured out. *sigh* i guess its still going to come to a 2nd opinion before i let anyone cut me there....
hmm, this makes me think i have skin tags, but mine have never shrunk down to almost nothing. theyre just *there* but get worse with frequent bm's and d. boo on crohn's....
i would to, but here i was thinking for years now they were hemmies, and they might not be. so i guess im confused....
Thats good that the remicade makes such a difference. Im not sick enough to be on remicade, but Im considering before I even consider surgery that I should have a second opinion. It seems as if alot...
ok so another kinda sorta gross question. now the pics of the hemmies were round/oval and the tags looked like they had slits in them, like they were split in half. is this the main difference...
thank you all for you replies! i think before i consider surgery i am going to have someone confirm if theyre hemmies of if its a skin tag. as if crohns wasnt fun enough, we have these to deal with!...
thats what my fear is. when im having normal bms its not so bad, its only when i have horrible d that its really irritating. so when im ok, i wonder should i really even have it done, because like...
yes theyre hemorrhoids, i thought thats what they were all along, but the the gi doc confirmed it when i was scoped last year. mine never shrivel up, theyre the same size when theyre not irritated,...
hey all, quick embaressing question. i have 2 lg external hemorrhoids that can become really irritated when im have lots of d (ive had them for a long time). my ques is has anyone had a...