It's been a long time since I last spoke with you all. My son was diagnosed in 2006,at the age of 9. Three years of immuran was actually detrimental. Two years of diet held him steady, but not...
My son developed iritis and arthritis after being put on immuran. When he went off, it cleared up, within three weeks, and has never returned...
I just think that we should lose the catch all "Crohn's Disease". If doctors had to try to determine what was causing the inflammation instead of saying " Oh, you have Crohn's Disease, here's your...
I have been a member here for a few years, now. I know we all have theories or ideas of the causes(s) of crohns. My position, and I've voiced this before, is that it is more than one disease. In the...
Glad to see you're still kicking, Randy...
I dunno... sure sounds like an ad....
my son suffered from horrible arthritis in both hips as well as iritis in one eye. within days of taking him off of immuran, both cleared up. It's been six years, and no recurrence....
Who knows? When Zyban first came out, it was as an anti-psychotic....
My son developed iritus and arthritis while on immuran. Since stopping immuran, he's never had a recurrence....
When my son's GI suggested Remicaid, I did my homework and found the warnings about Lymphoma and Colon cancer. Then I saw that every case of Lymphoma involving Remicaid occurred when Remicaid was...
we found that while on immuran, our son suffered terribly with arthritis, and iritis. Within a couple of weeks of stopping immuran(7 years ago) all of that cleared up and has never recurred...
In most studies that I have seen, the most serious side effects, i.e. lymphoma, have been when Remicade was used in conjunction with another immuno-modulator. That is why we had our son off of...
Is your daughter on a multi-therapy? My son developed horrific joint pain, to the point that he couldn't walk, while on Immuran. He also developed Iritus. As soon as he stopped the immuran, both...
Just the word Lymphoma is scary. On topic, everything I've read concerning Lymphoma and Crohn's shows that it occurs when patients are on multi-therapy, remicade plus an immuno-suppressent like...
Keep us updated Randy. You never know, the cross over to crohn's may happen. All the best...
Mark thanks for the info. I will tuck this away for when the Remi stops(and it will stop, we know that)working. I have maintained,since my son first got sick, that Crohn's is not one disease, and...
Stollery IBD clinic in Edmonton now in clinical trials of antibiotics for minors on multi-therapy treatment. My boy was excluded because I refused to have him on immuran and Remicaide together....
After dealing with CD for 8.5 years, my son is moving to the adult IBD world. thanks for all the knowledge over the years. After the last 3.5 years on Remi, he has gone from 4'8" and 62lbs to 5'10"...
Are you taking anything with the remicaide? my son had terrible arthritis(at age 9-11) while on immuran. Once we took him off, the arthritis cleared up within 3 weeks...
It's good to hear that remi is helping, and we hope it keeps going for my boy. If I thought it was a cure, I'd be thrilled. I still start to worry if he's in the bathroom for any length of time....
The intended tone was one of options. These bacteria may very well cause crohns. We don't know yet. To dismiss the study outright is just plain stupid. Your tone got a little annoying too, when you...
wiki= realism The medical community moved on from autoimmune to innate immune deficiency years ago. Wiki sums it up: http://en.wikipedia.org/wiki/Crohn's_disease#Cause [/quote]...
Thank you for the profiling, NCOT. You were the one who said you were annoyed, not me. They were real to the people of the time, but thanks for proving your ignorance of my point. I'm not the one who...
Wasn't talking to you. But I'll bet you're the life of the party. I'm not being sarcastic either *wink* I have looked into anti-MAP therapy. Very hard to come by in Canada. It is being considered...
"More importantly, our study identified specific organisms that are abnormally increased or decreased in disease, which forms a blueprint to develop microbial therapeutics." "Specific" "blue print to...
Sorry, yes it is....
And you seem to need to be negative. you can devalue whatever you want. You're like the kid that's given a room full of toys and complains that they'll just break anyway, and I'm the kid in a room...
So, if it is the cause, let's celebrate. If it's not the cause, let's celebrate that a possible cause has been eliminated. How about, if it is secondary, but causes symptoms, symptoms that can be...
But they could?...
And by your tone, you believe that bad bacteria cannot be the cause of Crohn's? In my unsubstantiated opinion, it's that kind of closed minded thinking in the medical community that has retarded...
My son was on Immuran when he developed CRA. Within three weeks of stopping the Immuran, the arthritis went away. I'm not saying, I'm just saying...
If a hole through the heart, the size of a bullet is found on a dead body, but no bullet in the body, do you say that he victim died from a gun shot, a heart attack, or unexplained bleeding?...
http://www.sciencedaily.com/releases/2014/03/140312132617.htm I feel somewhat vindicated. Years ago, when I first joined the healing well, I voiced my opinion that Crohn's was caused by a bacteria,...
This is extremely encouraging information. Finally, the medical community is moving from "autoimmune" meaning"we have no idea the cause", to something tangible. It shouldn't be long before they come...
The possible side effects of these drugs are scarey. doin my research, I found that the worst side effects were present when remicaide was used in conjunction with other immunosuppressents. that is...
I agree with all of the above. my only addition is, although you will not be at a higher risk by being on meds, you may suffer more because of your compromised immune system. by the way, crabs aren't...
We never tapered my son's steroid eye drops. maybe, because it's not taken internally, it doesn't need to be. can't say for sure, but no side effects...
My boy developed Arthritis and Iritis while on immuran. For the Iritis, same idea, two types of drops, steroid, and lube. within two weeks of stopping immuran, both improved. within three months, no...
Our concern was cancer. Everything that I've read shows that terminal side effects only appear when remi is used in conjunction with other immunosuppresents. I know chances are slim but we are still...
It's been quite a while since I last posted. My boy has been thriving for the last 2 1/4 years on remicaide. Even though the symptoms have disappeared, I know the disease is still there. Remi only...
I think it was starting to help, but my son was in such bad shape that it was taking too long. Also, the MD that prescribed LDN told us to start him at .5 mg and gradually increase to 3mg. took too...
We found, in my son's case, Immuran was ineffectual. caused arthritis. also maybe iritis. Other than that,it was of no benefit for his Crohn's, and he was on it for two years...
congrats! I only wish we could have continued on the LDN. Maybe later...
My son experienced arthritis while on Immuran. within a week of stopping immuran, the pain went away, and never returned(4 years)...
I can't speak for Humira, but when my son was on Immuran, he developed terrible arthritis in his hips. He could barely walk. He also developed iritis. Both conditions were attributed to the Crohns,...
I have fallen into the same routine as most of us when things are going good. my boy has been thriving on Remi, so nothing to report. he hit the one year mark. 50% weight gain and growth of about 3...
My boy has been on Renicaide since January 18. the change is amazing. he has gained 28 lbs and grown about 3 inches. We have always worried about side effects. i have heard and read that people...
That is great news. I wish that we had held out for my son, but maybe we'll try again. The Doc we went to didn't know what to expect, so he started my boy at .5mg and increased by .5 bi-weekly. My...
It is my sons 3rd regular infusion today. January 18 he was 4'8" and 63 lbs. Today he is 5'1/2" and 87 lbs. As afraid as we are of the side effects, we can't argue with the results to date. He just...
my son started it in January. the only side effect he noticed was fatigue, most likely brought on by hours of boredom in the hospital...