Stevo, yes hopefully your pain is just from the surgery. I don't know how I live with the pain. Just moment to moment. I have extremely poor quality of life. the steroids take some of the...
Stevo68 how are you feeling? I have had unexplained extreme rectal pain for 2 years now. It's left me housebound and steroid dependent. I hope you found out what's causing your pain!...
I get mine on eBay. Cheapest I've found...
They come in 4 mg but they can be cut...
I'm so sorry you are going through this! What did your doctor suggest? My iron level was 13. Not sure what my hemoglobin level was.. They wanted me to take tons of over the counter iron, but I know...
I am going to do 1.5 mg. I think it will end up being easier that way. Thanks!...
Ok thanks! That's good to know. Also, how many did you do per day? I am doing 1x per night. I have severe pain so I was thinking maybe 2x per day would work better.....
I am on 2 mg medrol doing a slow taper. Should I do 2mg one day then 1 mg the next day or should I just cut the pills to 1.5mg and do that daily? My dr left it up to me......
My GI prescribed these for my rectal pain and I've used them a few nights. I don't want to get my hopes up too much but it seems like they may have helped a little.. Do they work more and more over...
Thanks for the replies! Christine, have tou found something that has worked for you? I have bad rectal inflammation and pain and no other symptoms...
I had an allergic reaction to Remicade. My GI wants me to try Entyvio. I am worried to try anything strong although I know something needs to be done for my crohn's.. Are there any studies that show...
I've been feeling really dizzy this evening. I haven't been feeling well all week and now the dizziness hit me. I'm hoping it's a stomach bug but I don't know. Keep us posted abstract!...
Hope the Entyvio helps Brian! Yes please keep us posted!...
Thanks for your reply! I took one after I posted and it did nothing I help my anxiety. I took another one this evening and nothing. I will talk to my dr in the morning. I like the idea it's non habit...
Hi! First time posting here. I am usually over on the Crohn's board. I have mild anxiety and my dr recently prescribed Buspar 5mg as needed. Does this sound right? Seems like a real low dose and I...
I have been tapering medrol and I'm at 2 mg for 2 days and 1 mg for a day and so on.. When I started this taper i developed a low grade fever. Other symptoms are fatigue, weakness, nausea and stomach...
I am also tapering off medrol... Don't know if that may have something to do with this...
No I don't know why I'm nauseous. I also have a low grade fever. It could be a number of things.. My mom had a stomach bug the other day so I may have caught that, I started Canasa suppositories so...
Thanks! Oh yeah I meant to say it's 4 mg...
I have been extremely nauseous today for some reason. I took a zofran at noon and felt a little better. it's now 4pm I feel really nauseous again. Bottle says take every 8 hours. Seems like you used...
So so sad :( it's all too common to be treated like we are faking or overreacting. Before I was dx in the hospital over 10 years ago and the docs couldn't figure out what was wrong with me, I was in...
Have you tried a microwaveable heating pad? That has been the only home remedy that has helped soothe rectal pain besides warm baths. Did your GI tell you why he wanted you to stop taking the...
My vitamin D was down to 11 a couple months ago! I started taking 2,000 emulsified vitamin D drops daily that I got from my chiropractor. I have also been sitting in the sun for 20 min every day. I...
That's awful you're feeling so bad :( good your dr will give you the Remi a little early. Do the steroid suppositories help? I want to try them but my colorectal surgeon said I can't use anything...
It's really freaking me out! I wanted to start vsl#3 because I've heard so many good things about it, but now I'm concerned...
Have you gotten your iron, vitamin D, and B-12 levels checked?...
I have been taking probiotics for awhile, but I wanted to start taking a stronger one so I started searching around online. And i came across several articles that state it is UNSAFE for immune...
Congratulations! He is precious! Thanks for sharing. It seems like just the other day you announced your pregnancy. Enjoy every moment :-)...
Hi, Sorry you are going though this. I know how it feels to start running out of options. I am super sensitive to meds and currently steroid dependent because of the reactions I've had to meds so I...
Ugh I hate when people say "but you look well"! And doctors should definitely know better. I always spruce up my appearance when I go to the doctor because when I go in there not spruced up, I am...
Try Nature value organic coconut water. You can order it on amazon...
Yes, I will be breaking out the pill box after this lol! I usually have a chart I mark off each day, but I ran out of monthly charts. My dr office never called back :-/ but I called the pharmacist...
I take 9mg Entocort and 4mg medrol daily. I've been on the Entocort since August. I THINK I might have forgotten my dose today! I took the medrol but I'm feeling pretty bad and out of it also. I put...
Good luck to with the Entyvio! Let us know how it goes. My dr wants me to try it but I have reactions to so many meds that I'm scared to try another strong one. Hope it works for you!...
That stinks! Since they changed the date on you, they should be able to call in the script in the meantime. That's a big difference. I would be very very upset! Do they have a cancellation list they...
From what I've heard, a cutting seton can be very painful when it's tightened. I have not had the cutting seton myself though. But I did fail the flap and plug surgeries. If the Crohn's is active,...
Placing a seton is not a surgery. It would take the surgeon about 10 min. I had mine replaced durning my last colonoscopy. This will allow the area to drain so it doesn't create another abscess. if...
Yes if you have a fistula or other rectal issues, you should be consulting with a colorectal surgeon. Do you have a seton in place? If not, the surgeon can place one and that may or may not help. My...
Great, thanks! Today's the second day and so far so good :)...
I am having a comprehensive stool study done by an intergrative doctor. I am supposed to stop antacids for 2 days prior then do a sample for 3 days equaling 5 days total.. I have been on prevacid for...
I was completely fine on 6mp for the first 2 weeks. Then the side effects hit me like a ton of bricks! I had exhaustion, anxiety, extreme upper abdominal pain, back pain, increased thirst, a fever of...
Have a wonderful birthday!!🎉🎉🎈...
Great, thanks! I'll try it and see what happens!...
Dorri, I had been eating red meat too. Which I usually don't eat much of but my iron is super low. I think the constipation started it. I also had gone to a different chiropractor and I think the...
I was fine on 6mp (similar to Imuran) for the first 2 weeks. Then wham it hit me like a ton of bricks! I had exhaustion unlike anything I've ever felt, awful anxiety (maybe from the exhaustion?), I...
How frustrating! No refills and no taper instructions for steroids?? I agree with Gumby, keep calling til you get a reply. Or show up....
Is it ok to take vsl #3 AND Florastor? I just took a round of antibiotics for an ear infection, and I started getting thrush which tells me I don't have enough good bacteria. I am taking florastor...
Yes good luck with it! Please keep us posted. My doc wants me to start this, but I have reactions with so many meds, I'm scared to:-/...
I'm so sorry for the loss of your friend, Minnie. it's so hard to be dealing with an illness and have something so awful happen at the same time. The pain can seem unbearable. Not only do we miss the...
Miracles, that stinks :-/ I was just telling my dad the same thing today. Just when I feel a tad better, wham a setback. I hope the steroids kick right in and your trip goes well💚...