So sorry that you are flaring. It sounds like you need to be on better management Pentasa has not been approved to treat CD, because in all trials it has never performed better than placebo in the...
Thank you for all of your kind words :) !!...
hey guys I have been gone for a while due to school/work/ getting married just popping in to say a hello and to share a friendly update I have been well and been sticking with my remicade 10 mg/kg...
Thanks for your reply. I only started it about 10 days ago. I have been doing very well for the past few months previously. For the first time I was able to feel like a normal human since being...
Hi, have not been on in a while partially due to the fact that for the past several months I have been thankfully doing very well. I started aygestin (norethindrone) and have been having increased...
Well if NSAIDs make you sick than you probably shouldn't take em. I did have surgery and it was outpatient. Recovery was a cinch hardly used pain killers after. But I am young so recovery is easier....
I had trigger finger Had cortisone shots that helped but ultimately failed. You can have more than 2 but each gets less effective after. Also impairs healing possibly. The typing is probably going to...
thanks for the replies! KS- guess some people do get fluid retention, maybe we are of the lucky ones:) I wouldnt be surprised if the multitude of meds are messing with me I have been standing on my...
I take zofran 30 min before the prep There shouldn't be pain with prep if you use butt cream before you start pooping and reapply with each poop. The IV may or may not be painful depending on your...
Thank totes. My doc didn't tell me the value just that it was ok and no antibodies. After that he accelerated the dose did 2-3 at 4 weeks apart and now I'm doing every 6 weeks at 10mg/kg. Getting...
Not really when I have a fever my face gets flushed. But not butterfly rash and no excema flare ups. I'm seeing my derm tomorrow and can bring up if it fits in convo Thanks again Muchly appreciated...
Agreed! Barrier creams must be applied before you start drinking. Have diapers handy. Or at least sleep on an old towel. Drink soup consommé betweeen Moviprep gulps. It's salty so it makes you want...
Thanks!!!!!! Ambling: this makes a lot of sense! Have hardly been getting nutrition in. i bought some nutrition shakes but they are hard on an already nauseated state I'll try one again in the...
Thanks for your reply. Ipoop DVT makes sense. I have palpated thouroughly and I didn't feel any clots. I also did the homans sign for dvt and it was negative. I am a student but I do get moderate...
Yes but not sure what is or isn't ibd related. Evening fevers and chills , dizzyness, prolonged nausea, headaches , night sweats, joint pains, burning and infrequent urinating (probably concentrated...
Thanks for your reply. Not on steroids. And I actually have been terrible at staying hydrated. Was in hospital a few weeks ago because I was super dehydrated. Been talking zofran to help me get...
Hey Y'all Been so busy with school and haven't had much time to write or read. I have been having swollen ankles for a while but when I tried on my shoes for clinicals they were too tight and I can't...
Ferritin is the test for stored iron in body. It can indicate Angelia but there have been some recent-ish studies correlating low ferritin levels to possibly impending flare. Although inflammation...
any of you get persistent chronic nausea? have been having the last few months and and they did upper and lower scope and they didnt find any IBD related causes for the nausea doc is prescribing a...
Hey its been bout 2 weeks off of the imuran and its hard to say if I have improved or not doc is suggesting me add a very low dose of an antidepressant called elavil. It is used for different...
hmm, I have been getting fevers too let me know what it ends up being (how are you liver tests?)...
Hey, Thanks for your responses imagardner: undetected infection- possibly but WBCs were normal-low, could be masked by azathioprine causing lower WBC counts def not C. diff cuz some BMs are formed...
will do a quick recap February 2016- anemic despite iron supplements, had infusions April 2016- symptoms (blood, pain) persisted, dietician recommended checking out small bowel due to nutritional...
Been getting fevers too... Could be indicative of flare or inflammation Or an abscess Possibly infection like TB Or rare but can be lymphoma Steroids can make some of those worse like abscess or...
Aww man!! Ibd puts us at catch 22. Not treating and letting inflammation increase risk of cancer cuz that's what inflammation does. Treating it also increases risks. This is why we need to find the...
How has your hydration been? What are you drinking? Any other meds, herbals, OTCs?...
I'm on 10mg/kg I did two bonus doses 4 weeks apart The last one was theee weeks ago. I will have on win 3 weeks and then that will be my last until the colonoscopy. I am willing to do it every 4...
I dont know where you live, but where I do most (possibly all) hospitals have financial assistance that covers up to 100 percent including outpatient visists etc... they are suprisingly generous...
thanks for your reply, I started remicade in may of 2015, it was a lifechanger. (was very ill and transfered from community to academic medical center, docs wanted to take out bowel because I was on...
Hello, havent been on in a while, been super duper busy with classes a quick recap: was having increased symptoms in march, crp came back fine but some labs showed deficiencies in some vitamins/iron...
No words to say but I'm sorry. I can't understand the immense pain and frustration you are going thru. I'm sorry that you are suffering. I wish I had something to tell you to make it better, but I...
I would recommend doing some basic tests like CRP, folate, b12, and a new iron panel (ferratin, assay iron, transfern, binding capacity) also stool tests for fecal calprotectin or fecal leukocytes,...
I would not taper after a week, unless you still wanted some steroids on board. for 1-2 weeks (possibly more) a taper is not necessary good luck!...
its possible you have tb infection causing the bowel inflammation gold standard would be biopsies, may take several weeks to get results...
Depends. Taking it once to fall asleep isn't likely to cause harm but need to see why you can't sleep. Is it anxiety? Pain? Inflammation?... You can become tolerant to this rather quickly. Take the...
very high protein diets are not very good as they tax the kidneys depending on what meds you are you should be careful with getting too much protein especially at a time baked sweet potatotes/...
Two types of fiber Soluble which is bulking type. Think things that make water thicker So oatmeal, barley... Insoluble which is the stuff that runs thru more easily Increasing soluble slowly and...
Ahh, study shows eating high fiber helps diverticular disease cuz it bulks up stool and doesn't allow pockets to fill . Dunno what it would do to to ibd. In generall, I like to think of white things...
Ooh, since your friend can read into the future, why don't you have her tell us the winning lottery poweball...
split dose prep works much much better sorry that your not getting the support you would like to have good luck!!...
HA!!! ive made that mistake before lol its kind of odd to look at the toilet.......
Hey, Thought we could write up some things people said or did that were annoying/funny... Ill start by saying that the insensitive comments were not meant to be insensitive, just turns out they were....
You mentioned that he is on corticosteroids Those can really alter your mood The disease itself can be very isolating. When is he getting off the steroids? That should help. Is he anemic? That cna...
it can depend on the amount of blood being lost. some peope can take very short amount of time (with larget amounts of blood) and others can take a longer time. also has to do with how high your iron...
nope, some docs/facilities have a policy that they dont give over anything on the phone because certain things are best said in person. hard to draw the line. would also make patient apprehensive if...
I am sosorry you are going thru this this sounds most painful and frustrating you describe some very painful and hard ot deal with symptsoms not having treatment has got to be terrible are you taking...
did you have terminal illeum removed? if so, makes it hard to absorb iron, b12 contributing to anemia but iron deficiency anemia, folic acid and b12 deficiencies take a while to represent in your...
sounds like you need to call your GI ASAP some exacerbation of symptoms is normal after a scope, however you are describing what sounds like a little bit more than a flare. In fact, if your GI doesnt...
Hmm, sounds like you might need to get your pelvic floor checked out again there are a million reasons for frequency and incontinence ranging from brain or neurons, blockages, hormones changes GU...
oops my bad I meant fecal calprotectin (FCP) its a stool test that can check for inflammtion in your GI tract. if it was very low it would indicate this is not strictly Crohns disease causing...