Thank you all for the responses! I spoke with my GI and he put me on sucralfate. He said if this doesn't work, we can try ursodiol. I only notice a difference in the mornings, and not all mornings....
40mg 1x day, in the morning. I wonder if this could be the bile traveling up and bothering me. It's weird that after all these years and all of the different symptoms, I haven't had any sort of acid...
The bleach feeling is a new symptom. I've had tons of blood work for all of the crohns symptoms, but no blood work for this specific problem. I haven't inhaled any chemicals, but that's the closest...
Has anyone ever felt like they inhaled cleaning chemicals, like bleach? It almost feels like I went running on a really cold morning. It's been going on for about a week now, constant. It's from the...
I hadn't thought of that. Is that possible?? I did find out that the endoscopy my doctor is doing is just with a pediatric endoscope so that he can see further down. I don't think he will be doing...
I just got a call from my doctor with results from my capsule endoscopy about two weeks ago. They were strongly leaning towards a crohns diagnosis, and thought this would be the final puzzle piece....
I'm going in for a capsule endoscopy on Tuesday. I've been having very narrow stools for the last month or two though. Should I be concerned that there is a partial blockage and that the pillcam...
I was just wondering (despite the test not being completely accurate) do you have to be in a flare at the time of the blood draw to get a positive or is it strictly a test that tells you if crohns/uc...
He gave me a few refills so I shouldn't run out, but I know that I should ask him before making any changes 😔...
I'm thinking about increasing my doseage on my own. How bad of a decision is that?...
That timeline was spot on. It took me months of up and down to finally get off of the steroids from my bad flair. But I did end up getting off of them and into remission with no additional...
I'm wondering does prednisone NEED to be started at a high dose and then tapered? Or would a smaller doseage (20mg) over a long period of time eventually take care of inflammation? I've been on 20mg...
My doctor decided not to fill it because she wants to wait for the colonoscopy results on friday. I cancelled the colonoscopy, and sent her an email explaining things. I'm in remission, so the...
JaSanne - wow! sounds like you found a great doctor! I hope that the medicine continues to help! I emailed my doctor last night and asked if the results were to come back clear on monday, (which is...
Kazbern - You're absolutely right. It would be worth every penny to find the right doctor to help me! I am located in Baltimore, MD if you or anyone knows of a good rheumatologist around me! JaSanne...
My only problem is that there are only two in network rheumatologists in my state. I was toying with the idea of just going to an out of network doctor as a self pay patient to see if they could help...
i asked the rhuematologist about trying a treatment for crohns arthritis just to see if it helped, and she said absolutely not because "you do not have crohns arthritis." so it would be a matter of...
She prescribed me pentasa prior to the mre but changed her mind quickly after and said she wanted to hold off on medication until we had an official diagnosis. :( I still have two big bottles of...
That's a good point. I will mention this to her. She tried to dx infection related ibs after my negative mre, but i reminded her that steroids do not help ibs, and that i have a crohns marker, etc....
I agree! I am absolutely positive that they will not find anything on my colonoscopy or endoscopy. My old doctor wanted to wait to treat me and then wait for symptoms to return before doing more...
That is what I was afraid of. The first rheum didnt seem to know much about ibd arthritis, while the second did seem to. How do you tell a doctor theyre wrong though? i was on steroids for four...
So, I told everyone my story a few months ago.. extremely suspect crohn's disease, been treated for it with prior doctor, current doctor wants to see inflammation before treating, etc etc. In the...
Would the capsule pick up anything that the MR Enterography didnt? I've had much less of that hungry type pain since I stopped the ibuprofen, thank you! And yes, I've been on several antibiotics...
Thank you. I have been taking some ibuprofen to combat an abscessed tooth in the past few days. (I know we're not supposed to take it! =/ ) Although ibuprofen has never bothered me, I've stopped...
So I've got more doctor confusion.. A little background first: I have not been officially diagnosed. After a lifetime of "stomach problems" (frequent diarrhea but thought to be normal) and joint...
Thank you so much! And I agree. My disease has only showed up on one or two of the many tests that I've had. I am obviously not one that can be monitored via tests, unless we find the right one. My...
Sorry to bring back an old thread, but I heard back from rheumatologist today, and he says that because my blood work didn't show any inflammation, he does not think this is IBD related arthritis....
I am currently 23. I've read that they are putting very young children on biologics because of this method of thinking. "Start with the big guns and it won't progress."...
[quote="gumby44" jsicrohns3: I don't think you would be wrong to try the Pentasa. It is important though, that you understand the risk you are taking with it. My original logic was to take the...
Kazbern - thank you! The arthritis side of this is very confusing to me still. I saw the rheumatologist for the first time as recommended by my gastro and primary. He did xrays of the joints in...
The crohns marker was either iga or igg. I forget which one, but I believe it was iga. However, my most recent blood work checked for it again and came back normal. (Very frustrating getting all of...
I agree. I know that with small intestinal crohns, I am limited in medications that will work. My rheumatologist was looking into methotrexate. Which I'm not thrilled about, but I know that I will...
I recently went to my first appointment with my new gastro, and I find myself strongly questioning some things that she has said. The most important being her medication choice for me. A little bit...