Very interesting! There's so much work being done; Godspeed to all these researchers as they work to crack the code. Yes, continuing with the Imuran. Same as you, 150mg. I'm not a fan...no major side...
Hey all, It was most definitely a mistake. I should have updated this post sooner. My doctor called as soon as the office opened yesterday morning to tell me not to purchase or take the medication....
Hey all, Just went to the pharmacy to pick up my Imuran prescript and was handed a written prescription for Actimmune when I went to check out. My doctor must have prescribed it without telling me...
Oh boy, Ides - thanks for all this info. I'm so sorry you deal with all of that. It sounds uncomfortable to say the least. I'll definitely consult a rheumatologist. Good luck with your flight!!...
For those of you with sacroiliitis, what does it feel like? For a few years I've had a very hard time sitting for extended amounts of time (more than an hour) -- especially in certain positions, such...
Totally just curious -- For those of you diagnosed with both, what was the determining factor? How do you know if you are experiencing symptoms of one or the other?...
Ah! Glad it worked out. That's the kind of situation where ingenuity saves the day haha :)...
Thanks you guys. I guess it just happens, sometimes. I'm sorry for what you've experienced...but thanks for sharing, sometimes it's reassuring to know that others have "been there, done that" too....
Well...I didn't make it to the bathroom in time. Thank goodness for small miracles...I was home, baby was napping and husband was at work. This has NEVER happened to me before. Lately I've been...
Thank you both. I feel like it's a silly question but I don't have a ton of experience with this disease and don't really know when to act or when it's best to sit back and see what happens. I don't...
I don't know if it's due to the always-rushed nature of my GI or my silly concern about being an annoyance... I *think* I'm experiencing (very mild) symptoms of a flare (been going on for a month or...
For those who have back joint pain associated with your CD, what does it feel like and where does it hurt? For two weeks or so I've had dull/throbbing pain in the bones at the very base of my back...
Thanks for sharing -- it's really interesting to hear that all three of you have seen better results with THC....
I had a resection followed by some serious complications -- but once I healed I became pregnant almost immediately (surgery was in June, all complications healed by August, pregnant in November). I...
Hi! I'm so sorry he's going through all of this! I had a resection two years ago. I strongly, strongly encourage him to take it very easy after surgery and allow plenty of time to heal. I ended up...
Just saw a documentary...very compelling...about the potential health benefits of CBD (cannabidiol) which is found in medicinal cannabis. The products they're able to make now contain no THC. Very...
I had a resection, got pregnant pretty soon thereafter and did not go on meds -- a colonoscopy 5 months post partum revealed inflammation and ulceration at the resection site. Kinda wish I would have...
(The belt us not a hindrance -- just thought you should know. It's how they capture the images). I did not have D that lasted, especially since you're required to fast....
You don't need to return the pill cam. :) don't even bother looking for it. In terms of going to work, you're going to probably be wearing a somewhat bulky device/belt around your waist. Don't have a...
Rose...sorry to hear. It's sort of deceiving, isn't it? To feel fine off meds for seven years? I'm having to talk myself into taking meds even though I feel fine. It seems with this disease you can...
Thanks Beave. I asked him about biologics because I wanted an alternative to the imuran. As you saw in my last post, I have this horrible sinking feeling I'm going to be one of the unlucky few who...
I know the vast, vast majority of folks here suffer horrible symptoms. Looking back I think I've had Crohns for more than 10 years and just didn't know it. 12 years ago my doc sent me to a...
Thanks everyone. I'm new to this forum, and already finding it so nice to be able to bounce things off of others who are in the same boat. Really means a lot....
Stef, thanks so much. How often do you get blood work? My GI said 3-4 times a year?...
Hey all, my GI wants me to start Imuran after post-surgical colonoscopy showed recurrence. I'm very nervous about this drug and have been dragging my feet. We have had Lymphoma in my family, for one...