Andrina, just the thought of having shingles again makes me break out in a cold sweat. I just wanted to say I saw my ophthalmologist for my one month check on my affected eye and it's okay right now,...
Thank you NCOT. I can't even let my mind think on a repeat of this. Thankfully, the Lyrica doesn't let my mind think on anything for more than a millisecond anyway, lol!...
Thank you for the prayers, ragbag. 73monte, that had to be very frightening to go through for your daughter. I'm just glad the doctor took my case seriously and treated my shingles aggressively. I'm...
Hello everyone - it's been a while since I was here. I'm glad you got treated right away with antiviral medication. I too am trying to get over facial shingles (maxillary area of the trigeminal...
You're probably right that the scarring and narrowing are responsible for the cramps when you eat vegetables. It won't necessarily cause bleeding if the area is healed and the normal formation of...
Miranda, I just wanted to let you know I'm thinking of you. -Joy...
Miranda, I am so very sorry to hear about your brother. My family has experienced two suicides - my sister and years later, her daughter - so I understand the pain you're going through right now. I...
Minnie, are you considered steroid dependent? You may need a steroid injection at this point. I'm not sure why your GI didn't have you try a stool softener for the constipation. I've used colace...
I've been taking sulfasalazine (it breaks down into mesalamine in the gut) for several years now and for me, it works far better than Asacol (it and Pentasa are both mesalamine) ever did and I took...
I think the results are going to be similar but you should be able to go to http://dailymed.nlm.nih.gov/dailymed/about.cfm and look up Pentasa's prescribing information to see what part of the...
SydMar, I agree with the others in that you need a 2nd opinion. For what it's worth, it took me over 25 years of having symptoms before I finally got diagnosed, but I wasn't taken seriously for many...
Well, that pretty much describes what happened to me whenever I tried doing those kinds of exercises too. I've assumed it has to do with having Crohn's and the chronic fatigue and inflammation I live...
I know most people who ask what you stated are well-meaning and I just thank them for asking and say, "I'm fine", though I can see that you can't just say that when it comes to your patients. For me,...
I too feel for you. I've had trouble with preps in the past causing similar problems. The last one made me black out, which I think had to do with the electrolytes being out of whack, as you say....
Ditto the primary care physician - he/she could rule out hemorrhoids possibly causing the bleeding and give your the referral you need....
I've never experienced bleeding from my fistula other than maybe weeping early on. I'm wondering if you have an internal hemorrhoid that's bleeding and coming through the fistula. Hemorrhoid blood is...
No. I've only experienced a high fever with infection when pertaining to Crohn's....
I agree with NCOT on the enema dosing since it's "ground zero" for your inflammation. I always did better with the enemas since most of my disease was sigmoid downward. I assume you're worried about...
I'm sorry I haven't answered before now. I've been offline. The bone spurs I had dissolved on their own over time. I have no Idea why, but I do remember someone else telling me that theirs in their...
Bucko, the arthritis from Crohn's has been a major problem for me the past 15 years, though going on sulfasalazine has helped a lot the last few years. But I've recently been having worsening hip...
Hi and welcome to the forum. I'm not here often anymore, but wanted to answer your post, though I don't know if it will help in any way. I'm really sorry that you've been through the wringer with...
Welcome to the forum, McClain. The disease runs in my family, so I understand your concerns and hope you and your physicians can find out what's going on. I actually noticed your post due to your...
Have you checked your skin and whites of your eyes's coloring for any hint of yellowing (jaundice)? Clay colored stool can indicate a bile duct obstruction from a gallstone in the common bile duct,...
Viruses were tougher on me, especially when I was already in a flare. Keeping a watch on dehydration is key, but we're probably better at that by experience than the average person anyway. I don't...
I was talking about different optometrists I've used for my eyeglasses prescriptions. I don't think I ever discussed it with the opthalmologist I've seen for my episcleritis I've had off and on. He...
I'm glad you posted this as I've wondered about this too. My eyesight does have temporary changes and has done it for years, but I've figured it has to do with inflammation waxing and waning, though...
It's a chemical reaction between the mesalamine drug and bleach. When I was on Asacol, which was also 5ASA drug like Pentasa, I scared myself silly several times when that happened. I take...
Upper right quadrant pain could also be an indication of gallstones....
Uceris is the same thing - budesonide - so you shouldn't have to taper....
It sounds like your sigmoid downward is affected. The sigmoid area is where I had the most disease activity and it was excruciatingly painful. I hope the Remicade helps....
It sounds like you have severely inflamed tissue, which is acting as a stricture due to the swelling. I've been there and the spasming is really tough, I know. Are you having any bleeding? Has your...
I had it done about 10 weeks after my hemicolectomy as my anastomosis was nearly closed off by then and I was in a lot of pain. When I had it done, my GI said it could last "3 weeks, 3 months, or 3...
Your GI is probably worried about perforation as it's more dangerous with severely inflamed tissue. If he's worried about a suppository, the inflammation must be significant. I've only had one...
I have to agree with cupcakespinkgal. I have an RV fistula, but it developed well after my daughter's vaginal birth. Even without a fistula at the time, I had significant tearing which didn't heal...
Merry Christmas, Minnie!...
I had no idea, Randy....
Randy, I'm really sorry to hear about your infection. You may have a Guiness world record in the making with your TPN - if you don't already hold it, that is. I didn't know you've been doing it for...
Well, I'm assuming you know you're not pregnant and you have no history of gynecological issues like endometriosis - and you're too young for perimenopausal changes. It could be a change in your...
I could never eat something like that - it would definitely send me running. Eating a whole container of strawberries on top of that was probably the proverbial icing on the cake. I can eat...
Hi Mae, I'm really sorry to hear about your situation. I have a long-standing recto-vaginal fistula that I've never had surgically repaired due to its location and the advice of my GI. Well, I had...
Yeah, I've never thought about whether they float or not. It seems they need to design it to do that or send out a signal or something!...
Oh, I know the feeling, though I've never done the pill cam. We've probably all had to do the "fishing" thing, whether looking for blood or seeing whether pills have digested. I've made a wire coat...
Minnie, I took antispasmodics frequently, but not on a daily schedule, before my colon surgery - Bentyl, Librax, Dicyclomine... I was even on atropine once, prescribed by an old doctor who thought I...
It sounds like a good plan - sometimes little things can make a big difference. I remember how miserable tenesmus can be. Take care....
Thanks Sparkle and Minnie. I gave up and called my pharmacist who mercifully gave me a small emergency supply. I don't know if it's the withdrawal messing with my mind (it's an antidepressant I take...
I feel like a truck ran over me today. Because I was so preoccupied with my husband's recent health issues that I ran out of one of my own medications. With no refills. On a Saturday night. Of all...
I know how you feel, Jen. I never lost the excess weight from my last big prednisone episode and it's been years. I'm also taking a low dose of Elavil, which is also a major weight-packer-on-er. But...
I would think the pain is not unusual because a month really isn't that long and it's probably still healing internally. The nerves can have a bit of damaged from the abscess itself, the incision,...
I'm glad to hear that, Minnie. I hope he can get you on something that will get things under control. You surely deserve a break....
Billo, I haven't tried it, but my daughter uses it. She has severe allergies along with digestive problems and can't tolerate cow's milk, but buys goat's milk kefir. Goat milk is easier to digest...