They need a stool culture thing and everything came back as "NotDetected" but I don't recall seeing Fecal Calprotectin on my list of results. I'll have to look again. Honestly, I think it's most...
My CRP was also elevated. I saw PCP today and she - rightfully - wants to see my records from GI first. She said even if it was IBS she wasn't sure why GI adding recommend one of the IBS meds out...
Oh no, it's fine - I think the liklihood of me having had crohns and being in magical remission but suffering from IBS & joint pain is unlikely. I wish he had just said "You do not have Crohns." I...
@minnietoty - he did take a ton of biopsies he said but none of them showed chronicity. He said any inflammation marked by the person reviewing the slides was likely from the prep but because he lead...
I should add that he made the suggestion of a Rheum because he noted that my ESR and CRP were elevated and thus indicated inflammation somewhere...just apparently not in my colon -_-...
I got my results of my VCE and posted. Sadly, nothing remarkable and apparently 4 hours is instead a sign of good health....
So I saw my GI on Friday morning. I finally got my August scope results and last weeks VCE results. Both are clear. He said that because he indicated small bowel Crohns on the paperwork, they were...
Also: they've progressed - at least at my hospital - to a sensor belt, not ones stuck on my belly. Also there was nothing but a glass of water (it was smart water actually - probably for the...
I made my appt Aug 26 for Oct 11 - a day I had off from work and school, and they waited until the Friday before to do my insurance authorization! So it didn't come through in time and I had to...
I just had one today! The worst part was no fluids past 10pm. Especially as I have had a sore throat for a few days. Well, swollen - not sore inside but from a swollen lymph node in my neck. Anyway,...
I finally had my pillcam today! I swallowed it at 8:30 with lovely lovely water (no fluids since 10pm last night!) and then happily sat at work starting at 10am. I passed the pillcam at 12:30. It was...
Yeah - slightly discolored. Not from blood draws or IVs - I've got pretty pretty veins thankfully. But scrapes and one minor iron burn. He said it was from the Budesonide very likely, didn't mention...
Not when eating it, but the trips to the bathroom that follow aren't pleasant. And far more of the salad ends up visibly in the toilet then I ever remember in the past (past being a few years ago)....
I had my scope on Aug 9 and the doc said that while all was visibly clear, he wanted to wait for biopsy because inflammation only showed on my last one in the TI and he was able to get pretty far in....
Have you seen a GI during your pregnancy? A GI will be able to advise you on what supplements are safe while pregnant. What has your GI advised for your flare so far?...
Thanks guys. I had my scope at the Columbia University Medical Center/NY Presbyterian Hospital endoscopy center. Docs and nurses there are pretty amazing. Here's hoping!...
So my scope went well. I had none of the nerves of last time, I just wanted the drugs so it would be over and I could eat! They let my husband come back the whole time until I went into the room...
My doctor currently considers my Crohns "mild" but that is probably changing, like NCOT said. If yours has been consistent for 7 years I'd count my lucky stars and try some meds. I'm terrified of the...
Thanks! Here's hoping the IV is quick and painless - I have great veins thankfully - and I will just wake up after ready to eat. My stomach hurts from the fasting. I woke up crying from my last one....
It got lighter yellow over the last few hours. Not as clear as last night but I'm assuming it might just be stomach stuff and mucus that naturally builds up or something. It's consistently like urine...
Well, I live in Manhattan and don't drive so I'm about a 10 min can ride from Mt. Sinai. I'm not as close to CUMC but the doctor and nurses are just so much better so far and I've only seen him...
So I started my prep around 6pm last night after a light breakfast and fluids all day (was told ok for bfast bc late afternoon appointment time). I drank water and iced tea. When I got home I had...
I have to say, my experience at Mt Sinai (at the IBD center) was not stellar. First I saw Dr. Larry Cohen (oh hey, remember Joan Rivers?) but transferred to a different doctor when he told me my...
I didn't feel worse when I started Entocort but it took about a week for me to notice it was working and 2 weeks for symptoms to disappear completely. It is my understanding that everyone has a...
I have tried running and tried the C25K app but even a 20 minute run makes my joints ache so I never got very far. I do enjoy walking but my neighborhood is very hilly and that unfortunately makes my...
I'm a little surprised! I was being treated at Mt. Sinai in NY in the fall and they never asked me about a study. Though my new doc at CUMC already spoke to me about two so we'll see where they go...
Just wanted to add, I also have rosacia around my nose (just around the nostrils), a patch of eczema on two knuckles on my right hand, and also dermagraphia. My symptoms are gone when I'm on the...
Hey all! I mostly post in the Crohn's forum but since I've had CIU for 16 years I figured I'd come over here and see if anyone else does. I was diagnosed at 11 years old after being chronically itchy...
Interesting. Is anyone else doing the 23andMe study? I've had my account since 2010 so just added the Crohn's/UC study to it recently. Curious for the outcome! I was constantly sick with sinus...
Slightly elevated, I am 90% sure. Says normal range is 0.00-10.00 mg/L and that "high" is considered 3.1 mg/L to 10.0 mg/L. Says low is under 1.0 and average is 3.0-10.0 so it's slight....
Yeah I have no bleeding and he still wanted a stool sample to rule out an infection not showing in my blood work. Got those results today and it was all negative but I'm glad he did it. One more...
Just got my labs from June 23 - my c-reactive protein is 13.9; ESR was 66; WBC was 12.8 - all three were flagged in red as being elevated. Really curious to see my scope results. Confirmed appt for...
My first two doctors didn't do a stool sample - only blood work and colonoscopy - so you should ask if he will do one. It can rule out an infection when bloodwork may not. I second everyone else...
Oh definitely not. What surprised me was that I had positive biopsies from colonoscopy before he did that blood work. I felt like he was taking advantage of my admittedly stellar health insurance at...
Re: no specific test for Crohns - first doctor said there was! Like the celiac specific test there is one for Crohns but it has a high incidence of false negatives apparently. I was on the Entocort...
Replied before I saw yours NCOT. I've been on Entocort - my symptoms HAVE been reduced since. It was 5-7 BMs a day and most of them loose, and now it's 3-4 and a lot of the urgency is gone. I can be...
That helps. I wish I had access to my most recent labs - need to ask about that tomorrow when I talk to the admin assistant about my colonoscopy date. I don't know what my CRP or calprotectin were -...
I understand what you're saying but at this point, my symptoms are worse than my clinical findings which is why I'm not sure and even my doctor isn't sure. He almost seemed excited my ESR was...
Compared to most here, I feel like I have indigestion. So for me, I feel like crap, but comparatively, I am nowhere near 99% of the people I've seen post here. I am new to this but my symptoms have...
I saw two doctors at Mt Sinai but when my insurance changed, they no longer took it so I had no choice. We are pretty tied to Columbia - my husband teaches there as a grad student - so I know I'm...
beave: Our ideas of "helping" are very different. I don't think me saying my disease is mild, is wishful thinking, but a fact according to the tests I've already had. Either it's not Crohns, it's...
My doctor told me flat it out most often doesn't work for Crohns patients. For what it's worth. Since all anyone wants to tell me is that I should be the one telling my doctor what to do. I've done a...
New doc put me on Apriso because my diagnosis was mild Crohns and he said that while it doesn't work for most Crohns patients, he wanted to try it before getting more aggressive. I suppose I'm lucky...
With Entocort I saw a decrease in symptoms at the 9 day mark and a complete disappearance of symptoms at 2 weeks. Sadly I had a TON of side effects, including: increased appetite (I gained a ton of...
So, the assumption of mild Crohns may have been short lived. I've been on the Apriso for about 5 weeks and seen only a slight decrease in symptoms. The turmeric seems to be working for the joint pain...
I haven't been posting because I had been waiting and waiting and waiting. Anyway, I finally found a new doctor that takes my insurance and waited over a month for my appointment which was this...
That's 5 months. Deffo time to start tapering off it: you shouldn't take Entocort for longer than 6 months. Two possible reasons why GIs still prescribe mesalazines: 1) They don't keep up with...
gypsyfp I think it's because my case is currently barely even presenting as Crohn's even though they did give me an "official" diagnosis on paper. Prescribing Entocort was almost a diagnostic tool, I...
I've been on the Entocort since mid to late October I think? Colonoscopy was Oct 2 and was prescribed at followup appointment a few weeks later. Had MRE in December. Was told in mid November that...
It's been months since I last saw my GI but because my insurance changed and now I require a PCP to give me a referral, I haven't been able to see him. Finally got my referral today and have an...