Mixing it with just water. Taste pretty good just like that. I prefer the meal replacement because its easier for me. I will have dinner, which is not bad at all. Tonight I had sweet potato tacos...
Confused. Is one better then the other. Whey, Egg, Casein, Soy, Pea, and so on. I've been doing Love and Peas: https://www.naturessunshine.com/us/product/love-and-peas-sugar-free-15-servings/3087/...
Everything went well yesterday, feeling fine this morning. Only issue is that I'm really itchy, not at the infusion spot. Lets see how this goes....
30 mins into my 520mg of stelara. So far so good....
Well I start Stelara tomorrow. Have to go to the hospital as the first one is an infusion then the rest are injections. Crossing my fingers....
Well after a chest X-Ray, blood work and another ppd test, it turns out that I dont have TB. Had colonoscopy last week to find out that I have anal stricture. Need to see a colorectal surg to see...
Start Stelara 1/4/17 after failing, Remicade, Humira, Entyvio, and Cimzia in a short span of 5 years. Crossing my fingers cause I think this is the last option for now....
Can't make this shit up. Again was hospitalized with 105 fever with no answers. Took my Cimzia shoot Sunday, took my methotrexate Tuesday night Wednesday morning felt like a train hit me. Fever,...
Can't do pred cause I'm also diabetic. I do go to Mt. Sinai and see A Dr there. I tried the antibiotics of flagy and Cipro but started with neuropathy. I'm going today to my GI in NJ and I'm going to...
Rant Alert!!!!!! I have to say I haven't felt good since the first few doses of Remicade which is going back to 2011. Remicade stopped working pretty quickly, and Entyvio was also pretty quick as...
Just took my first shot of Methotrexate. Crossing my fingers for something to help me....
When is it really high to be concerned? What is the number that should make you second guess the meds you are on?...
Starting off with injections first. Got to say I got off the Flagyl and I dont have that burning feeling in my feet that was keeping me up all night so thats a plus. Still taking Cipro, and the Dr....
Well I saw my GI yesterday and he wants to stop the 6MP and start me on weekly Methotrexate to see if that helps with continuing Cimzia. He said that Metho should help with the aches and pains. I...
Whats the difference from Stelara and the rest? IE: Remicade, Humira, Cimzia, and Entyvio...
Didn't know Stelara was approved for Crohn's yet....
I love all the feed back, I truly 100% appreciate it. I just need to know my options considering the med option is running out I think. I have two GI Dr's one is a specialist and the other just a GI...
I'm really in no rush bagging it, but if none of the meds are working why continue taking them when they are only hurting other things in your body, like the liver for example. The one Dr. that...
Remicade, Entyvio, and Humira failed. Failing Cimzia, on Flagy and Cipro since May 30, 2016. I think I'm having side affects from Antibiotics, like neuropathy. Went to see my Colo surgeon and he...
Right now I'm taking Cimzia and 6mp. Today I don't feel so bad but I always wake up to a surprise. A new pain, a new body part hurting or aching. I went to see an RA Dr but there approach was to take...
Cant even explain it but my joints, muscles, and bones are killing me. I dont know what its from, but its driving me mad. Completely exhausted as well. Any ideas?...
Usually after Cimzia shots I get really bad aching and soreness in my body but usually the next day. I have the same feeling a week plus later. Legs from toe to thigh are killing me, hurting pretty...
To start I'm also Diabetic. Since Memorial Day I have been on Cipro and Flagy which I believe got me out of the hosiptal from Crohns. I have noticed of late that I'm am losing feeling in my hands and...
Diagnosed since 2012, remicade made me feel like this was nothing till I failed that, and have been downhill ever since. Failed Humira, Entyvio, and failing Cimzia. Been in pain ever since Remicade....
https://www.scribd.com/document/321597895/CVS-Caremark-to-stop-covering-these-drugs-in-2017 https://www.scribd.com/document/321598678/Express-Scripts-list-of-drugs-to-be-removed-from-coverage...
Well spoke to my GI today and he suggested to go back on Cipro and Flagyl and see how I feel. Starting to feel the same way that put me in the hospital.........
has anyone experience Lupus-Like Syndrome Attributable to Anti—Tumor Necrosis Factor GI Dr. wanted to test me for this while in the hospital but they forgot. Go figure....
Besides the the first few months of remicade, and loading dose of Humira and Entyvio I haven't felt this good in a while. Strange on what helps me with these two. What's doing it? Of course I'm...
Why is it that i feel better on Cipro and Flagly? What does this do different then Remicade, Humira, Entyvio, and Cimzia? I searched and alot of people feel better taking this combo. Is this a long...
One of the better ER's is where I went. Blood in stool has been better, which I think I can contribute to Flag/Cipro. Saw Urologist for blood in Urine today and like the ER Dr. said I have to get...
I'm starting to think its from my recent change to Cimzia. I was 4 weeks out from my shot, feeling like crap. Low grade fever for most of the week, felt like a truck ran me over until it jacked up to...
Spent 4 days in the hospital and know no more then when I went in. Went in with battling 104.9 fever for 3 days, couldnt do it myself, so I went to the hospital. Was told its Crohn's related. WTF...
I'm staying overly hydrated I think. I had a cup of tea earlier today and my headache went away. I think its from caffeine withdrawals. Another question is how do you send a message to a member?...
Have to say not really feeling so well. For the past 5 days I have had a massive headache. It feels like the back of my head is going to fall out. Tons of pressure and eyes hurt. Kind of weird cause...
I started Cimzia on Sunday, failed Entyvio, also failed Remicade, and Humira. As soon as I started 6mp, remicade, humira, and entyvio it seemed like it worked right away. Now like I said before I...
Thanks. I hope it works too cause I'm running out of options....
Cimzia is next after failed treatment of remicade, Humira, and Entyvio. What should i expect. Does the injections hurt....
What kind of surgery, and does that get rid of crohns....
What usually happens next after all Biologics, and other meds fail?...
Dr. wants me to take Cimzia. Failed Remi, Humira, and Entyvio. Testing blood to see if 6mp is working or not. Waiting on those results....
Not much information on this IVIG and Crohn's, anyone taking it and how are you feeling....
Well today's the day I trek over to the city. X'ing my fingers....
It really is kind of scary to think that a specialist is recommending you to another specialist. He did mention that going to a bigger scale facility that you might be able to get in a clinical...
Failed Remicade, Humira, and possible Entyvio. My GI want me to see a Dr @ Mt. Sinai (http://www.mountsinai.org/profiles/thomas-a-ullman) I'm assuming that's not good when your GI refers you to see...
Has anyone had experience with clay, if so fill me in, let me know if its worth it or not. A friend sent me a link to www.remondclay.com...
I have pain all over my body. Saw RA Dr. and he said its prob crohns related. Every day is a surprise, different parts of my body hurt....
I have been on 6mp since day one with this GI Dr. Then he started me on Remi, then Humira and Entyvio. I'm really concerned that I'm going through these drugs so quickly. I felt my best on Remi but...
All this time I have been on 6mp, does changing that help. Dr. seems to think they are all the same. Are they?...
Failed Remicade, humira, and now I think Entyvio. What other options do I have......
Im also taking 6mp but could that just stop like Remicade did..............