Thanks :) yes very good communication with the nurse can always get hold of her within an hour or two. also if anything is to change i can be seen earlier. Bloods are going to be monitored weekly and...
Yes totally agree there, will be having my first tablet before bed tonight, I don't see my GI for another three months so hoping all goes well. Much better to try something than let things get out of...
Yes labradorite if the azathioprine doesn't work we will start trying to get humira approved, I need to self score and have the govt approve I am unwell enough for it. My ibd team do know i am very...
Thanks for the advice, I am still procrastinating but plan to start tonight before bed. Feel sick just thinking about it...
Thanks Jen77 & Beave. Last time I tried it I only lasted 9 days as I felt very run down and queasy so I feel very apprehensive about starting it. Very much a catch 22 situation, bowel seems to be...
Thanks Scifigal, I think I read too many horror stories of people getting pancreatitis from it. I guess the only thing I can do is try it. Just feeling a little sorry for myself....
In NZ it is extremely hard to qualify for a biologic, I need to send away a card to the govt with a self score of symptoms for approval. My specialist said Humira is my next option but I NEED to re...
Only Pentasa (I know it is as only as helpful as a placebo for Crohns). I do understand the importance of starting Azathioprine, I'm just feeling very upset as all of these medications scare me and I...
I saw my IBD nurse yesterday, I have been putting off restarting Azathioprine due to feeling horrible on it when I tried it 6 months ago. She wants me to start again immediately and I'm feeling...
Yes Labradorite, I do believe the boils are related. I was diagnosed after a month of taking all different kinds of antibiotics they didn't help clear the boil up and ended up in hospital in a major...
Thanks Larbradorite & Beave I really do want to give it another try, but as I have had sinus infections, stomach viruses, boils, and now a flu in the summer I havnt had much chance to start. I don't...
Labradorite- no I only took azathioprine for a week in September and couldn't handle it. Beave- yes I have had fevers and many blood tests...they all showed elevated crp. I also have low b12 levels...
Yes I had those in hospital. I used to take them occasionally and yes they mentioned that before diagnosis. I no longer take nsaids. I have had prolific bleeding and upto 25 bms a day, mostly under...
Jasanne- yes I know about the difference in bleach but pentasa is the only thing I can pin it down to at the moment....hairdresser mentioned anaesthetic but I havnt been under. Doesn't it suck having...
Beave- my mri came up clean so diagnosis is completely on the fact I had signs of skip inflammation. My GI has not ordered a scope for me himself and I will be requesting one when I see him next. The...
Hi Beave I have the skip inflammation shown in my colonoscopy. Luckily here in this beautiful country we do not pay for medications only the $5 prescription fee (which I no longer have to pay for a...
Very frustrating, but living in a small country you get used to it. September 2016 I was diagnosed formally but it has been going on a long time. My hair was highlighted no problem many times before...
I live in New Zealand. So I need to travel 3 hours to the nearest city to see my GI as I live in a small town. The help here is not the best and have been misdiagnosed a lot. It wasn't until I was...
I was originally diagnosed with UC, but then this changed when I travelled to see a GI. They recommended I stay on Pentasa as my inflammation only appears to be in the terminal ileum and large bowel...
I have switched to Pentasa sachets, I swallow the granules as I can't stand the size of the tablets. Before this I was on the 500mg tablets which are grey/white. I have had the same reaction with...
This has only happened since starting Pentasa, it also leaves a reddy brown residue around the toilet bowl. We have two toilets in our house and it only happens in the one I use. I know urine changes...
Has anyone had weird reactions to bleach after taking Pentasa. I have noticed in the 8 months I have been on it, if there is any bleach in the toilet my urine turns red and it also stains the toilet...
Thanks Andrina, I'm absolutely terrified of falling pregnant. So when I see my GP in two weeks I will definitely push that with her. I will look into Valerian, I have never heard of it so I will try...
Probably want to stay on hormones as I don't like dealing with monthly. My gp didn't really want to discuss contraceptives until I get my anxiety under control as I constantly worry about everything...
Well I saw my GP, I'm having a rough time emotionally at the moment so she doesn't want to go messing with my hormones while we sort that out :( Has anyone else had changes in their mental health...
Thanks Andrina. Still waiting for my GPs office to call me back anyway. Health service in NZ is rather slow unless you have an urgent need to see a doctor :(...
Thanks andrina :) good to hear positive things as I worry all the time. Was it painful to put in...
Thanks ladies! I too also have a fear of DVT on the pill so I will talk to my doctor about the IUD. So hard to decide when you hear horror stories about every method :(...
I'm looking for some other women's experiences with birth control. I was diagnosed with UC in June of this year, I have taken the pill for over 10 years and am terrified I am not absorbing it...