Hi scifigal, A little history here: when i was diagnosed I was first prescribed prednisone, starting at 80mg. I tapered gradually (was on it for 10 months). I did not get the 5 asa drugs because my...
Hi and thank you for the replies! @labradorite: good to know that this might be a possibility. Sounds like something I would definitely want to avoid. Sorry you had to go through that! @scifigal: I...
Hi guys, I feel kind of stupid for asking, but i am a bit worried so i am going to anyway. For the past six months my Crohn’s has been pretty much under control. I guess I am one of the lucky ones,...
Hi Cait, You can send me an e-mail, no problem....
Hi, First of all I am very sorry to hear about all your suffering. I know from experience (as many here do) how frustrating the quest for a diagnosis can be. I am part of the apparently 20% that has...
Hi! Thought I'd chime in. I myself have Crohn's in the small bowel only and it has been quite challenging to get a definitive diagnosis. If you only have Crohn's in the small bowel and it does not...
Hi all, I have been on 6mp for app. 6 months now. Not without problems unfortunately. As soon as I started taking 6mp I felt horrible but I was told that I should give my body time to adjust. After 4...
I just came across this topic and I see you have already sorted it out. Good for you! For anybody else who might be reading this and wonder about UTI's and immunosuppressants I would like to share my...
Thanks a lot for your replies. Really helpful! I will discuss it with my GI and ask for a more gradually tapering schedule....
I have been on prednisone for about 10 months now and I am currently trying to taper off. So far it has been quite alright. After having been stuck on 10mg for a couple of months I decreased to 7,5mg...
I have had a lot of other tests indeed: sigmoidoscopy, colonoscopies, upper endoscopy, ultrasounds, ct scan, and a double ballon endoscopy. Biopsies from the latter showed signs of chronic...
Antibiotic associated diarrhea may pass on its own accord wirhin a period of weeks. You should however closely monitor frequency, color and the presence of blood. You should also be aware of any...
From personal experience I would say a 3 or a 4. The pain you describe is somehwat similar to what I have experienced, bit I felt it predominantly on the right side of my body. It basically felt as...
Dear Dmarks, Your situation sounds very similar to mine: for me the capsule endoscopy has also been the main factor in establishing a diagnosis. Like you, I was also started on Budesonide, but...
I am sorry to read that the forum is not giving everybody what they are looking for or hoping to find. As a relatively new member here I am very very happy that this place exists. I am still coming...
Hi all, It has been a while since my last post. Long story short, after finding signs of chronic inflammation in my biopsies I was finally diagnosed with Crohn's disease. Not the best news ever, but...
Here I am again... As mentioned in my previous post my double balloon enteroscopy was moved up by a week. I had it done last Monday. Or at least that was the intention. Unfortunately the equipment...
Thanks very much dor tour replies! It sounds logical to listen to my body, I am trying to do so, but sometimes I find it very difficult to decide what to do. I guess it will take me some time getting...
Sorry, this time I am running behind with my reply. How are you NCOT? Feeling any better? I will keep rooting for you. Thanks a lot for your explanation about the prednisone, I did not know this at...
Thanks a lot for your responses. Like I said I have heard many negative things about prednisone, I had not heard about prednisone dependency, but I will most definitely keep this in mind. My GI has...
Oh and thanks for the link to youtube. It makes sense what the man says and his message is empowering. Not sure though how to incorporate his advice into my life, but it has definitely given me food...
Thanks for your kind responses! I do remain hopeful, but it's just a lot to take in at the moment. You are very right though that a lot of progress has been made in this area! @earthshine: my belly...
Hi all, It's been a while since my last post. Unforunately that is not because I have started to feel so much better, but rather the opposite. In June it will offcially be a year ago that I was...
And sorry for all the spelling mistakes, but I have a new phone that seems to love autocorrect and ignores the English language (I am Dutch)...going to figure that out this afternoon!...
Thanks for your input @HabsHockeyFan! I have seen my GI last week, so I wanted to give you an update. During my last exam, the single balloon enteroscopy, the GI did see redneaa and itritation on the...
Dear all, Thanks so much for your responses! To answer all your (valid) questions: @Minnietoy: my GI has literally said to me that she believes it to be Crohn's. She just wanted as much 'evidence' as...
Hi all, I have been relatively new here. So most of you probably don't know my story. Here it is in a nutshell: 2007: major abdominal pain in lrq, appendicitis suspected but ruled out. Very high...
@Gumby44: as I understood it from my doctor there is something called a D-dimer bloodtest. If the results are within normal ranges the chances of having a bloodclot are zero to none. If it is...
Thanks for your responses! I went to see the doctor today, she indeed wants to rule out DVT. I am going for a bloodtest now and will get the results this afternoon. I doubt if it is that, since I...
Whoa, NiceCupOfTea, I just read your post on the UC forum. I am so sorry you had to go through that experience. It sounds beyond terrible. Personally, and I am not a violent person at all, I would...
This is probably a pretty strange question, but I am in pain and I figured I'd take my chances. I am still very new to Crohn's Disease and actually still waiting for a definitive confirmation through...
@NiceCupOfTea: thanks again for your response and the words of encouragement! I completely agree that the IBS diagnosis was utter nonsense. My family doctor never bought it and always explained that...
Hi @Babybison! Sorry to hear about your diagnosis journey. I think I would go completely nuts if they would lose my biopsies... I think there are indeed a lot of similarities between your story and...
@Gumby44, thank you so much for your advise! I read the article and it sounds very interesting. Would be great if that meant the hunt for biopsies could be stopped:) I will ask my GI about it when I...
Thanks so much for your elaborate reply @NiceCupOfTea! To answer your questioms: No, I have most definitely not been symptom free over the past years. I have had so many bouts of diarrhea, urgency...
I agree that getting the label can be a very frustrating process. I am still waiting for the final conformation myself and sometimes I het so frustrated with it all that I would like to scream and...
My FC is always within normal ranges, but my GI said that is because my disease involves the small bowel only. I have read somewhere that a high FC level is a positive indicator for IBD activity, but...
I am very sorry you felt this bad on NYE and even more sorry to hear that you are still waiting for a diagnosis. Out of curiosity, was the MRI the only test that came back indicative of Crohn's? What...
Hello everyone! I am new to this forum, although I have been reading along for a while now. I decided to register to share my story in hopes that some of you might have a similar experience and/or...