I've been told colonoscpoy is first choice but my biopsies didn't show any evidence of crohns. Although I did have inflammation in small bowel which they couldn't reach so ended up having MRI month's...
Hi all, I haven't been diagnosed with crohns but I got severe symptoms about 8 months ago and I'm figuring out if its crohns. My consultant thought it might of been an infection. I had a calproctecin...
It's just odd that we both got sick so I'm wondering whether mine was an infection as the consultant said or crohns....
Hi she's had the tests already. She said she's having MRI to see how severe it is but I did see a few books at her house on bowel inflammation and autoimmune diseases wen I was there yesterday. She...
My sister is on the paelo diet. Yes I agree. I don't understand why she can't tell me the name and even I thought she was perhaps playing on it. I don't know why. She has an MRI in 2 weeks. Thanks...
Thanks gumby for your advice. I'll wait and see wat happens. At the moment I have had loose stools twice a day but I suppose this could be normal. I do I just hope if I do get sick again I get the...
Hi all, I have a quick question. I first got sick in December with bloody diarrhea and cramps that only lasted a week. My calproctecin levels were greater than 6000 "the highest it goes" colonoscopy...
I just want to point out that wen I had the severe symptoms it only lasted a week. Consultant said it wouldn't just suddenly disappear after a short period of time which it did. I got better on day...
Yes early diagnosis is the key. I did have colonoscopy and did have inflammation the biggining of small bowel. Biopsies were taken and it was acute inflammation. Can't remember exactly wat it said...
Thanks guys. You've answered my question. So many people dony get diagnosed while in remission. And all my results were good. I'll just have to get on with it and stop dwelling on it. Thsnjd for all...
I get the sane gurgling noises. All day. U could have IBS. Try avoid things like diary and wheat....
Hey you need a colonoscopy. Calproctecin test is non specific so even though its high it don't mean it's crohns. Mine was off the chart so I had severe inflammation and been told it was a severe...
I'm thinking the worse as I've lost weight. I've gone from 68.8kg to 58.8kg. I'm now eating things I probably shouldn't to put the weight bk on. Would I have other symptoms with weight loss....
They as also weighed me and I've lost 1 stone in 2 months yet I only have mild symptoms which I was told could be my IBS. 2months ago I was on the scd diet and eat a lot more since...
My MRI came back as normal but if im in remission how would they know if I have crohns or not? Does remission mean no symptons or inflammation? My calproctecin was with in normal range yet I still...
He didn't give me a report he just said my MRI was okay and he thinks it was infection. I gave him my calproctecin report and he said it was really reassuring and I won't need colonoscopy...
I had my MRI results yesterday and Im a little confused. I got sick I'm December and after having a calproctecin level of greater than 6000 I had a colonoscopy which showed inflammation an...
Sorry my colprocecin was 6000 not 600...
Wat are you taking it for? If its for infection I wouldn't recommend that. It causes many side affects and is isn't a good antibiotic due to the effects as well and it can cause colitis...
Well I looked at my results of calproctecin and its <15mg. Ranges between 0-50. It States not suggestive of inflammation. If previously diagnosed with ibd the result would indicate remission. Don't...
Hi all, not sure if you remember but I had my MRI 3 weeks ago and get my results tomorrow.I had a calproctecin level of greater than 600 the highest it goes but told its not specific. My consultant...
Thanks nice cup of tea. You've been very helpful. I'm considering joining a crohns group that have meet ups. This forum is great but feel Alone with this. Be nice to meet people with the same disease...
Thanks for your replies. I'm sure my consultant would of said and would of ordered a blood test for hepatitis if this is wat I had. I did have a full blood count but not for hepatitis. They really...
Yeah me too. I see him in a few months I think so I'll ask him. Its these kind of mistakes that make some one worry. I've got my partner wondering if I have hepatitis! I even thought that they put...
Hey yeah sure. Ill read exactly wat it says. She has family history of bowel cancer. She had a soft, non-tender abdomen on examination and marked hepatitis on proctoscopy. Indeed she went onto have a...
It also says its acute terminal ileitis including infectious ileitis or crohns disease...
Hi everyone "again" I've just received a letter "an update to my gp" and it States non-tender abdomen on examination and marked hepatitis on proctoscopy. Wat does this mean? No-one said anything...
Tbh I'm not sure I want to know. I seem quite happy with not knowing lol. Things have changed a lot in the past few yrs reg meds I've been told so that gives us some hope to finding a cure for this...
Sorry to bother you again nice cup of tea but I have more info. Just received a letter to my gp. It states I had colonoscopy and showed mild inflammation of the IC valve only. That's cause they...
Yes its baffling to me as it was very severe with an extremely high calproctecin for my symptoms to suddenly disappear after 1 week and currently have only mild symptoms. That's why Dr thinks its...
Hey sorry me again lol. Do you think I mite need to start off on a stronger medication? Can I ask why u think that? Sorry for all the questions but be good to put these things to my consultant wen I...
So it is possible to have mild or even no symptoms and have crohns. I think my consultant went more by my lack of symptoms and my stomach cramps down to IBS. Its good you were diagnosed quite Early...
Nice cup of tea "love the name btw" are you still unsure about your diagnosis? There's so may conditions that mimic crohns. I was on scd diet but came off it wen consultant told me its infection. I...
I'll let you know once I've had MRI. 9yrs to be diagnosed. That's terrible! Crohns don't seem that easy to diagnose. Fingers crossed my consultants right but deep down I think its crohns. Thanks guys...
Very important to say also that after they had their meeting and discussed my case a nurse called me and said the consultant wants to see me as its highly likely I have crohns and my stool sample was...
Sorry that you had to go through this. Yes so many inconsistencies. Its frustrating. I'm glad I did my research and found this forum before seeing consultant as I knew wat to ask. He wasn't going to...
I agree they couldn't reach it but they saw inflammation at the mouth of terminal ileum so assume they took biopsies from there. It was done up 2 the caecum. I think there going by the sample tested...
It states histology of the sample revealed "acute terminal ileitis2 that's all it says. The consultant said it also States there's not a sniff of evidence of crohns. I weren't sure there was an...
The bloating and growling noises are associated with IBS. Sorry don't know too much about crohnes....
Thanks for reply. OK that makes more sense to me. Of course, inflammation mite not show up in the stool sample if I'm in remission. I thought with crohns the inflammation is constantly present. I...
Hi I've just had my consultant appt and he said he don't believe I have crohns and its more likely I had a severe infection. He said my case was discussed in a meeting and agreed there's no evidence...
Hi guys, thanks for replying. My brother is going to call my gp as I feel I'm being a burden. I've already phoned my gp a couple of times. My brother is very demanding. The nurse said the consultant...
I all, I had symptoms since September and suffered my first flare in December 17. Its gone nearly 4 months and still haven't even got an appt to see the consultant. I've been chasing the nurse about...
Thanks for reply. I didn't think it meant too much until the nurse said she hadn't seen a high value like this before. Tbh my stools were very bloody at the time and probably consisted of more blood....
Thanks for reply. I didn't realise I had to use a container at the time. I didn't even think about it. I'll do it again on Monday. Hopefully it did have an impact on results. I understand it will be...
I'm going to get retested. They didn't mention it being a mistake. Wat if it isn't? Wat does having a high result like this mean? I feel I should be in hospital with a result like this although I...
You mite want to read breaking the vicious cycle. Its a scd diet....
Hi all, in December I had a stool sample which said my calprotectin levels were greater than 6000. not many people seem to know much about the calprotectin levels including my gp. The ibd consultant...
If that was me I'll be going to a walk in centre which I have done for constipation. He gave me movicol and the next day it was great. I couldnt go for about 4 days. I didn't have crohns at the time...
I would try to avoid bread and rice. Avoid gluten food as this makes you more bloated. Try chicken soup homemade for a couple of days adding Carrot's. Boiled eggs are good too. Try and stick to foods...