I haven't posted here in a long time but I just checked the forum to see how COVID 19 may affect folks with IBD and I am SO HAPPY TO HEAR YOU ARE OK 3TC....
I quit Rowasa after starting Inflectra + Imuran. Haven't had a flare in the 2+ years since. I think you'll be OK getting off that, assuming you're symptom free....
VSL #3 seems to be completely off the market, from what I can tell. Visbiome appears to have completely taken it over, having won a lawsuit. That said: I took VSL #3 because it was a dairy free...
I think a lot more information is needed to answer any of these questions. - what is your diagnosis? - what are your symptoms? - which drugs have you tried, if any? - what has worked, if anything? -...
I would take it a bit more seriously if Crohn's is being mentioned. See if they can do an MRI of your pelvis to determine if there is activity in your terminal ileum. I was diagnosed with UC until a...
I guess, just to be clear: the ingredients of Inflectra still include infliximab, it just also contains an extra additional compound called "dyyb" which is a suffix used by the FDA to distinguish...
I sure hope not, because I just had my first Inflectra infusion after being told it would be Infliximab for months. Any experiences or info anyone can relay would be great. Thanks :)...
I was thinking I had the same thing, but after a CT scan and then two MRIs (one full body, another pelvis) showed nothing but inflammation. A few GIs - I got multiple opinions - suggested my...
I'm going to stick with both mesalamines until my infusion next week. Does anyone have any reasons why I should do anything different?...
I buy it off their website: https://vsl3.com/ If you order before Wednesday they usually get it to you within 2 days...
I would recommend vsl #3 Hope that works for you and you're able to get back on the bike soon...
Not questioning you at all, iPoop, in fact I greatly appreciate your input. I'm wondering, though: why would my doctor tell me to hold off on the Mesalamines after prescribing these new therapies?...
but you don't have CD, correct? If I do, does it stand to reason that I shouldn't be taking oral Mesalamine in combination with Azathioprine?...
I just spoke with a pharmacist who said he "didn't feel comfortable discussing this unless your doctor specifically told you to take both medications" with regards to taking both Asacol HD + Imuran....
I'm a little torn about stopping what I've been taking cold turkey, before the infusion or the Imuran has a chance to start working. I took Asacol for over 10 years to treat misdiagnosed UC, which...
The way it was put to me (by 3 GI doctors and 2 IBD specialists) was that the Asacol HD is not doing anything for me, as I don't have UC. I'm a little torn about this. I used Asacol for over 10...
I am going to do combination therapy for CD ileitis, improperly diagnosed as UC for ~11 years. I'll try to bullet-point my questions and if anyone has experience or knowledge, I'd greatly appreciate...
Seek a second opinion, can only help?...
Also is there anything I should prepare myself for as far as the infusion goes? Should I expect to feel anything?...
been on rowasa for about 3 years, no side effects...
my diagnosis recently changed from UC to CD. it can happen. I hope you feel better and things ease up for you sooner than later....
It sounds like I need them ASAP iPoop. I had trouble sleeping last night with this on my mind. Meanwhile I still feel symptomatically fine....
My discharge doesn't say any additional information. Doesn't even mention the fistula. Says "PERIRECTAL ABSCESS" as the reason I was admitted to the hospital....
Fistula was located in the perineum - no recurrence yet that I know of...
you were diagnosed with "suspected Crohn's Ileocolitis" - what did they do to treat that? did your diagnosis change back to UC?...
Yikes this is really messing me up...
Yeah, that's what it seems like. The thing is, though: I was dx'd with UC 12 years before the abscess or anything being noticed in my ileum. Mesalamine DID work for me, symptomatically this whole...
The specialist suggested I've had the ileitis "for years" if it's only now being noticed via imaging. I would think you're right that the ileum has never been looked at in scopes before - despite...
I appreciate your directness. What can I expect to change if I move to Remicade + Imuran?...
Hello to this forum. I'll try to summarize my story, and if anyone can give me any feedback/advice/suggestions I'd really appreciate it. I'm very confused and a bit concerned after seeking a second...
I just don't understand how someone can change my diagnosis based on this information...I don't know what this means for my future...
I just spoke with an 'IBD Specialist' to get a second opinion from my most current GI doctor, who had suggested that my diagnosis change from UC to CD. The reason he felt this way was because I had...
Not sure I've ever had sex while flaring - I probably wasn't in the mood, to be honest. I also tend to isolate myself when I'm not feeling well, even if it's no big deal. That said: I've had sex like...
Haha, made that post before seeing Plucky's. Sounds like she and my old GI made more or less the same statement!...
Wow, ok so I just spoke with my old GI about what's going on. Here's what he said, per the notes I took on our call: GI should assess disease activity before changing medication with significant side...
Do you think 6-MP could be an option instead of the Imuran? I'm wondering if my GI prescribed the latter just because it's formulary. It also seems the side effects of 6-MP are less severe than...
I spoke with the new GI's office, they said they could schedule me for a consult in 14 days but they won't set anything up until my current records are sent over. I contacted the medical center and...
I agree, and that's always been my approach as well haha I'm concerned if I do what DBwithUC said - which I think is pragmatic - then it becomes more of a difficult change if the new GI suggests a...
I've been able to find a highly decorated IBD researcher GI doctor off the CCFA website. I will be contacting him tomorrow and setting up a consultation ASAP. I just worry about dragging my...
Or is there? Why are they seeing inflammation on CT scans and MRIs and why do I have rectal pain? I have no issues with BMs whatsoever, no cramping - but there does appear to be inflammation...
I'm calling a pharmacist now to find out...
Thanks so much, Plucky. Another question: do you think it's OK to stop the prednisone cold turkey after just one dose? It was 60mg, which I know is pretty high......
I didn't do any course of prednisone prior. He'd suggested it, and (like today) I took one dose before deciding to discontinue. I'm looking into places to get second opinions. It's tough because I...
What else causes inflammation? If something else does, would there be a different way of treating it?...
Plucky, I've been showing inflammation in tests for nearly 2 months while being on only asacol HD and rowasa...you really don't think I need to change anything at all?...
Well...I just popped in 60mg of prednisone before reading plucky post... So you think getting a second opinion is worthwhile? Or just trying the pred taper before imuran? If you think my doctor is...
I tried to go without prednisone since late March, using only Asacol HD and Rowasa enemas and apparently my inflammation didn't go down, though my symptoms have been under control. That's the reason...
I see a lot of people still take 5-ASA medications while also taking Imuran. Is there any reason why my GI would suggest I stop the Asacol HD and Rowasa then?...
The doctor wants me to discontinue the Asacol HD and Rowasa immediately. As I mentioned already, my IBD symptoms are all under control - solid, regular BMs about 3 times daily, no blood or mucous or...