Hi everyone! I was diagnosed with mild crohns (I'm lucky, I know!) a few months ago, suspected it's been very mild my whole life and brushed off as Chronic Fatigue Syndrome and IBS. I know the...
Stevo68- interesting...so the Pentasa doesn't put you in remission, but keeps you in? What helps to get you into remission? That's the part I'm struggling with....
@beave- I know what the research says, but I also understand there are some folks on here who it has worked for, so I'm really reaching out to those folks to see what their experience was like....
Disclaimer: I know all of the research on Pentasa not being better than a placebo for Crohns, but it is the only drug I could get patient assistance with, and $700 a month for everything else was not...
Thanks for your wisdom, everyone. There was no way to make Uceris cheaper than $500 for a 90 day supply, and while I said I'd find a way to pay it, they're putting me on Pentasa now, which I can get...
@Ides- I did that...but they said it's still $400. I'm not sure what's going on. Hopefully I'll be able to figure it out. Insurance issues are so frustrating! I have been waiting a year for...
I was recently diagnosed after years of being sick, and I finally got a prescription and WITH insurance it's $600. So we tried another, for Uceris, and that was $400 with insurance. Help! How does...
Final word: ileitis, cause MAY be from crohns, or from ibuprofen (I still don't buy the ibuprofen cause...). Because Pentasa was $600, they're putting me on budesonide. Hopefully it'll help!...
@oldcrohnie--I'd start the Lialda, but the form they gave me is $600 with insurance, so they were going to work with my pharmacy, and then the next day is when she changed her mind and decided I...
Sorry, I did have blood tests for CRP and ESR, but both were normal, I think. I often have deceiving bloodworj, though, in my medical history. Once I had a golfball sized abscess and my white blood...
Yeah I need to talk to my doctor again on Monday. They have gone back and forth every day since Wednesday. Literally calling me saying "it's crohns! It's not crohns. It's crohns! It's not crohns."...
Well, apparently we were all wrong. Someone please help! The doctor just called and said after consulting with IBD colleagues, they think it's just IBS now and that my 15+ ulcers were caused by...
Your GI told you to eat less fat? The point of the test isn't to see if you're eating too much fat...it shows you have malabsorption problems! Avoiding the fat is not the solution, at least from what...
Hey @oldcrohnie--you were right! The area in my terminal ileum unfortunately was newer ulcers (they think?) so it didn't show definite chronicity for a clear Crohn's diagnosis, but with my symptoms,...
Thanks for your replies, all! It's so helpful to have a community of people who have experience and understand what's going on! @Surfer21: So sorry you're going through this! We are definitely...
Hi! Sorry, I know this is a late response, but I had a pretty high elevated fecal fat test, and that led to a fecal calprotectin...which led to a capsule endoscopy and a crohn's diagnosis! The fecal...
Peppermint oil is a major game-changer for my nausea! I use it on the back of my neck and my abdomen, sometimes on the inside of my wrists, and it greatly helps me....
Hi everyone! I am a 23 year old female with a family history of UC, and after years of being sick, I just was diagnosed with small bowel Crohn's. I've had flare ups since age 7, with doctors writing...
Thanks for your replies, everyone. I agree that I think it's an insurance issue because the meds are so expensive. @nicecupoftea: yes, celiac disease biopsies all came back negative. I also did low...
Hi everyone...new here! I will explain some background briefly, but I have suffered from GI problems since age 7, with a family history of ulcerative colitis (my dad was diagnosed at age 9 with...