Okay thank you beave. That makes me mad that he’s been having me take It. But I’ll get the blood and stool done next week then go from there. Thanks everyone for the help I really appreciate it!...
That’s so weird, my GI insisted it’s a good med for Crohn’s in the ilium.. I’ll have to ask him about It. The last colonoscopy I got was in the hospital from my GI (he’s the on call GI at my local...
I haven’t had a blood test for about 6 months, and then haven’t had a colonoscopy since June 2017, and then the last imaging I got was in August of 2017 so I’m overdue. I am currently taking...
Got It thank you! I took then about 4 hours ago so I’ll keep an eye out lol. My symptoms during a flare are bad pain in lower abdomen (mainly right side) urgency, diarrhea about 5-10 times a day...
Oh really? I’ve been having blood and mucous in my stool so the only other thing I could think of would be that, because the capsul is red too...
Hi everyone! So I’ve been in a flare up for a week and I just started on budesonide. It has actually worked for me in the past, but today when I took It, I had to run to the bathroom about 20 min...
Hi everyone, I haven’t posted in a while because I have been having no Crohn’s synptoms! Well unfortunately, I believe it’s back. I’ve been having the typical flare symptoms, D, nausea, severe pain,...
Hey! I’ve done ozone multiple times. I’m 20 and started ozone when I was 15. It helps if you do It regularly. There’s a certain number of sessions that are recommended. It helps bring down...
Thanks for the replies ! So my doctor just order a lab to show my markers for inflammation, I am currently not taking any meds because we are trying to find one that works for me. Usually when I get...
Hey everyone! I was diagnosed with Crohn’s in 2017 officially but have been dealing with It my whole life So I’m not sure if a flare is beginning. I haven’t been having D, but I get woken up every...
Hey all, So I posted about a week ago saying how I lost more weight and I’m at 95lbs and 5’5. I wasn’t in any pain or going to the bathroom that much. Well a couple days ago I started having really...
Thank you all so much for the advice I really do appreciate it! I drink tons of water everyday so I don’t think that is my problem. And ipoop, now that you mention It I do have Graves’ disease which...
Labradorite, I lost It a little over a Week. Hmmm ok I’ll try out the ice cream thing haha and orbit butter I do tolerate....
Thank you scifi. I will definitely try that out! And ok I’m glad to hear this is normal for crohns...
Hey everyone Hope you all had a great Christmas. I need help with some suggestions on how to gain weight and what I should do. I just lost 5 lbs for some reason and now I weigh 95lbs. I’m 5’5,...
Stray dog, good memory! Yes I was. I was able to email his assistant who said they were directing all their patients to go to urgent care to get a prescription there. So I went and I urgent care dr...
My gi only prescribed me pain meds once then referee me to a pain management. My PM doctor has been great. I get my scripts every month for the past 4 months and he never makes me feel like a...
It was clear I needed something while at the er, I passed out and was in awful pain and severely dehydrated with a rock hard lump in my ileum and I hardly let them touch. I didn’t even ask for...
I really don’t understand it either. I’m furious, not a single person mentioned it to me so they just left me hanging. It is irresponsible. I call a week ago to make my my next appt w him and that’s...
Hey everyone I don’t know what to do! I have been on Tramadol and hydrocodone for 4 months due to Crohn’s disease and 3 disk bulges in C1, C4, and L5. Well I got my last prescription a month ago and...
So I received the biopsy back from my endoscopy the other day, and turns out I have Candida throughout my GI tract starting at the esophagus. My GI called in diflucan for me.. has anyone else had...
Oh I forgot to mention that he did find a few ulcers in my esophagus, as well as some candida...
Beave, hmm that's weird I'm so confused now lol. I'm confused because I've seen all the posts how lialda does not work for crohns, so I asked my GI that question today and he said that it does and...
Thank you gumby!! Oh ok that's good to know! I'm somewhat new to this so I assumed ulcers took a while to get rid of considering I had a lot, so when i was told everything looks perfect I couldn't...
Hi everyone, I just got home from and endoscopy small bowel enteroscopy and everything is clear! Almost a month ago I had a capsul endoscopy that showed a lot of ulceration throughout my small bowel...
Hey Sarah, that's when I got diagnosed too. It gets waaay worse every time I get a flare up, I almost pass out every time I stand up. So annoying :/...
Hey Sarah, I have ulceration in my stomach also, not sure if that's the same as polyps.. and I noticed that you have POTS, I have it too!! So weird. Do you mind me asking how old you are?...
Also, I would do a liquid diet for a few days if I were you, it always seems to help my pain level. You should look into the SCD diet...
Hey Sarah, That was exactly me!! In the er in pain, dehydrated, and basically a skeleton and all they would do is give me morphine, zofran, and fluids and send me off. It was the most frustrating...
Hi I'm sorry you're going through this, I know how frustrating it can be when you're in so much pain and they can't find anything. I'm 19 and had the same problems since I was 14. 2 colonoscopies and...
Yes the same thing happens to me!! Except my pain is in the lower abdomen where I have all my inflammation. It all started for me about 3 months ago after I got out of the hospital with a major...
Mryne can you give me more info on TPN please? Have you done it? And would I just ask my GI for it or do they do it in the hospital?...
No Colon, thanks so much for sharing your story! That gives me hope and helps me feel less afraid. I'm glad you're doing so well now! Myrne, yea I have been on some pain meds for relief. It seems...
Thank you gumby. My GI was just trying to do the mild meds first and see if that helped before doing the harsher ones but I think that's what it's going to come down to...
Hello all, So I just got the results from my pillcam, and they are pretty discouraging. Tons of ulceration throughout my small intestine and even some in the bottom of my stomach! I was on Uceris for...
Hello everyone! So I have been steadily loosing weight for 3 months now. Had a big flare in may and lost 15 in 1 1/2 weeks, went from 125 to 110. I am a 19 year old female and I am 5'5. I was out on...
Thank you everyone for the replies. I don't understand why my doctor would prescribe it if it doesn't work :( ugh well I'll see how it goes, I can always switch medications if I don't see...
Hi everyone, I've been on Uceris and I'm am about to start Lialda. I'm wondering if there are any side effects I should know about, and if you have ever been on it and seem good results I would love...
Hi Brooklyn, yea I'm forsure going to get a second opinion now. My crohns dr does not want my thyroid to come out because he thinks it will cause more stress to my body and making the crohns worse so...
Jeanneac, I'm dairy free, gluten free, and vegan haha. But thank you! And I have Graves, my levels never go low. Straydog, I think i am going to go get some other opinions, thank you!...
They want to take t out because I've been on methimazole for almost 4 years and you're only supposed to be on it for 2-3 or else it could start effecting the liver. I was in remission for about 6...
Hi there, I am sorry about you dx. I have been usin CBD for a few months and it really helps me! I'm on Uceris, but whenever I'm in pain I take it, or rub it on my stomach and it really seems to help...
Labradorite- No I was not on any medication at the time...
I had appendicitis in August and it is actually pain in the lower right. It was very painful to touch and with any type of movement. I had a mild fever of 99.8 and no nausea. It was mostly just bad...
That's happened to me before, it happened after I was comtipayed for a couple days so it was just sitting in there. Obviously if it not coming out it's just gonna stay in there! That sounds like...
I just buy anything from sprouts, Trader Joe's, or Whole Foods that says free range organic chicken...
You just told my life story! I'm 19 and have going through the exact same thing since 7. Finally got diagnose about 2 weeks ago in the hospital through a colonoscopy. I finally was able to start...
Red, Yea I was referring to Crohns because I don't know much about UC even though my cousin has it haha, I heard that bentyl works well! My friend has IBS and she uses that....
Hi, I am sorry you are going through this! I have Crohns and it seems like that is more IBS compared to IBD since your stools are somewhat formed and since the flares got away on their own. I am in a...