I have used Isatis Cooling in the past year and it's working for me. If I see blood and/or mucus, I take some and it usually go away really fast. So it's perfect to use when I see a flare coming or...
UFCC is ok, but I do prefer the 80 Bilion (Colon care). It seems to be far more efficient for me, so the extra dollars between the too are worth it! But anyway, Renew Life are the first probioitic...
Therearmiracles : So sad to read about your kidney episode. Hope you'll find the solution that works for you soon because you suffered enough. Not fair at all. I share your frustration, but at the...
Hi Crohnie91, I'm on Stelara since April. I had absolutely no response to Remicade, so we dropped out the anti-TNF solution. We choose Stelara because it works quicker than Entyvio. I never really...
I would give S. boulardii a try. It's a yeast probiotic known to be protective against c. Difficile. It's the perfect probiotic to take with antibiotic as they don't interfere and it also works well...
yea! really glad chinese herbs works for you too therearmiracles! Isatis Cooling works very well for me! I used it the first time between two Stelara injections, before my dosage got double, and the...
therearmiracles, thanks for the update! Will there be another GI to U of M who will be willing to go to 4 weeks ? I'm sure there's other GI out there that find out that 4 weeks works better for some...
Hi! I just wanted to share my improvements with you guys! A month ago, I had my first Stelara shot every 4 weeks. Before that, I was feeling that Stelara every 8 weeks was losing efficiency. I...
I do tolerate well Vega Proteins & Greens, the taste is ok and the amount of fiber is low, a naturopath recommended it to me. Never tried bone broth powder, but I think a brand do a tasteless bone...
I live in a low altitude area and I do get trigger by long flights. I went to Europe twice to low altitude destination (Strasbourg and Barcelone) while in remission and when I got there, blood and...
Very good informations, thanks everyone! Canaveral, even though our stories are different, everytime I read you, I fell like our disease act similarly. On my last flare, I was such in a bad shape...
therearmiracles, So excited to read your post! Seems we both did the good thing to give it a try. So happy that it does give you some relief! And it super weird that we feel the same about it. I did...
therearmiracles, How are you doing with Isatis Cooling? I just finish 10 days of Isatis 3x 3pills/day and got really impressed. Like, what are those herbs? Almost frustated that this medecine is not...
When I use to be in remission, black beans and hummus were the only legumes I could eat without symptoms!...
Hi everyone, For Isatis Cooling users : I'd like to know how you use it on the long term? The recommended dosage is 3pills/ 3x day. Do you stick with this dosage forever? Or is it more like an...
therearmiracles : I'm scared about chinese herbs too, but when you think about it, prednisone is such an awful drugs and I just never want to get back to it :( so I'm at the point I'm going to do...
U B Tough, I'm on stelara since april and I feel much better! But still have more healing to do : stools are still loose and I have too much bathroom trip. So I would say I'm on the road of...
Hey guys, So this is the update about my situation with Stelara : I've got some test results mid-July, they were my first results since I completely stop pred (and easily, thanks to Stelara!). My CRP...
This is so interesting, a lot to consider! I might bring that study to my GI and nurse next week. I've got recurrent c-diff in the past. I got treated everytime with antibiotic, prednisone and...
I got 3 round of Vanco in the last year and I'm pretty confident that I kick c. difficile ass last april, finally :) Hard to tell, but until the last round I had the feeling that it was still there....
Hum, I don't think I should ever drink coffee, but I'm really addicted... I do enjoy it with a fatty coconut milk (be carefull with the differents brands, I take the one with only coconut milk and...
Hey guys, Thanks for all the inputs! I wrote this post as I was leaving for a 10days vacation trip. And this sore throat turned out to be a bad cold... I don't have cold really often (not even once a...
Hi, I am very sorry about what you are going through. Tough times, got c diff a few times and it is really hard physically and mentally. Hang on it will get better. The ER should have put you back on...
For reflux, I took some antiacid or almond milk in the past. Now I just avoid the food that trigger it (mostly fat stuff) so I had no med prescribed for that since it's mild and avoidable. My throat...
Thank you for the quick answer! It's constant sore throat since a few days. I thought it was a cold first, but it just doesn't evolve. Not worst but not less painful either. I had reflux before and...
Hi everyone! I'm on Stelara since a few months (see my signature) and I'm doing better and better every day. The thing is I have a painful sore throat down my neck since a few days, like when I have...
First remission : Mezavent/Lialda + Cutting dessert, red meat and processed food. Second one : Stelara Alternative method : Cabbage juice didn't put me in remission, but it makes blood and pain...
I only tried Remicade and Stelara. I would go for Stelara for different reasons that was shared with me with by my medical team and also for the verrrrry subjective reason that it works for me and it...
Hi Keith, Sorry for the delay, I wanted to ask my nurse. Right now, I'm on 90mg every 8 weeks and it would be 90mg every 4weeks. I've got my results back for my CRP and it's now 17 !!! Never got that...
Hey guys, So I wanted to add my testimony about Stelara on this post, there's not many people on that medecine that are posting. I did my second dose of Stelara 1.5 weeks ago and I am doing great!...
I've got a few false negative in the past, so yep I really think it's possible to have 2 false negative in a row and still have c-diff....I do not trust those tests, so I am paranoid just as you. You...
I'm going to try to answer all of your questions, but everyone story is complicated (and english is not my first language!) :P What were you taking prior to Stelara? I was put on Remicade last...
Hey Plucky, Since you posted tuesday, I was thinking about the different treatments that your new doc proposed you. I was put in the same situation 2 months ago as in my case, I do not response to...
The metamucil is yes fiber, but not any fiber. Metamucil is psyllium pills, which is really high of a specific soluble fiber called mucilage. Opposing soluble fiber, there's insoluble fiber. This is...
I think it's the same for me too. I have to stay on high dose of S. Boulardii to avoid the D and it's not always working. Like it doesn't work with the same efficiency if I take it too fast after or...
Miracles, As you said, there's many factor to consider with your fatigue : Stelara shot, pred got down to 5mg, low iron and low vit D. If it would be my body, I would first attack the iron problem. I...
I'll have my second dose of Stelara in 2.5 weeks and they are going to show me how to inject myself. I'm a bit scared to inject myself, but really really glad to hear it doesn't hurts :) Since a week...
Hey Plucky, I follow your post since the beginning and I've a lot of sympathy with what you've been through. Looking for the good GI and having a flare at the same time is not easy. I have hope that...
Yes antibiotic and prednisone is not usual cocktail and it can be scary. Buuuuut, in my case, it does work really really well! I'm back from a flare with this treatment right now and I'm feeling...
I tried different natural remedies and we seem to react all so differently. What did worked for me : cabbage juice for blood (I was really surprise, it is very effective in my case), probioitcs,...
I agree with every comments here. Vanco works well for me too, it takes me 48h to be effective. Vanco with Prednisone is not a long term treatment, but when I'm on it (like right now), it's like the...
Arghhh this is so frustrating, no one is shipping to Canada... :( May have to go see a Chinese herbalist and order with them. This is not going to be easy ahahah Thank you for the quick answer and so...
Are you taking Isatis Cooling from this company : Health Concerns ? I just want to make shure I order something reliable! Thanks for sharing, heard only good about this supplement, I may do the move...
Hey Canaveral, I am in the same boat as you with recurrrent c. diff and my first thought could be totally wrong because this bacteria is getting me crazy/paranoid. In my case, the more I am infected...
Miracles, So glad you're getting better, it's encouraging. I just got re-diagnosed with Crohn yesterday (that was quite surprising) and I'll start Stelara on monday. I'm excited, results looks good...
Hey, I posted a lot recently on this forum about C-diff. I got 2 c-diff and still struggling with it right now. It's good that your GI didn't gave you prednisone, mine did it and I feel that it's the...
Ahahah so I am all over your posts Canaveral ! Seems we have a lot in common recently :P I think I said it before, but I may repeat myself to give you a complete answer to your question. My case is...
Hi Canaveral, The fact that it got stronger for both of us isn't a coincidence. C-diff is well-known to be antibiotic resistant. Yes it's stressful, but it's good to know that people like us, with...
Canaveral - I would say about 3-4 weeks. I said it before, but I got surprised how strong the c-diff was this time! I tapered during two months in 6 steps, I don't remember exactly, but it looked...
Hey Canaveral, it's good to have news from you. Sad it's still not getting better enough.. I would be worried too :S 2 week seems really short Vanco treatment for a second (third?) c-diff. Maybe your...