I'll try to be brief - recently had surgery for a seton placement. Like my surgeon a lot. Had surgery with her 3 years ago. She has a good relationship with my gastro. This time, after 2 weeks, the...
I'm pissed. I'll skip the history and go right to the issue. I reluctantly had surgery about 3 weeks ago for an abscess drain and seton placement. After 2 weeks the knot in the seton popped while...
Any have one and if so, what do you think? How do you feel about having your doc try to install one if they've never used that particular seton before?...
Thanks Scifigal. I'm going to get it done. I spoke to my doc tonight and he convinced me, as much as I didn't want to hear it. Your post pushed me down that road too, as I've been on antibiotics a...
I'm going to try to keep this short but provide all of the relevant info. 2+ years ago I had an abscess and three setons placed for a large fistula - 3 surgeries in all. Awful. I didn't like the...
Paul, I had this just before I was diagnosed with Crohn's maybe 15ish years ago. Just excruciating stomach pain, mostly at night. So bad I was in the fetal position in bed just trying to control my...
I'm mildly freaking out. Here in GA and someone just died from the virus in my county. Watching a press briefing from the Governor as I write this and a medical staffer said, if you are on an...
Sorry for the slow response on here. I'm fine! One course of strong antibiotics and it has gone away. My doctor thinks it was a buttock abscess rather than an anal abscess. I don't know, but I'm...
So two years ago I had an abscess. A couple of surgeries, a bunch of antibiotic treatments, months of missed work, 3 setons, and started Remicade, and I got back to normal. Now, I can feel a pain in...
For the first probably 8 or so years of my Crohn's journey my exclusive symptom was occasional (once every few months) but EXTREME stomach pain. Once the pain localized to just above my belly button...
So I've been on Remicade now for maybe just over a year. So far, so good. A couple of months ago I had a low white blood count and my G.I. doctor brought me in to "check it again" because he said he...
Over 1 year ago, I had 3 setons placed for an anal abscess with related fistula. Since then, I've been put on Remicade and changed my diet up and have been doing pretty well. A few months ago I had...
My doc is recommending Hep A and B vaccines since I'm on Remicade and my immune system is compromised. It looks like this is typically recommended, but I figured I would ask on here. Also, does it...
I'm on Remicade currently. Only Remicade. Once every 8 weeks. I'm going to talk to my gastro-doc about what we might be able to do. I change my diet to SCD (not super strict and no yoghurt) some time...
Some background - I'm 50. I was diagnosed around age 38. Only symptoms were extreme stomach pain. Given Pentasa and was on it up until last year. Last year, around March, I developed an abscess and...
So... I saw my colo-rectal doc and got an MRI. No new abscess!!! Got my infusion today and am feeling better. Oddest damn thing because my butt-cheek was crazy inflamed, but I'm not going to...
I'm usually pretty skeptical of anecdotal evidence, but I'm aware, clearly, that there are a number of folks on here that have seemingly had significant benefits. I'm also on the SCD diet, so I...
Guys, I need some quick help - just if this course of treatment seems normal or not. I've been on Remicade for maybe 8 months to help with fistulizing Crohn's. It's been fine, but about a week before...
I went about 12 to 13 years with basically one symptom - essentially quarterly extreme stomach pain that lasted a day or two max. Now, it is much worse as I woke up one day with an abscess and...
What scifigal2k said - it depends. I'm surprised they put a seton in on someone without Crohn's. I thought they just operated for that and cut em open. Setons, I thought, were for Crohn's patients...
Jason, Super hot baths for the pain are a good, but temporary, relief for the pain. I'm hopeful for you that the lidocaine gel works, but I'm going to go out on a limb and say it's not going to give...
Jason, Have they put you on Remicade or talked to you about going on Remicade or Humira? I was in agony, complete agony, for months and my docs gave me all kinds of Hydrocodone for the pain but it...
So I've been on the SCD diet now for about 4 months. So far, so good. The one thing I notice is that for snacking, it's just way easier to snack on raw nuts. Almonds, pecans, cashews, pistachios, and...
So... Had Crohn's for a while now. Currently on Remicade and have been for a few months. I'm also on the SCD diet (couple months) although I'm not ridiculously strict and don't do the yogurt thing....
Swan07, I feel like I'm in the same Swanboat... I have a horseshoe fistula and setons in place. I'm just waiting for the Remicade to work its magic and heal this thing. I suppose the good news is...
Sorry to hear that. I used to joke with a friend that I had two kinds of bowel movements - emergencies and accidents. I've been lucky on the accidents front though. It sucks. This disease just sucks....
I do have Crohn's. I'm currently about to start my maintenance dose of Remicade (completed loading doses last month). I need it bad too. The further and further between loading doses, the seemingly...
I am having a lot of discomfort with 3 setons that I currently have for a horseshoe fistula. The knots migrate into the wounds causing all kinds of issues and I hate them. Went for a second opinion...
Dimitri, Was that "Irish Study" you referenced on patients with Crohn's? I read it twice and I saw no mention of that. I ask because treatments for patients with Crohn's are just different. I...
DBrookenz, Yes, I have Crohn's. Had it for about 13 years. I currently have 3 setons for an extremely complicated horse-shoe fistula around my anus. I am relatively symptom free with respect to my...
Jesus I'm sorry. That just sucks. I'm almost afraid to ask what you've been experiencing down south as I've been having my own horrific issues down there lately. I'll keep you in my thoughts and hope...
DBrookenz, I agree with Dimitri. As long as there is no cutting into the muscle, you should be able to operate in the area a fair bit. Ask your docs, they should be able to put your mind at ease,...
Thanks guys. Always helpful....
I saw my doc yesterday and apparently the knots are migrating back into the wound and it's hurting right at that location. Blood too. It's happening too frequently, tbh. I actually talked to my doc...
Just curious. During my loading dose I had almost immediate, positive relief from my symptoms. After my first maintenance dose, I had a flair. Now they want to double my dosage. I've read online that...
And if you are not, how do you do it? I'm never quite right for any length of time......
Not gonna lie... Flagyl is doing nothing for me. Last year when I was bad, I think I went on 3 courses along with Cypro (I'm sure I'm butchering the spellings) and neither did anything....
So... I'm in a bad way. After a year of continuous pain, 3 surgeries, 3 seton placements, and a ton of antibiotics, I finally started Remicade. Got a bunch of relief almost immediately. Had my 3rd...
I just turned 50 and I've thought about it recently, although not enough to look into it to see what the actual benefits (meaning money) would be. I still have 2 in college and plan to have a...
Lab, They did it so fast because my nurse was an idiot. Took her 4 times to not find a vein and had to get the phlebotomist from the practice who found it on the first try. Then the hour and 15...
I'm not sure what's going on. I've had a fistulizing abcess since April of last year that I've got 3 setons for. I started Remicade in maybe December of last year and within 48 hours of the first...
I've got three, but not RV since I'm a dude. I've had them in for a few months now and am just getting off of my Remicade loading dose. Setons can be in for months, years, or forever. Hope for...
There is a juice drink called Good Belly that contains probiotics and actually tastes good. I usually use it as the juice when I make a smoothie. They've got a few flavors too, which is nice....
Is there anything I should be worried about? I'm actually kind of excited that I might finally be out of pain, even if it takes a few days, weeks.... whatever....
I saw my doctor today and he told me I was finally going on Remicade (pending insurance approval). I asked him a bunch of questions and then finally asked him, "so, assuming I respond well to the...
When I was first diagnosed, I had exactly what you described. My pain would usually last for a night or a day and then I would just feel really weak and tired for a couple of days after, but...
Newmommy26, I have exactly what you have. A 270 degree fistula and 3 setons. Literally, and figuratively, they are a pain in the ass. I have no idea how technology has not moved from the place where...
I have 3 setons, currently. Had them for over a month. They hurt a fair bit and irritate a lot. The knots suck. Wiping sucks. I have lost 30 pounds trying not to eat so I don't have to poop, cause...
I am having abscessing, fistulizing Crohn's right now. 3 surgeries and it's under control enough where my docs are telling me I can go on a biologic. I know they like Remicade for what I have, but...
I currently have a seton for abscess drain and my parents (old Jewish people from MA) are pressuring me to get a new doctor because I'm just not healing and keep having setbacks. I like my current...