Thanks for responding. Yes the recovery is 6 to 8 weeks. I did call the office that the nurses are being dispatched from. They are going to send out a wound care specialist next week some time. Just...
Hey guys, I haven't posted for a while. On October 23rd I had an open surgery. They resected my ileim. Also my Sigmoid colon due to a fistula. They repaired my bladder due to another fistula. And...
Well I'm an idiot. I felt better, so I decided to dig a few holes for fence post by hand. I was in so much pain the next day I had to go to a walk in clinic again. He sent me for xrays and told me to...
Wow. That naproxen helped. I took it with dinner and it did help with the pain. I do get my Remicade today. Im up to 800 mg. The doctor is testing to see how much is left in my system today. So I...
I was given Naproxen. I haven't taken it yet but my GI said he's ok with it. I smoked a joint instead. I do feel better now The GP said he thinks im going through withdrawal. I get my Remicade IV...
Does Remicade mask Arthritis because usually my last week I am in pain. Neck and back. Like I'm pounding Advil today Please advise?...
Hey All, In the last 1.5 years I have been bumped up from 400 mg to 600 mg and now 800 mg. It seems like it has worked 50% of the time I've been on it over the last 4 years. Anywho, lately more often...
I have used a tincture for Crohn's now for 5 years. If you YouTube tincture for Crohn's - you will see me I does help. I know some people can't handle it. But try it. Thats all the research needed....
Yes. I agree. I'm asking for surgery before it becomes an emergency surgery....
Been on Rem for 5 years. The Imuran I showed resistance to. Had been on that for 7 years. Steinhart said there is no other drugs for me before Surgury. But he didn't mention what I would be on after....
I have discontinued Imuran. Remicade is wearing thin. And I am eating no veggies as they block me with in hours. Wheat closes me also pretty quick. I have 6 inches of scar tissue and still active...
I haven't posted in forever, but I have discovered something of value - to me anyway! I have recently went off all veggies completely. (of course I am taking a vitamin supplement) after having...
It took 4 years to heal my bowel to bladder fistula. Haven't had pain there in a while!...
Cannabis is good for managing pain and nausea. But it is not going to cure you. I use it to gain appetite mainly. Eatting gives you energy....
My thought maybe was that the extreme activities may have lowered my immune system - allowing flu or other feelings of weakness and nausea...
It seems I was flu like ill yesterday and not as much today. I took my family skiing Friday night and I taught my 5 year old how to ski - well more like taught her how to stop... It was pretty...
I don't think you will have any long term worries. But I'm sure there are horror stories out there....
How much prednisone are you weening off? And how long have you been on it? I was only on it for two months. Started on 5mg but was brought up to 20mg after the first round. I had to see my GI for the...
I've just passed my 3rd year on Rem. I found out that the doctor has kept me on the low end of the treatment. Now that a MRI has shown scar tissue, and new activity, the doctor has decided to up the...
I do have a bowel to bladder fistula and I have had burning pain. Aspartame is my biggest enemy, so stay away from diet drinks or sugar free gum. I found that chemicals in food or drinks (even...
Things that make me fart! Coffee - is the biggest for me. White sugar. Dairy..... But I agree NCOT, SIBO could be a big deal in everyone's life, even people without Crohn's. SIBO, could be caused by...
I saw the doc today. After 3 years on Remicade, we reviewed my MRI from last week. It showed some scar tissue and narrowing, but also some active inflammation markers etc. He did get a better view of...
Hey man, I have my card in Ontario. It is really easy to get if you have been medically diagnosed with Crohns. Where you are from, hopefully has these same rules! I order from a company called...
I use MJ as a tincture and I also vape. I would think the THC side of it would help for pain, also nausea, and obviously appetite. I would love to see a combination of CBD and THC at a higher...
I started with severe constipation and an anal fissure. An ultrasound showed a thick small bowel near the end. My family doc put me on Prednisone, the first round was not strong enough but the second...
Well... I have been battling food for a long time now.... tried the SCD diet for two and half years but the high fiber killed me. I was taking just the imuran at the time. I finally went on Remicade...
I wanted to create a thread about food sensitivities. What makes your crohns disease worse or flare? Please list foods that make your crohns worst, that are not on the list. Maybe there are foods...
i suffer from consent stricture pain and bloating. When i feel it starting to close up, i turn to a liquid diet. But the number one relief is wine, 2 or 3 regular glasses. the wine gets things...
I hope it is just the sun. Problem is that I work outside. We also are on the boat every Saturday. And we are going camping this coming week. I have a 3 year old and a 5 year old and they beg me to...
Hi everyone, I have been doing really great on Imuran, remicade, and MJ. But recently at work and home I have been getting really sick. Just headaches, stiff neck, nausea. My wife thinks it is too...
I work in Ontario as a Power Lineman. I was diagnosed 5 years ago and I haven't taken too much time off. I have always seemed to have a good large bowel, so I never suffered from the D. Many days...
https://youtu.be/DHqXmFCsSRQ I been using MJ now for 2 or 3 years, this is how I make it....
I have been taking Remicade now for a year. Best thing I have done so far. But the two fistulae I have are still active....
I have been using MJ now for two years. It increased my appetite (and energy increased by eating more). But the best thing about MJ is that it would decrease my bowel movements when I'm using it....
I have back pain when I'm flaring. I lost about 20 lbs once (kept it off for a year) and I did not have any back pain at all during that period. I'm now 20 lbs heavier again and the back pain came...
I belong to a place that dispenses weed. It's called the Toronto Compassion Club. You only need a signature from a natural path. I live in Orangeville. My family doctor sent me to a medical marijuana...
I like it. My guts seem to be a lot more stable when I take it....
I went to my family Doctor for a yearly check. She had my blood sent to a lab and it came back with a slightly low platelet count. She isnt worried as long as it doesnt go much lower. My question is...
I have been on Remicade now for six months. No premeds. No reatactions. No sign of antibodies. Just had my 5th infusion I think. And my next one is Mar 24th. I find it takes one week to kick in. Then...
I just filled a prescription for Nabilone. It is a synthetic cannabis pill. I have been using cannabis tincture for over a year and a half. It has helped with appetite, nausea and energy. Just...
When I first discovered I had problems, I too had severe constipation. Anal fissures repeated. I found things with a lot a starch (mainly rice) had constipation effects on me. Things I do now when I...
It's not yet legal in Ontario but I do get my cannabis from a dispensary that the government allows. Then I go home and make a Tinc...
I had low energy and not much of an appetite. After 7 days on a Tincture I was starving when I came home from work. And better energy....
Well surgery is all I'm thinking about now. I'm still have stricture pain today. I know I have been eating crap for the last month being Christmas. I was SCDiet strict for almost two years and it was...
So what's your opinion on surgery? A resection and fistulae repair? I see your not on meds. So it must be a positive move...
I have never had much D. Yes urgency and little mucus. But I have alway had strictures. Usually every 2 months I'd be puking and major contraction type pain. Hot and cold flashes. At that time I...
I have been on Remecade now since basically Sept 1st. I have had great results and no reactions that I have noticed. But I have had periods of stricture pain (no barfing, but pain and bloating with...
Thanks for all the replies!...
I wanted to take a poll to find out what may be an average time between resections. I have been fighting the idea of surgery. But I have softened up on the idea lately. I can see this being the next...
Too much reading above but I am still on Imuran. Been on it for 3 years. It never fully worked. On and off entocort. But I still had a structure just before I stared to ween. But I have been on...