If you had started infliximab from the very beginning, i.e. 2016, could the surgery be avoided? Are the strictures in your small bowel fibrosis or mostly from inflammation? If the former, then you...
I second beave's opinion that anti-TNF is preferable treatment. I am current on Humira for my small bowel Crohn's Disease. I heard Remicade and Humira are the main options for anti-TNF. I did some...
I joined the Facebook group last year, shortly after my surgery. I was very depressed after joining the Facebook group. The graphic pictures, the misery, tortures and unbearable human sufferings from...
Before I was diagnosed of Crohn's, I had more gas than a normal person would, especially in the years preceding my diagnosis. I am also lactose intolerant, but I found that onions can produce a lot...
Hi, Susie, I am sad to hear of your daughter's diagnosis. She is at such a young age, it must be difficult to accept. I just hope there is good treatment with the advancement in medicine. Life is so...
Hi, Tom: How long was your daughter on Remicade before she had to switch off? Did she have to stop Remicade because of antibody? I am currently on Humira and my GI doctor told me that if a biologic...
Your doctor's must be talking about Humira pen, which you can use for self-injection at home. Humira is just as effective as Infliximab. But Humira is administered very two weeks, so each time you...
Hi, Tom: The ultrasound that your daughter had is designed to see organs in the abdomen such as the liver, gallbladder, pancreas and spleen. There is the newer type of ultrasound that can see small...
Is the iron your daughter used called ferrous bisglycinate ? https://www.buoyhealth.com/blog/supplements/best-iron-supplement-crohns The Editor's Choice For those seeking a dependable iron supplement...
Has anyone tried any oral iron supplement without causing a flare? I have Iron Deficient Anemia (IDA). I used ferric carboxymaltose iron infusion, which caused severe hypophosphatemia. The...
Click Here to know how Soybean Oil Could Lead to Gut Inflammation....
Hi, Randy: I wasn't paying attention to the yellow follower, but will look for that one next time. I saw a circle impression with a red dot at the center on my skin. I felt no pain at all. Because of...
Today I had my first Humira injection. I previously tested positive for latent TB. But I have been on daily TB medicine for over 3 months, and the Infectious Disease specialist has cleared me to...
Today I read an article that says eating a lot of vegetable oil (including both soybean oil and corn oil) contribute to increased inflammation in the gut and may lead to colitis. It is better to...
I have a GI appointment in early December to discuss starting Humira treatment. I had small bowel resection surgery in March and I would like to use Humira to prevent postoperative recurrence of...
I am concerned about blood loss, because it can lead to anemia. If it happens rarely, maybe it is not a big deal. These days I am having my blood drawn every 1-2 weeks for monitoring purpose, and I...
I find it unusual that the radiologist used the words "proximal small bowel". Does it refer to duodenum or jejunum? In my case, the inflammation was located in proximal ileum. So it is quite specific....
After I was diagnosed of Crohn's, I had a productive life. I got married, had a kid, hold onto a job and traveled to Disney World, Universal Studio, etc. for family vacations. This year I had...
I would like to provide an update on my original post, to share some medical info. On 6/1/2023 and 6/15/2023, some 2-3 months after my small bowel resection surgery, I reported abdominal pain. I...
I do not know much about biologics. But if you can take some time off from work and change your diet, that might help. Plus exercise such as walking. When you say your inflammation markers are up,...
Good to know, Susie. I understand you are either in remission or have Crohn's under control for 20+ years without major issues after the surgery. My Crohn's is also limited to small bowel only....
Susie: when you had your surgery, was your disease limited to colon only? I read it somewhere which says if the small bowel is not involved in Crohn's Disease, your prognosis is the best....
I was diagnosed in 1994. So 29 years ago. I remember every detail leading up to my diagnosis and the years afterwards. I guess refined sugar, or exposure to some toxin, or stress or a combination of...
No, I am not taking probiotic. On the day I had bloody diarrhea, I took a stool iFOBT test, which came back Positive. I immediately stopped Rifampin, and the diarrhea stopped the next day. But the...
Last night and today my abdominal pain returned again. I feel like it is gas pain, because I feel there is a lot of gas in my intestines and the gas gets trapped inside. When the gas expands and...
After my resection surgery, I would like to get on Biologics treatment such as Remicade or Humira. To do that I need to have my latent TB treated first. Yesterday I saw an infectious disease...
Thank you all for your replies. After I made the post, I switched and stayed on liquid diet for 2-3 days, and my abdominal pain is mostly gone. Now I have come back to solid food and has no problem...
The new GI doctor said that I would take a fake pill first. It gets stuck, it will dissolve by itself. If it gets passed, then I take a real Pill Cam. The MRI or CT Scan may not detect minor...
Thank you both for your replies. After surgery, I stayed on liquid diet for 3-4 weeks, and then gradually added solid food and more normal food to my diet. A week ago I ate beef with potato without...
10 weeks ago, I had small bowel resection surgery. My recovery has been progressing nicely until yesterday. Yesterday around 6PM, I suddenly developed sharp abdominal pain around my incision area. 2...
Sometimes it takes 5 minutes to show bad signs, while other times it takes 7 hours, everyone is different. You can keep a diary of what you can and cannot eat, if you want to use food to keep...
I had my surgery about 30 days ago. Because my repeated bowel obstructions are getting worse, I could not wait too long, so I switched to a different hospital and they accommodated me. Now I worried...
73monte: yes, when I was diagnosed, I was in my 20s. Now I am in my 50s. Another thing is that my blood count is low: WBC at 3.1 k/uL, RBC at 3.24 M/uL and Hemoglobin at 9.9 g/dL. Somewhere I read...
I was diagnosed of Crohn's in 1994 by colonoscopy, with multiple ulcers in cecum and terminal ileum, mucosal changes from sigmoid colon to rectum. I have since been treated by Chinese herbal medicine...
By the time they looked at me in the E.R., I have not eaten anything for long time (15-20 hours) and my pain has decreased. So they never admitted me. I found that if I do not eat (i.e. fasting), it...
After having abdominal pain for almost 24 hours, this morning I checked into an urgent care facility. The nurse asked me to go to Emergency Room. I am now at the hospital ER. This is my second ER...
It took me 3 weeks to see a colorectal surgeon and will take me another 9 weeks to have the resection surgery. I feel it is really long wait, as my obstruction from strictures is getting worse. They...
Caribou, Maine is really in the middle of nowhere. If you think you need a lot of medical services in the future, Caribou probably is not a good option....
I lived in Maine for 3 years. Are you moving to Portland area? Another big city is Bangor. I would imagine there are probably more doctors to choose from in the Portland area. It is cold up there and...
I have TMJ, but it is getting better as weeks and months went by. I saw a dentist, who told me my TMJ problem was caused by stress and hard chewing. I never used Prednisone....
No, I did not change my diet recently. I feel the gas is primarily in the intestines. I have better days, and sometimes the gas gets worse. Yesterday I had my second shingles shot, and I am...
Hello, I am not worried about Covid. I am worried about the devastating effects of long Covid. I was recently laid off from a job where I could work 3-4 days at home and 1-2 day in the office. But...
Thank you, Susie. I have taken Phazyme for two days in a roll, as such, my gas volume has decreased significantly. I still feel some discomfort for some trapped gas in my belly. I also tried some...
Lately my Crohn's Disease is acting up for no obvious reason. I have lots of gas, gas pain and bloating for the past 2 days. No diarrhea. But when I sometimes pass the gas, there is mucus that is...
I guess mRNA based Covid-19 vaccines offer better protection such as Pfizer and Moderna. I had two Moderna doses in the Spring of 2021, followed by a booster dose of Moderna injection in the Fall of...
Since I visited my dentist last week, I have been very careful not to chew too hard. I have already noticed reduced pain on my face/jaws. And it's probably because of additional help from valium. I...
Thank you both for your reply. I am taking low dose Valium before bedtime. The dentist said that my TMD trouble was likely caused by the stress that I experienced lately (divorce, death of a parent,...
Hello, I have Crohn's for many years. Today I was diagnosed of Temporomandibular Disorder (TMD). My dentist recommended Advil (a kind of NSAID) and Valium. I know Advil may not be a good ideal for...
On May 25, my PCR test came back showing that I had Covid. The fever lasted 1-2 days and then was gone. Last night my at-home antigen test showed that I am negative. I am still suffering from very...
I took three Moderna shots (2 regular + 1 booster) last year. Every time I took the vaccine, the next day I would experience mild fever and sore arm at injection. No other side effects. The fever...