I still pop in here from time to time! Usually when I am having a Crohn’s flare or symptoms, but it seems slow after the archive got (accidentally) deleted?...
That is a lot to deal with Minnie :( I got osteoporosis in my hip and osteopenia in my spine from prednisone in my early 30’s - one more reason I try to push back when the drs want to prescribe it as...
I’m sorry you’re going thru this WayneTX! I’m currently tapering prednisone myself for a flare and starting a new medicine (Stelara) so I can empathize. I’d say yeah, prob slow the pred taper to...
I’d say yes you’re in a flare but my flares have changed/fluctuated (as also TMI-described below 🙈) Be VERY specific when you tell the doctor you’re having 15 bowel movements a day so he doesn’t...
My strictures have been caused by inflammation, it’s a narrowing of the intestine walls. They have all gone away when my flares calm down so yes that is possible. Also, everyone feels they are...
I’m so sorry you’re going through this Minnietoty. I hope you I get some relief soon. Can you put any topical cream/ointment on the perianal area? I use Calmoseptine (kind of a menthol ointment) or...
I’m sorry your support person is making this difficult for you, it’s not the time for sure. I have Crohn’s, I have had a stricture, and have had a handful of doctors and nurses tell me I would...
Happy to hear this good news Bacon Girl!! I hope you are feeling better soon, I am weaning off prednisone myself (from 40 to 30 last week) and it’s not something I would wish on anyone. Can you ask...
It’s definitely normal to go through all those thoughts and emotions! I’ve had Crohn’s for 17 years and still go through them. This is how it went with me: I had what was diagnosed as mild UC and put...
This is great, so nice to hear such a positive end to a roller coaster of a flare! I’m currently in a flare and on prednisone now (also changing my humira to stelara) so this update is giving me some...
I had tenesmus with this current flare and don’t know/remember if I’ve experienced it before? Usually my Crohn’s flares are pain throughout my abdomen and lots of diarrhea and all the other tmi stuff...
I had a similar ear piercing infection, my ear was already pierced but I hadn’t worn earrings in forever (it could have been the earring but who knows), I tried to treat it myself but after it was...
The colonoscopy is seriously the easy part. The prep sucks because it can be a lot into get down and you’re in the bathroom for hours but once you’re clear you will feel a bit better too since there...
I’ve used Suprep the last few times including last week and the pills are much easier. They offered that or miralax, which I thought was an odd choice since it doesn’t do much for me. Two doses of...
I hope your switch was easy enough and it’s working for you! It’s a hard thing to have to change meds, I am deciding today between Stelara and Skyrizi and it’s hard to know what to do....
17 years (that is crazy to think about!) I had had mild bloating symptoms and nothing really else but that year got a botched root canal where they loaded me w antibiotics, got the flu, then a switch...
Thank you for the replies! I’m still waiting on the Humira bloodwork back. If my antibodies show something is off I’ll switch but am kind of stuck in a wishful thinking pattern right now where I’ll...
Thank you for the replies! The humira bloodwork should come back this week. I am going back and forth with this, I’ve been doing so well for a while and now am back in the position of making a big...
(I posted this on the Crohn’s forum but wanted to get advice here as well. Any suggestions are appreciated, I’m not sure what to do) I’ve had Crohn’s for over 15 years and have been on Humira for...
I’ve had Crohn’s for over 15 years and have been on Humira for about 10. I’m currently in a flare and my dr wants to switch my medicine and is suggesting Skyrizi. I am hesitant to change as I’ve been...
I will start by saying I loathe prednisone and after every flare have said I would never take it again (I am also currently on it now for a flare so this is how that goes lol) IMO wanting to get off...
Hang in there Lilboyo! It’s a tough thing to go through for sure but the beginning is usually the hardest while everyone is figuring out what works. I have Crohn’s and was DX at 30 yrs old. I’ve been...
Minnietoty, I hope you feel better soon! I am not here often either but am currently dealing w a Crohn’s flare w/what seems to be proctitis symptoms. I’ve had an abscess before (twice), why would you...
That sounds painful and scary. :( Do you normally ever have pain and nausea as soon as you take a few bites? That has happened to me but not back pain and it was in the middle of a bad flare where...
Yeah, I’ve had MRIs before where they look at the small intestine and bowel and have had me do the prep so I’m going to do it again for this one - it was a medical secretary who books the...
Sara14, they’re going to do an MRI so hopefully can see something with that. I asked about fasting/bowel prep beforehand when I was scheduling it and the woman just said fast for 4 hours before (then...
Hi Barbz, just wanted to let you know I’m sending you some healing energy! That sounds like it could be scary to get news like that and I hope you’re feeling ok - hopefully your dr has a good plan to...
Sara14, not prednisone often but it’s always pushed as a first line of defense. It’s a great drug in that it works so well but the side effects and long term damage is so bad that I usually make sure...
EruditePaul, thank you, that is helpful! My last CT scan was probably 3 years ago (an MRI last year) and I have never had any strictures (that I know of or have shown up in imaging or procedures)....
Sara14, I haven’t asked the dr yet but I have an appt next week - I wasn’t sure if an endoscopy is the best thing to ask for since I have never had one. (Just MRIs & CT scans X-ray abdomen & obv...
I feel like I’ve had Crohn’s issues everywhere and definitely my gums (or maybe that’s just part of the inflammation in my body). One thing I do that I find helpful in general is oil pulling (an...
NiceCupOfTea, that is so stressful! 😕 I’m sorry you’re going thru this! I’m on Humira and it’s def worrying with the refrigeration and delivery - one time I had it delivered to my pharmacy directly,...
Thanks but I’m not interested in changing my medication if the dr can’t determine where the problem is. I was fine/in remission after last year’s flare that lasted a few months. I’ve had to change...
Ahhh, that’s good to know. I’ve had Crohn’s for 15 years and have been on Humira for about 7 years. I’ve has MRIs to look at my entire colon but my colonoscopies only go as far as the beginning of...
Straydog, have you had the pill cam test for your Crohn’s?...
The colonoscopy (in my experience) is just to see the large intestine and ileum, not the rest of the small intestine. I’ve had MRIs and CT scans before for that but this is a different experience now...
No, the last flare was last year, the most recent colonoscopy was just this week. Lots of inflammation and ulcers, etc but I’m wondering if since I’m not normally constipated if I should ask for my...
Hi all, I’m having another crohn’s flare (after my last one a year ago). The colonoscopy shows ulcers, cobbling, inflammation etc etc and the main symptoms I’ve been having are mucus and blood either...
I had psoriasis show up about 8 years after I was first diagnosed with Crohn’s. When I’m having a flare it tends to try and erupt thru my skin in general but for a while I had huge blotches of red...
Oil pulling with coconut oil is an Ayurvedic practice which is generally beneficial for good health - by swishing the oil in your mouth first thing in the morning after tongue scraping it draws the...
Also, you may want to try sipping it over the course of an hour and drinking the water slowly - better to keep it inside you than chugging it and throwing it up (I don't know how you drank it but...
That does not sound fun :( If you aren't having diarrhea that is frequent and eventually turning into clear water (that is slightly yellowish) then the prep won't work. I recently used the Suprep for...
Just to update, it seems the burning starts 24 hours after my dose of Methotrexate and lasts on and off for about 3 days. It's not just mild burning, it's like the kind where of you're chopping...
That sounds awful. :( This happened to me once, I was having a flare but all my bloodwork was coming back normal - I finally insisted on a colonoscopy (like anyone wants one willingly unless they...
Same, I've had 2 previous perianal abscesses and they had to be surgically drained both times - antibiotics alone don't work because they can't reach the abscess. My GI drs also usually prescribe the...
Dale, I tried to be more aware of the time myself and the burning in my eyes and watering seemed to slow/almost stop as the week went on - I took my Methotrexate dose on Tuesday and yesterday and...
I agree and was just thinking that today; it has slowed down so much since I first found this years ago. I agree when people are well they're not here as often/at all and I'm the same - but if I am...
ASellers, I originally was diagnosed with UC then later they changed the DX to Crohn's - it's not uncommon. It can be scary at first but it's good they found the fistula and a good colorectal surgeon...
Dale, that is so similar to what I am experiencing. I've been on it for about 4 weeks now (12.5 mg each week) Since I never get headaches I noticed that right away but the eyes burning is concerning....
Thanks straydog, I've read everything I could about methotrexate, especially since it has so many side effects. I'm mainly just looking to see if anyone has had a similar experience since this is...