Beave - thank you! thank you! I truly appreciate the recommendation of Entocort. The GI actually said "Hmmm, that's a great idea for him." You are right, the side effects are so much better then pred....
Thanks beave. We have the MRE set for 4/16. Repeats of all the previous inflammation tests are starting to come in and like I suspected, they are all still high. Just wanted to double check...
Here's the part of the report of interest E) TERMINAL ILEUM, BIOPSY: - ACTIVE ILEITIS WITH ULCER AND GRANULATION TISSUE (SEE COMMENT). - FOCAL GRANULOMA FORMATION IDENTIFIED. - NEGATIVE FOR DYSPLASIA...
Well darn. The pathologist and doctor both said the biopsies lean towards "early stages Crohn's". They wanted to start treatment ASAP but I pushed for the MRE and to rerun the ESR, Calprotectin and...
Update: The endoscopy found no damage and everything looked healthy so celiac has been ruled out. Although they did do biopsies just in case. The colonoscopy showed no damage at all. They said the...
Just wanted to update that I confirmed with the GI that yes during the upper endoscopy they are getting biopsies of the duodenum /upper small bowel. He said that is the gold standard for evaluating...
We have the colonoscopy and endoscopy scheduled for next week. Thanks for thinking of us! I'm still holding out hope its celiac....
Thanks for the great explanation...
The GI told me to start researching biologics. Everything I'm reading says the dangers in male teens come into play when you mix Remicade and azathioprine or 6-mercaptopurine. Why do they prescribe...
Cyclinglady - they did the following tests for celiac. I will mention to the GI though. TISSUE TRANSGLUTAMINASE IGA (U/ML) His level <0.5 U/mL -- acceptable is <=14.9 U/mL DEAMIDATED GLIADIN PEPTIDE...
Well beave you were right. The GI thinks its Crohn's and we are scheduled for a colonoscopy and Endoscopy in 2 weeks. Any tips for my son of what to drink with the colonoscopy meds?...
Talked to the GI. He think its Crohn's so we are scheduled for a colonoscopy and Endoscopy in 2 weeks. Any tips for my son of what to drink with the colonoscopy meds?...
Thanks everyone. Appointment with the GI tomorrow. I'll post what we find out....
Honestly this is the nicest forum! I have been lurking around looking for answers since last week. I really appreciate how kind everyone has been today. I will post the outcome so if someone has this...
Hi Everyone I also posted in the UC board but thought I'd pick your brain. My son (14 yr) was feeling run down and had minor chest pains when exercising. We took him to the doctor and after tons of...
No other IBD or Crohn's in the family. No meds or supplements. Only a multivitamin and some children's tylonol for pain from his braces. He's always been small for his age but the doctor has never...
Thanks everyone. He's 14 so I'm going to request a new calprotectin Stool test before we head down the colonoscopy route....
Thanks. They checked, no blood in the stool. Just dropped of the sample for the C Diff test. No history of IBD but we do have a history of colon cancer. We have a GI appointment this week....
My son (14 yr) was feeling run down and had minor chest pains when exercising. We took him to the doctor and after tons of blood and stool tests determined he's anemic. He has consistent bowel...