Jake, So sorry to hear you're struggling once again. I really hope you will get someone to listen to you. Honestly, I think that is almost always the biggest issue for those of us with chronic...
Sorry to hear you are feeling poorly. Seems like there could be a few issues going on separately, but together are making you miserable. Have you tried taking Miralax? It’s pretty mild and may get...
Hi again! After that awful weekend home right after the surgery, I am feeling much better. Still have the same pattern, however, each day: eat breakfast, D for about two hours, then quiet until the...
Sorry to hear you are feeling unwell! I agree with 73Monte. May be time to chat with a new doctor. It can be a frustrating process (waiting for an appointment, retelling your whole history, etc. )...
Minnie, One of the hardest things to learn is to say “no” or “I just can’t.” I am deeply sorry for the loss of your brother. I also hear how you feel you have many responsibilities to take care of...
Thanks everyone. Now, I have the D, and just started bloating. I look like a Macy’s day parade float. No vomiting or pain just discomfort. Praying it doesn’t escalate so I have to go back to the...
Hey there all, Quick update post surgery: Doc is pretty confident he found the cause of my pain/vomiting: adhesions upper left, and structure/adhesions lower right. It’s been 10 years since my last...
Gumby: I’ve had episodes of excruciating pain/vomiting since last April. After every test know to man, they went in laparoscopically in July, but symptoms returned the next month. I’ve been on and...
Gumby44, So sorry to hear that you’re in the hospital. It’s a shame that something small like a raw veggie caused so much trouble, but alas, that can be the life with Crohn’s disease. I’ll root for...
Jake: I hope that you have good visit with the new doc in Chicago. Please keep us updated. I’m trying to gear myself up for a day of bowel prep tomorrow... Lots of Miralax. I’m skipping the...
Karen, Thanks so much for your response. I am definitely going to ask about the film. I had heard of it before, but it surely couldn’t hurt giving it a try if my surgeon is willing. I will also try...
UPDATE: Hello all, All testing regarding functional bowel issues were completely normal. I got a second opinion on surgery, and this doctor was fairly certain based on my symptoms (the very precise...
Welcome, basimmons3! I'm sorry to hear about all you've been through! I've had the pillcam while very ill, and it didn't show much. A tagged white blood cell scan and double balloon endoscopy (with...
Karen-- Yes, unfortunately, I am all too aware of the limitations of CT/MRI on revealing adhesions, as well as the physicians' reliance on those tests and the upper/lower endoscopy playbook. Every...
Jake: Sounds like you are out of the hospital, correct? If so, that's wonderful. Nothing like being at home. Yep, gabapentin can cause constipation for sure (I was offered it again and again after my...
Karen, Thank you for your very detailed post. It means the world to me that you took the time to respond. I am really thinking a great deal about everything you said. At this point, I suppose there's...
Stray dog, I have a new GI and a new surgeon. My old GI left and old surgeon...well, let’s just say I wasn’t completely confident in him since I didn’t find relief after the first surgery, hence the...
Hey folks, I need some help from the community here. In another post a few months ago, I recounted my story of having episodes of extreme upper left abdominal pain, nausea, vomiting about 1-2 hours...
UPDATE: MRI showed some sections of tethered bowel, but surgeon insists it couldn’t be his surgery (or that he missed this when he went in). Brilliant idea to try me on prednisone for three weeks to...
Jake: wow, what good news that things are finally moving In the right direction! Docs actually treating all your issues and you feel better. Imagine that!...
Wow! Great to hear the good news about your biopsies, as well as how good you’re finally being treated by these doctors. Hope things continue to look up for you!...
Yep, they did the full panel and many biopsies. Not celiac. I’m scheduled for a tagged white blood cell scan for next week to see if the disease in my small intestine is active.... actually hoping...
So glad to hear you are getting answers and responses from the doctors, Jake!...
So glad you are getting some answers, Jake. Here’s hoping the biopsies come back clear and you can get on biologics, and hopefully in remission. Very glad to hear that you are in a place that’s...
Keep us updated, JakeB! Wishing you a nice nap and good results that point the docs in the right direction! Thanks for the support....
So sorry I missed your post! I hope that you were able to do your test! I was going to recommend calling the office because they may be able to call in a different prep, or at least some Zoltan for...
TNGIRLSMOM: Yep, I may have to give smoothies a try. I hope that your meds give you some relief. I completely understand not wanting surgery again as I’m in the same boat. JakeB: yep, we are both a...
JakeB: I hope that your docs would all sit in the same room to chat. It may help. And I’m sorry you are struggling with the fear of cancer returning as well as Crohns. It must be so difficult to just...
Thanks to you both for sharing. It’s both comforting and frustrating to know that we are dealing with similar issues and are not getting the help we need. Biopsies all came back negative (shocker...
I will also try the stomach empty study, too, because at this point, what can it hurt? Colonoscopy was clear yesterday (exactly as expected). They did find several small polyps in my stomach which...
Thanks for your response. I’m puzzled about what’s going on with me honestly. After having the pain for so long and my dr did the partial laparoscopic surgery, he said he did check around at...
I’m so sorry you aren’t feeling well. I completely understand your frustration with wanting an answer and an end to your pain. I’ve asked for a resection twice now (there was evidence of some looping...
Update two: Going in Monday for upper and lower scopes.... wish me luck!...
This must be terribly frustrating for you. Obviously, we know our bodies best, and that’s frustrating when the doctors who don’t have to deal with the pain and other symptoms tell us things are fine....
So sorry to hear your story. It can be extremely frustrating, depressing and lonely to struggle like this. Do not be afraid to speak up for yourself, and be sure to be specific about your symptoms....
Hello all: quick update. Doc says usual “oh this is terrible that you’ve been in pain for so long and cannot eat...” Goes to schedule tests and sees first available is January 24th. 🙄 She wants...
Thanks all for your help. I have an appt Monday, and am going to do my best to advocate for myself. I have zero interest in another surgery since it just creates more issues, but I also know I can’t...
Yep, the CT had both types of contrast. Perhaps it’s gastroperesis? Some of those symptoms are similar to mine. I’ve been checked for almost everything else: pancreatitis, celiac, Mediterranean Fever...
Nope. Never had this pain or these symptoms before April of this year. And I’m telling you, it brings me to my knees. It’s excruciating. I finally went to the ER in June where they did a CT scan,...
Georgetown University Hospital. MRI Enterography. And just your standard CT scan with contrast....
Last surgery was in July. Symptoms started again in September. And I haven’t been on meds in a while. Not flaring. It had been in remission (or so we think). At this point I’m concerned it’s small...
Hello, Beave, 1. Haven’t had an upper endo in about a year. Weird, right, considering my symptoms. 2. Resections were all small bowel. 1st was near the illeocecal valve. Next was further along (just...
Hello all, Looking for advice after most recent resection(this is my 4th since being diagnosed with Crohns when I was 14) . I’d gone 4 months with extreme upper left pain and vomiting episodes. Docs...
Hi everyone, Been on Entocort for over a year (which was NOT my doctor's plan at all). I'm down to just one pill a day, but whenever I try to quit, I immediately have symptoms. It has made a huge...
As far as it takes. Nothing replaces a doctor that will listen to you and one you can trust. Driving is worth peace of mind....
So I had cold/cough thing for about four days. That cleared up. Then, I had the most severe nausea for the next two. Now, I've got horrible D and had to leave work today. Wondering if I've picked up...
Thanks for the help, everyone. Got discharged today, but they have NO IDEA what caused the massive bleeding. Told me to be sure to come back if it happens again. How comforting. Feeling icky from...
So I spent last night in the ER and in a room today after seeing LOTS and LOTS of blood in the toilet. Today's my birthday which I got to spend fasting in preparation for tomorrow's EGD and...
Never a dull minute around here: Fever of 100.2. They only decided to do the procedure the last minute. Then, they had to try it three times! First time, the pill got stuck, second time, the wire...
How much less do you drink? Really, it's almost like someone tried to think of a way to make the most obnoxiously-tasting drink with these preps. Anyone know if I can go through the EGD if I've got a...